Synthesis of self-management strategies used by young adults who have undergone hematopoietic stem cell transplantation: A narrative review

Abstract

Hematopoietic stem cell transplantation is frequently used to treat young adults with hematologic cancer. The treatment can cause a range of side effects that require patients to self-manage their symptoms. However, there do not seem to be any studies that review the literature on self-management strategies used by this group. The purpose of this paper is to summarize the self-management strategies used by young adults (18–39 years old) who have received a hematopoietic stem cell transplant for leukemia or lymphoma. A narrative review conducted in the CINAHL, MEDLINE and PsycINFO databases returned 11 papers. An analysis of these data shows that young adults use self-management strategies, including managing their emotions, turning to spiritual beliefs, seeking support from others and changing their behaviours. The results stress the importance of nursing care in supporting these self-management strategies used by young adults who have undergone hematopoietic stem cell transplantation.

Understanding the symptom experience and self-management strategies of adult hematopoietic stem cell transplantation patients during hospitalization: findings from a qualitative longitudinal study

“…During transplantation, the patients placed themselves in the role of the "weak" subconsciously and lost their autonomy. Nurses play a key role in helping patients acquire self-management strategies by providing information about symptom management, helping them manage their emotions, and encouraging them to be actively involved in their care [24]. Studies have demonstrated the feasibility and effectiveness of this self-management modality in HSCT patients during hospitalization [24,42].…”

Educational Technologies Used to Teach Self-Management After Hematopoietic Stem Cell Transplantation: A Scoping Review

“…A randomized clinical trial conducted in the USA also used videos with young adults to encourage self-management and help focus on the elements that he considers most important in his life. Such a strategy can be considered a source of support during HSCT 40 . On the other hand, internet access is still selective, and disfavors poorer social classes and people with little education.…”

Orientações para o autocuidado de pacientes no pós-transplante de células-tronco hematopoéticas: revisão de escopo

“…Akbulut et al (20) Os pacientes devem ser estimulados ao autocuidado e autogestão de sua condição de saúde-doença ainda no internamento hospitalar, para que não tenham dificuldade em seguir as orientações dispensadas. Tratando-se do TCTH, este tratamento exige que pacientes e familiares/cuidadores sejam capazes de colaborar para uma assistência efetiva, seguindo as orientações de cuidado, para que seja possível minimizar os riscos e ter uma melhor qualidade de vida (31) , desde os cuidados de si até o manejo correto de complicações.…”