Supporting Safe Transitions From Home to Healthcare Settings for Individuals With Intellectual Disabilities

Brown, Marisa C.; Censullo, Meredith

doi:10.1097/01.tgr.0000311408.47296.6c

Cited by 4 publications

(7 citation statements)

References 18 publications

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“…In recent years, efforts for seamless transition for clients hospitalized in psychiatric units to the community have improved (Delaney & Lynch 2008). Brown & Censullo (2008) stress the particular need for communication between inpatient and community facility staff and the family in order to prevent problems when individuals with ID are discharged from inpatient settings. With consent from the family guardian, the Unit Director and the social worker kept in weekly contact with the community agency to discuss progress and changes in the treatment plan during the client's 6‐week stay.…”

Section: Plan Of Carementioning

confidence: 99%

Clients with intellectual disabilities on psychiatric units: care coordination for positive outcomes

Krch-Cole

Lynch²,

Ailey

2011

Psychiatric Ment Health Nurs

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The transition from residential facilities to and from the psychiatric hospital setting is difficult for individuals with intellectual disabilities (ID). In the U.S.A., specialized psychiatric units for individuals with ID are uncommon and this population is usually served in generalized services. Nevertheless, providers of mental health services in the U.S.A. receive little training in their specific needs. Best practices call for coordination of plans between psychiatric units and community agencies, multidisciplinary care plans, staff education and comprehensive discharge planning in order to improve outcomes of psychiatric hospitalization. An inner city psychiatric unit in a major academic medical centre and a community agency providing residential care for individuals with ID cooperated to provide a plan of care for a client with ID both for hospitalization and for discharge leading to improved outcomes.

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Section: Plan Of Carementioning

confidence: 99%

Clients with intellectual disabilities on psychiatric units: care coordination for positive outcomes

Krch-Cole

Lynch²,

Ailey

2011

Psychiatric Ment Health Nurs

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“…Population‐centred navigation roles include those focused on the ‘working poor’ (Gimpel et al. 2010) and those with intellectual disabilities (Brown & Censullo 2008). Role‐focused navigation is illustrated by those for which the primary focus is on brokerage or advocacy on behalf of the client (Feinberg 2004), and clinical models where clinical interventions and management drive its effectiveness (Yamamoto & Lucey 2005).…”

Section: Introductionmentioning

confidence: 99%

“…Disease-specific navigation programmes include those conceived for patients with stroke (Egan et al 2010), gastrointestinal disease (Smith 2002), total hip replacement (Holle et al 1995) and cardiac disease (Barrett et al 2003). Population-centred navigation roles include those focused on the 'working poor' (Gimpel et al 2010) and those with intellectual disabilities (Brown & Censullo 2008). Role-focused navigation is illustrated by those for which the primary focus is on brokerage or advocacy on behalf of the client (Feinberg 2004), and clinical models where clinical interventions and management drive its effectiveness (Yamamoto & Lucey 2005).…”

Section: Introductionmentioning

confidence: 99%

Navigation roles support chronically ill older adults through healthcare transitions: a systematic review of the literature

Manderson

McMurray

Piraino

et al. 2011

Health &Amp; Social Care in the Community

162

205

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What is known about this topic dSystem navigator roles for high-risk patients generally target populations whose medical condition and circumstances require support in accessing appropriate care. Concludes that the heterogeneity of models and interventions precludes direct comparison, but that navigators may be effective in assisting older patients as they transition between healthcare settings and in diverting older patients with serious and persistent medical conditions, from higher levels of care. AbstractTransitions between various healthcare services are potential points for fragmented care and can be confusing and complicated for patients, formal and informal caregivers. These challenges are compounded for older adults with chronic disease, as they receive care from many providers in multiple care settings. System navigation has been suggested as an innovative strategy to address these challenges. While a number of navigation models have been developed, there is a lack of consensus on the desired characteristics and effectiveness of this role. We conducted a systematic literature review to describe existing navigator models relevant to chronic disease management for older adults and to investigate the potential impact of each model. Relevant literature was identified using five electronic databases -Medline, CINAHL, the Cochrane database, Embase and PsycINFO between January 1999 and April 2011. Following a recommended process for health services research literature reviews, exclusion and inclusion criteria were applied to retrieved articles; 15 articles documenting nine discrete studies were selected. This review suggests that the role of a navigator for the chronically ill older person is a relatively new one. It provides some evidence that integrated and coordinated care guided by a navigator, using a variety of interventions such as care plans and treatment goals, is beneficial for chronically ill older adults transitioning across care settings. There is a need to further clarify and standardise the definition of navigation, as well as a need for additional research to assess the effectiveness and cost of different approaches to the health system.

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“…) – have greater health needs than the general population (Brown , Disability Rights Commission ). Concurrent disabilities such as epilepsy, cerebral palsy and mental illness are common (Brown & Censullo ), which increase the likelihood of requiring contact with health services by almost twofold, compared to the rest of the population (Brown & MacArthur ). Paradoxically, however, people with learning disabilities are likely to have higher levels of unmet health needs (Campbell , Kent ).…”

Section: Introductionmentioning

confidence: 99%

“…Reviews of evidence have focussed on access, rather than provision of services (Alborz et al . , Brown & Censullo , Backer et al . ).…”

Section: Introductionmentioning

confidence: 99%

Promoting the health, safety and welfare of adults with learning disabilities in acute care settings: a structured literature review

Bradbury‐Jones

Rattray

Jones

et al. 2013

Journal of Clinical Nursing

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Aims and objectives. To present the findings of a structured literature review that aimed to identify the influences on the health, safety and welfare of adults with learning disabilities in acute hospitals. Background. There is increasing evidence regarding the inadequacy of care for people with learning disabilities in acute care settings. However, few studies have specifically addressed their health, safety and welfare in such contexts. Design. Four key electronic databases (Medline; PsycINFO; British Nursing Index and archive; Cumulative Index to Nursing and Allied Health Literature) were searched for relevant literature published between 2000 and 2011. Methods. Publications assessed as meeting the inclusion criteria were retrieved in full. Data were extracted regarding methods used; primary aims of the study being reported; and key findings. Results. Of the 3505 papers identified in the initial search, eight met the inclusion criteria. Analysis revealed six areas of influence on the health, safety and welfare of adults with learning disabilities in acute hospitals: care provision (meeting health and personal needs); communication; staff attitudes; staff knowledge; supporters; and carers (valuing their role); physical environment. Conclusions. We represent these six areas diagrammatically, as concentric rings. These influence on health, safety and welfare form an inner (direct) layer and an outer (indirect) layer consisting of liaison services and education/training. This new conceptualisation of influences as being multi-layered assists in the identification of similarly multi-layered improvement strategies. Relevance to clinical practice. Adults with learning disabilities can exert their own influence on health, safety and welfare and should be supported to make decisions about their own care. More broadly they should be involved with policy development, nurse education and research. This can be achieved through inclusive approaches, for example, inviting people with learning disabilities to input into nursing curricula or to engage in research as coinvestigators.

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Supporting Safe Transitions From Home to Healthcare Settings for Individuals With Intellectual Disabilities

Cited by 4 publications

References 18 publications

Clients with intellectual disabilities on psychiatric units: care coordination for positive outcomes

Clients with intellectual disabilities on psychiatric units: care coordination for positive outcomes

Navigation roles support chronically ill older adults through healthcare transitions: a systematic review of the literature

Promoting the health, safety and welfare of adults with learning disabilities in acute care settings: a structured literature review

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