Supports for people with intellectual and developmental disabilities during the COVID-19 pandemic from their own perspective

Navas, Patricia; Amor, Antonio M.; Crespo, Manuela; Wolowiec, Zofia; Verdugo, M.

doi:10.1016/j.ridd.2020.103813

Cited by 95 publications

(114 citation statements)

References 28 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Flere av tjenesteyterne hevdet at nedstengningen saerskilt utfordret muligheten for en aktiv hverdag for tjenestemottakerne. Dette sammenfaller med funn i både nasjonale (Helsetilsynet, 2020) og internasjonale studier (Embregts et al, 2020;Navas et al, 2021) om begrenset mulighet for aktivitet utenfor hjemmet under koronanedstengningen. Tjenesteyterne påpekte videre hvordan mange tjenestemottakere, i motsetning til folk flest, er mer avhengig av støtte fra andre for å vaere aktiv.…”

Section: å Ha Et Eget Hjemunclassified

“…Vi ser at når besøksrestriksjonene kombineres med å gruppere folk i kohorter, ender personer som i utgangspunktet har et begrenset sosialt nettverk, opp med et nettverk som utelukkende består av et mindre utvalg betalte hjelpere. At pandemien medfører savn av sosial kontakt med familie og venner for personer med utviklingshemming, understrekes også i andre studier (Embregts et al, 2020;Navas et al, 2021). En slik manglende kontakt kan påvirke den enkeltes levekår negativt og medføre ensomhet (Kittelsaa et al, 2015).…”

Section: å Ha Et Eget Hjemunclassified

“…I ny forskning på covid-19 og utviklingshemming finner en at personer med utviklingshemming under pandemien savner sosial kontakt med familie og venner og å kunne delta i aktiviteter utenfor hjemmet (Embregts et al, 2020;Navas et al, 2021). Videre fremkommer det at koronarestriksjonene har begrenset tilgangen til ulike tjenester, men at digital støtte gir mulighet for fleksibel og tilgjengelig oppfølging (Jeste et al, 2020;Zaagsma et al, 2020).…”

Section: Introduksjonunclassified

“…Videre fremkommer det at koronarestriksjonene har begrenset tilgangen til ulike tjenester, men at digital støtte gir mulighet for fleksibel og tilgjengelig oppfølging (Jeste et al, 2020;Zaagsma et al, 2020). Hvem en mottar hjelp og støtte fra, avhenger av om en bor med familie eller ikke (Navas et al, 2021). I en rapport fra Helsetilsynet (2020) fremgår det at en spørreundersøkelse gjennomført i samarbeid med Norsk Forbund for Utviklingshemmede avdekker at mange personer med utviklingshemming opplevde reduserte tjenester, dagtilbud som forsvant, redusert bevegelsesfrihet og isolasjon under koronapandemien.…”

Section: Introduksjonunclassified

See 3 more Smart Citations

Selvstendig liv og smittevern – rettigheter i krysspress under covid-19-restriksjoner for personer med utviklingshemming

Melbøe¹,

Hirsti²,

Gjærum³

et al. 2021

TFO

View full text Add to dashboard Cite

I artikkelen retter vi søkelyset mot helse-og omsorgstjenester for personer med utviklingshemming, og vi diskuterer hvordan tjenesteytere erfarte ulike krysspress mellom smittevern og selvstendig hverdagsliv under den første koronanedstengningen. Artikkelen bygger på en kvalitativ intervjustudie som ble gjennomført i juni 2020, hvor 19 tjenesteytere ved kommunale botilbud i ulike deler av landet deltok. Gjennom vår analyse av datamaterialet fremkom det at sikring av den enkeltes rett til smittevern kan stå i krysspress med retten til respekt for eget hjem, til et selvstendig liv og til en aktiv og meningsfylt tilvaerelse. Vi finner videre at smittevernspraksisen kan medføre nye former for «institusjonalisering».

show abstract

Section: å Ha Et Eget Hjemunclassified

Section: Introduksjonunclassified

See 2 more Smart Citations

Selvstendig liv og smittevern – rettigheter i krysspress under covid-19-restriksjoner for personer med utviklingshemming

Melbøe¹,

Hirsti²,

Gjærum³

et al. 2021

TFO

View full text Add to dashboard Cite

show abstract

“…People with IDD are more likely to die from covid-19 due to high comorbidity with pre-existing conditions such as hypertension, heart disease, respiratory disease, and diabetes which are identified as risk factors for poor outcomes from COVID-19. They have higher risk of influenza and pneumonia, and higher and premature risk of death (19)(20)(21).…”

Section: Impact Of Pandemic On Idd Athletesmentioning

confidence: 99%

Untitled

2021

IRJMS

View full text Add to dashboard Cite

The Covid-19 pandemic has had a ripple effect on all our lives, changing our work, leisure, sleeping patterns, food habits and everyday lives. Persons with disabilities, especially those with Intellectual and Developmental Disabilities (IDD), have borne the biggest brunt of the pandemic, being marginalised and side-lined in aspects of medical treatment, accessibility to public facilities and services, and support systems. This paper focuses on the impact of the pandemic on the lives of child athletes with IDD in West Bengal. The study uses primary data collected from guardians of children with IDD using interviews, along with data from other empirical research. The routines of child athletes with IDD have broken down, and have resulted in them undergoing multifarious behavioural and emotional changes. Apart from finding it difficult to cope with the changing situation, the children are also facing problems in accessing medical facilities and services, educational institutions, and open spaces. The legal frameworks for maintaining the health of PWDs are not being followed, causing deterioration and breakdown in communication, transportation, accessibility to services and schemes. Finally, the paper ends with suggestions and measures that must be taken to enable the PWD population to maintain a life of dignity and well-being.It looks at the changes in behavioral patterns, sleep patterns, and the changes in the daily routines of these athletes. It further looks into the ways these athletes have used mechanisms of sports and exercise to create new sets of routine in making sense of the pandemic life. Accessibility to healthcare facilities and services during this period has also been analysed, and the multifarious problems it holds for persons with disabilities. Legal frameworks at both international and national levels, along with new guidelines for care of PWDs, and the overall Government response in the pandemic have also been studied. Finally, the paper ends with suggestions and measures that must be taken to enable the PWD population to maintain a life of dignity and well-being.

show abstract

Left behind in the “Return to Normal”: People with intellectual and developmental disabilities' outcomes and supports 4 years into COVID‐19

Friedman

2024

Diversity & Inclusion Research

View full text Add to dashboard Cite

The COVID‐19 pandemic has impacted people with intellectual and developmental disabilities (IDD) immensely. While the pandemic and life during it has changed over time, by the end of 2023, the most prominent narrative was a “return to normal.” Yet, there is less research about people with IDD's quality of life and services and supports beyond the initial waves of the pandemic. The aim of this study was to examine the impact of the COVID‐19 pandemic on people with IDD's quality of life outcomes and supports 4 years into the pandemic. Using a repeated cross‐sectional design and linear and binary logistic regression models, we analyzed secondary Personal Outcome Measures® data from 4549 people with IDD from 2018 to 2023 in the United States (n = 4391; 32 states), Canada (n = 142), Ireland (n = 12), New Zealand (n = 3), and Australia (n = 1). We found people with IDD's quality of life outcomes and supports have yet to return to prepandemic levels. In fact, not only was almost every area of quality of life negatively impacted, many people with IDD who were interviewed in 2022 and 2023 had worse outcomes and supports than those interviewed earlier in the pandemic. Instead of clinging to the idea that life or the service system for people with IDD has “returned to normal,” we must recognize that normal was never a good enough destination to return to for people with IDD in the first place. Instead, we must commit to a new normal that is inclusive, accessible, and equitable.

show abstract

Supports for people with intellectual and developmental disabilities during the COVID-19 pandemic from their own perspective

Cited by 95 publications

References 28 publications

Selvstendig liv og smittevern – rettigheter i krysspress under covid-19-restriksjoner for personer med utviklingshemming

Selvstendig liv og smittevern – rettigheter i krysspress under covid-19-restriksjoner for personer med utviklingshemming

Untitled

Left behind in the “Return to Normal”: People with intellectual and developmental disabilities' outcomes and supports 4 years into COVID‐19

Contact Info

Product

Resources

About