Surveying People with Disabilities: Moving Toward Better Practices and Policies

Hasnain, Rooshey; Shpigelman, Carmit Noa; Scott, Mike; Gunderson, Jon; Rangin, Hadi Bargi; Oberoi, Ashmeet; McKeever, Liam

doi:10.1002/9781118594629.ch24

Cited by 2 publications

(1 citation statement)

References 19 publications

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“…In addition, it is necessary to consider the limitations associated, for example with disability, which can pose barriers to participation in self-administered questionnaires. Thus, it is important to emphasize the need to consider the barriers that may arise, as they are factors that may limit the data collection from these adolescents or even make it impossible (Hasnain, 2015). In this sense, making adaptations to the general questionnaire to better adjust it to possible limitations of the adolescents can be an important option to cover a larger number of participants.…”

Section: Discussionmentioning

confidence: 99%

Chronic health conditions measured in general health questionnaires for adolescents in Europe

Ramos-Cerqueira¹,

Godeau²,

Mitra³

et al. 2022

AMC

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The present study intends to assess how chronic health conditions are being evaluated in general health questionnaires aimed at adolescents. A review of questionnaires that contain questions about different domains of the adolescents' lives and about chronic disease and/or disability was performed. Different terminologies regarding the domain of chronic conditions (e.g. long-term illness, disability, medical condition, illnesses/disorders, chronic disease, health problems) and different questions formulations and evaluation measures are used. Some questionnaires include questions about the specific areas affected by the chronic health condition and limitations This work allowed an overview of the main categories present in the questions about chronic disease/disability that are currently being included in these instruments. It highlights the importance of considering the adolescents with chronic conditions in the general health questionnaires, as this allows for increasing knowledge about their needs and difficulties. Data collection on adolescents with chronic conditions’ social participation is very important and should be reinforced through improved questions.

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Section: Discussionmentioning

confidence: 99%