Symptoms and Self-Management Strategies Identified by Children With Cancer Using Draw-and-Tell Interviews

Linder, Lauri; Bratton, Heather; Nguyen, Anna; Parker, Kori; Wawrzynski, Sarah E

doi:10.1188/18.onf.290-300

Cited by 36 publications

(48 citation statements)

References 35 publications

(43 reference statements)

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“…Pain was represented in 12 of 27 drawings of “sick day” experiences by 6- to 12-year-old children (Linder, Bratton et al, 2018). Sources of pain included general pain, headaches, and procedural pain.…”

Section: Resultsmentioning

confidence: 99%

“…The relationship between parent trait anxiety and parent-reported pain, solicitous behaviors, and quality of life impairment in children with cancer (Link & Fortier, 2016) 353 parents of children Identifying symptom clusters in pediatric cancer patients using the Memorial Symptom Assessment Scale (Atay, Conk, & Bahar, 2012) 54 children 10-18 years MSAS 10-18 Prevalence of pain 59%, 57%, and 37% prevalence at 1, 2, and 3 months postdiagnosis. Symptoms and self-management strategies identified by children with cancer using draw-and-tell interviews (Linder, Bratton, et al, 2018) 27 children 6-12 years receiving cancer treatment Draw-and-tell interviews 44% reported some type of pain whether as part of their sick day experience Sources of pain included general pain (30% reporting) that was distinct from headache (19% reporting).…”

Section: Studies Of Correlation and Causes Of Symptom (N = 6)mentioning

confidence: 99%

“…Symptoms and self-management strategies identified by children with cancer using draw-and-tell interviews (Linder, Bratton, et al, 2018) 27 greater distress 30% to 60% of the time (Linder, Al-Qaaydeh, et al, 2018;Olagunju et al, 2016).…”

Section: Studies Of Experience Of Symptom (N = 4)mentioning

confidence: 99%

“…These symptoms interfere with the child’s quality of life, including his or her ability to engage in daily, developmentally appropriate activities (Kestler & LoBiondo-Wood, 2012). The distress children and adolescents experience from these symptoms affects not only themselves but extends to their parents and siblings as well (Linder, Bratton, Nguyen, Parker, & Wawrzynski, 2018; Pöder, Ljungman, & von Essen, 2010). As the intensity of treatment for childhood cancer continues to increase, greater attention needs to be placed on alleviating symptoms.…”

Section: Introductionmentioning

confidence: 99%

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Symptoms in Children Receiving Treatment for Cancer—Part II: Pain, Sadness, and Symptom Clusters

Linder

Hooke

2019

J Pediatr Oncol Nurs

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Children and adolescents receiving treatment for cancer experience multiple symptoms as a consequence of their disease and its treatment that interfere with the child’s quality of life. Understanding of symptom assessment in children with cancer is foundational to the work of the Children’s Oncology Group Nursing Discipline, whose research aims are to address knowledge gaps including understanding illness-related distress. This article is the second of a two-part summary of current evidence addressing the assessment of symptoms frequently reported by children and adolescents receiving treatment for cancer. Studies reporting assessment of pain, sadness, and symptom clusters published between January 2008 and May 2018 were included. Forty-three publications addressed pain. Pain was highly prevalent and distressing, varied in its trajectory across a cycle of chemotherapy and across multiple cycles of treatment, and correlated with biomarkers associated with the pain response. Consequences of pain were poorer functional status and emotional health. Twenty publications addressed sadness. Sadness was the most prevalent psychosocial symptom. Its prevalence decreased over the course of treatment and over a cycle of chemotherapy. Persistent sadness was of greater severity and distress. Eight publications addressed symptom clusters. These studies identified both groups of co-occurring symptoms and groups of patients with common symptom profiles. This two-article series provides evidence for the distressing nature of symptoms among children receiving cancer treatment. Efforts to support clinicians in routine symptom assessment are needed. Additional research directed at alleviating symptoms and building resilience among the child experiencing symptoms is needed.

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Section: Resultsmentioning

confidence: 99%

Section: Studies Of Correlation and Causes Of Symptom (N = 6)mentioning

confidence: 99%

Section: Studies Of Experience Of Symptom (N = 4)mentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Symptoms in Children Receiving Treatment for Cancer—Part II: Pain, Sadness, and Symptom Clusters

Linder

Hooke

2019

J Pediatr Oncol Nurs

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“…Additionally, an art therapy intervention in children with cancer increased emotional expression and communication (Aguilar, 2017). Finally, two recent studies used children’s artwork to determine themes of QOL and symptoms instead of completing an instrument (Linder, Bratton, Nguyen, Parker, & Phinney, 2017; Linder, Bratton, Nguyen, Parker, & Wawrzynski, 2018). Children’s drawings were examined using qualitative thematic analysis with contextual inquiry.…”

Section: Discussionmentioning

confidence: 99%

How Does Creative Arts Therapy Reduce Distress for Children With Cancer? A Metasynthesis of Extant Qualitative Literature

Raybin

Barr

Krajicek

et al. 2019

J Pediatr Oncol Nurs

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Introduction: As more children survive cancer, attention must be paid to their quality of life (QOL). Integrative therapies are an ideal modality for nurses to advocate for reducing distress and improving QOL for children with cancer. Creative arts therapy is a type of integrative health that may improve QOL in this population. Therefore, the research question was asked, “For children with cancer, what opportunities exist for creative arts therapy to reduce distress?” Method: A metasynthesis of the extant qualitative research was conducted to answer the research question. Seven qualitative studies were identified, which included 162 participants. New themes were identified through rigorous analyzation by the study team of each study as individual data. Results: Four derived analytic themes emerged through the analysis: (a) connection is established through creative expression, (b) coping is facilitated by creative arts, (c) communication is enabled by creative arts interventions, and (d) continuance (the concept of time) is experienced through creative arts. Examples of each theme with subthemes are delineated, including expressive quotes. Summary: Through this qualitative synthesis of studies with creative arts therapy, evocative opportunities to reduce the distress associated with the disease experience are revealed. Nurses are called now to promote creative arts therapy to improve the symptoms in children with cancer.

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Pain science education for children living with and beyond cancer: Challenges and research agenda

Rheel

Heathcote

Bosch³

et al. 2022

Pediatric Blood & Cancer

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Pain in children living with and beyond cancer is understudied and undertreated. Pain science education (PSE) is a conceptual change strategy facilitating patients’ understanding of the biopsychosocial aspects of pain. Preliminary studies on the adaptation of PSE interventions to adults with and beyond cancer provide a foundation for pediatric research. PSE could help childhood cancer survivors experiencing persistent pain and pain‐related worry after active treatment. PSE may also help children receiving cancer treatment, providing them with a foundation of adaptive pain beliefs and cognitions, and preparing them for procedural and treatment‐related pain. We direct this paper toward pediatric oncology clinicians, policy makers, and researchers working with children living with and beyond cancer. We aim to (a) identify challenges in adapting PSE for children living with and beyond cancer, (b) offer possible solutions, and (c) propose research questions to guide the implementation of PSE for children living with and beyond cancer.

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Symptoms and Self-Management Strategies Identified by Children With Cancer Using Draw-and-Tell Interviews

Cited by 36 publications

References 35 publications

Symptoms in Children Receiving Treatment for Cancer—Part II: Pain, Sadness, and Symptom Clusters

Symptoms in Children Receiving Treatment for Cancer—Part II: Pain, Sadness, and Symptom Clusters

How Does Creative Arts Therapy Reduce Distress for Children With Cancer? A Metasynthesis of Extant Qualitative Literature

Pain science education for children living with and beyond cancer: Challenges and research agenda

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