Supportive Activities Requested by Survivors of Cancer

Stalker, Martha Z.; Johnson, Patricia Stewart; Cimma, Claudia

doi:10.1300/j077v07n04_02

Cited by 33 publications

(28 citation statements)

References 6 publications

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“…This may reflect the fact that when patients return to functional and physical well-being they have more energy to direct toward those concerns that face people in general. Stalker et al 29 found that cancer survivors had many concerns following treatment. When compared with the Stalker study of cancer survivors who had completed treatment less than 2 years prior to completing the survey of concerns, the BMT patient mean scores at 1 year were lower (less concern) on six items (job, family, health, state of mind, appearance and ability to have children) and higher (more concern) on five items (friends, financial concerns, physical well-being and planning for the future).…”

Section: Discussionmentioning

confidence: 99%

“…In addition, they were interviewed by a research assistant (interviewer questionnaire) who inquired about a list of concerns identified by patients in previous research. 29 At approximately 100 days and 12 months following transplantation, participants were mailed questionnaire packets which included all instruments completed at baseline plus the interviewer questionnaire described below. Patients were instructed to complete the questionnaire in preparation for the research interviewer's telephone call.…”

Section: Procedures and Measuresmentioning

confidence: 99%

“…The questionnaire was adapted from a previous survey of cancer patients conducted by Stalker and colleagues. 29 Items were answered on a Likert scale with a range of response from 1 (no concern) to 5 (extremely concerned). In part 2, patients were asked about their satisfaction with medical care, expectations regarding treatment, and participation in counseling or support groups.…”

Section: The Eastern Cooperative Oncology Group (Ecog) Performance Stmentioning

confidence: 99%

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Quality of life and psychological distress of bone marrow transplant recipients: the ‘time trajectory’ to recovery over the first year

McQuellon

Russell

Rambo

et al. 1998

Bone Marrow Transplant

188

162

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Summary:The purpose of this study was to measure the trajectory of psychosocial recovery over the first year after bone marrow transplantation (BMT). BMT patients were assessed at baseline (n = 86), hospital discharge (n = 74), 100 days (n = 64) and at 1 year (n = 45). Participants completed the Functional Assessment of Cancer Therapy-Bone Marrow Transplant Scale (FACT-BMT), the Profile of Mood States Total Mood Disturbance Scale (POMS-TMDS), the Medical Outcomes Social Support Survey (MOS-SSS), the Center for Epidemiologic Studies-Depression (CES-D) scale screener, a performance Status Rating Scale (PSR), and an interview questionnaire. The recovery trajectory in this patient population showed three distinct trends. The trajectory for distress was linear and improved over time with approximately 20% of patients continuing to have psychological distress at 1 year. Secondly, the trend for overall quality of life was parabolic, worsening at discharge, then improving at 100 days and at 1 year. However, there were individual areas of deficit at follow-up, eg fatigue, even while overall quality of life mean scores improved. Thirdly, the trend for patient concerns over time was linear and worsening. These recovery trajectories suggest psychosocial interventions before and after BMT that may prepare patients for increasing and worsening concerns even as physical well-being improves. Keywords: quality of life; psychological distress; bone marrow transplantationThe psychological adaptation of bone marrow transplantation patients has been the subject of study for over 20 years.1 However, the first study indexed by the National Library of Medicine's Medline under both terms 'quality of life' and 'bone marrow transplantation' was published as recently as 1982.2 Case studies and clinical observations 1,3,4 have provided the impetus for post-transplant surveys designed to assess the psychological status and physical functioning of patients in cross-sectional, longitudinal stud- ies. [5][6][7][8][9][10][11][12] More recently, studies that employ a prospective longitudinal design measuring quality of life (QOL) both before and at multiple time points after transplantation have been utilized. [13][14][15][16] Several comprehensive reviews of the literature provide an overview of the numerous studies conducted to date. [17][18][19][20] Even with a developing consensus that post-BMT functioning can be satisfactory for most survivors, questions remain about how quickly patients recover a life of quality following BMT. For example, what concerns and problems do recipients experience in returning to normal during the 1 year time period post-BMT? 21,22 Our understanding of post-bone marrow transplant functioning has benefited greatly from surveys completed by patients following transplantation. However, patients who are assessed at variable time points months to years after transplantation do not represent a homogenous group. There is some evidence of a trajectory of recovery over the first year following transplantation. Patients may...

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Section: Discussionmentioning

confidence: 99%

Section: Procedures and Measuresmentioning

confidence: 99%

Section: The Eastern Cooperative Oncology Group (Ecog) Performance Stmentioning

confidence: 99%

See 1 more Smart Citation

Quality of life and psychological distress of bone marrow transplant recipients: the ‘time trajectory’ to recovery over the first year

McQuellon

Russell

Rambo

et al. 1998

Bone Marrow Transplant

188

162

View full text Add to dashboard Cite

show abstract

“…Il est donc important de pré-parer et de faciliter la transition des soins tertiaires vers le suivi offert en milieu de soins primaires. (Lebel, Rosberger, Edgar et Devins, 2007;Stalker, Johnson et Cimma, 1990). De même, après leur traitement, les survivantes du cancer de l'endomètre éprouvent divers besoins émotionnels, physiques et médicaux, en plus d'avoir besoin d'information (Hodgkinson et al, 2007).…”

Section: Soins De Suivi Aux Survivantsunclassified

Évaluation de la mise en œuvre d’une séance d’information à l’intention des survivantes dans le cadre d’un Programme de bien-être au-delà du cancer : portrait des participantes

Jones

Leclair

Petricone-Westwood

et al. 2017

CONJ

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“…En una encuesta de 200 supervivientes de cáncer, el 30% había cambiado de puestos de trabajo y el 23% había cambiado sus planes de vida en los 2 años posteriores a su tratamiento de cáncer (Stalker, Johnson, y Cimma, 1990). Mientras que los niveles de ansiedad y depresión pueden reducirse a niveles premórbidos, es raro que a un paciente de cáncer mantenga un sentido de continuidad con su vida antes del cáncer, es muy frecuente que haya un cambio del sentido que ostentan sobre sí mismos y el mundo (Taylor, 1983).…”

Section: Alteraciones Psicológicas En Pacientes Con Cáncerunclassified

Evaluación de las alteraciones psicológicas y de la calidad de vida en pacientes con cáncer colorrectal localizado

Pérez

2016

Psicooncología

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Supportive Activities Requested by Survivors of Cancer

Cited by 33 publications

References 6 publications

Quality of life and psychological distress of bone marrow transplant recipients: the ‘time trajectory’ to recovery over the first year

Quality of life and psychological distress of bone marrow transplant recipients: the ‘time trajectory’ to recovery over the first year

Évaluation de la mise en œuvre d’une séance d’information à l’intention des survivantes dans le cadre d’un Programme de bien-être au-delà du cancer : portrait des participantes

Evaluación de las alteraciones psicológicas y de la calidad de vida en pacientes con cáncer colorrectal localizado

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