Systematic review of conceptual and theoretical frameworks used in palliative care and end-of-life care research studies

Tark, Aluem; Estrada, Leah; Baernholdt, Marianne; Buck, Harleah G.

doi:10.1177/02692163221122268

Cited by 3 publications

(1 citation statement)

References 89 publications

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“…In this issue Tark et al 8 discuss their systematic review of conceptual and theoretical frameworks (mid-range in the stratification provided above) in palliative and end-of-life care studies. They define a framework as something which ‘connect[s] separate concepts together that together provide comprehensive meaning to a phenomena’ that can then be used to ‘formulate focused questions, define relevant concepts and identify relationships to the phenomena of interest’ to ‘ serve as supplemental, effective tools for study design’ .…”

Section: Research and Clinical Carementioning

confidence: 99%

‘Theory and practice’: Why does it matter?

Yardley

2022

Palliat Med

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Improving the field of palliative care and extending its impact depends on many multi-faceted issues. We should become more multi-voiced and engage in wider and better multi-agency working, drawing on multiple perspectives and accepting multiple forms of expertise. This is critically important even in the context of long-standing multi-dimensional, multi-disciplinary, multi-professional approaches to our work. Thinking not just about individual variables and problems in the different domains of palliative care, but also how these intersect with and overspill into each other and wider social inequities is essential if we want to meaningfully address contemporary complex problems.To get beyond describing the problems that such complexities bring to finding solutions, we need to ensure that in clinical care, research and policy-making we think about the relationship between 'theory and practice'. This can only be achieved by attending to the implicit and explicit theories, as well as practices, that make up our work.

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Section: Research and Clinical Carementioning

confidence: 99%

‘Theory and practice’: Why does it matter?

Yardley

2022

Palliat Med

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‘I tried to get into their shoes and their culture’. Care worker experiences in cultural end‐of‐life care: Interpretative phenomenological analysis

Lambert,

Gibson,

Bail

2024

Journal of Clinical Nursing

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AimWhat are care workers' lived experiences caring for people of culturally and linguistically diverse backgrounds during end‐of‐life care?DesignInterpretative phenomenological analysisMethodsThe lived experiences of 11 care workers within the Australian Capital Territory and region who have cared for someone of a culturally and linguistically diverse background during end‐of‐life care were captured. Each care worker was interviewed individually and answered a series of semi‐structured open‐ended questions.ResultsUsing interpretative phenomenological analysis, three group experiential themes were derived: (i) navigating cultural shock and death, (ii) the hard work of communication and (iii) searching for deeper connections with client and self. Within these were key elements: Care workers worked hard to embrace cultural diversity, but struggled to meet cultural needs, particularly in relation to the unpredictable timeline of dying. Care workers relied on themselves and their improvisation, but experienced self‐blame for inadequate care and unexpected challenges in communication. Blurred boundaries in relation to therapeutic relationships were apparent, and care workers felt alone with emotional burden, but also found belonging and joy in their work.ConclusionCare workers' experiences are vital to understanding the barriers and challenges in providing culturally appropriate end‐of‐life care. Care workers repeatedly experienced an emotional burden and vicarious trauma throughout their work in this field. Care workers were self‐reliant in all aspects of care including communication and consistently desired education, training, resources and support. There remains inadequate research on care workers and their role within the Australian healthcare context.Implications for the Profession and/or Patient CareCare workers need access to support and resources including professional translators to provide culturally appropriate end‐of‐life care. Workplaces and registered nurses should facilitate training and provide guidance to care workers. A person‐centred approach is required during all client encounters while maintaining appropriate therapeutic relationships including therapeutic use of self and professional boundaries.Reporting MethodCOREQ Checklist.Patient or Public ContributionDuring this study, care workers were interviewed on their experiences caring for people of culturally and linguistically diverse backgrounds during end‐of‐life care. Patients were not directly involved within this study, but their views may have been expressed through the care workers' experience.

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Leveraging Artificial Intelligence/Machine Learning Models to Identify Potential Palliative Care Beneficiaries: A Systematic Review

Bressler,

Song,

Kamalumpundi

et al. 2025

J Gerontol Nurs

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Purpose The current review examined the application of artificial intelligence (AI) and machine learning (ML) techniques in palliative care, specifically focusing on models used to identify potential beneficiaries of palliative services among individuals with chronic and terminal illnesses. Methods A systematic review was conducted across four electronic databases. Five studies met inclusion criteria, all of which applied AI/ML models to predict outcomes relevant to palliative care, such as mortality or the need for services. Results Of 1,504 studies screened, five studies used supervised ML algorithms, whereas one used natural language processing with a deep learning model to identify potential palliative care candidates. The most common AI/ML algorithms included neural network–based models, logistic regression, and tree-based models. Conclusion AI and ML models offer promising avenues for identifying palliative care beneficiaries. As AI continues to evolve, its potential to reshape palliative care through early identification is significant, providing opportunities for timely and targeted care interventions. [ Journal of Gerontological Nursing, 51 (1), 7–14.]

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Systematic review of conceptual and theoretical frameworks used in palliative care and end-of-life care research studies

Cited by 3 publications

References 89 publications

‘Theory and practice’: Why does it matter?

‘Theory and practice’: Why does it matter?

‘I tried to get into their shoes and their culture’. Care worker experiences in cultural end‐of‐life care: Interpretative phenomenological analysis

Leveraging Artificial Intelligence/Machine Learning Models to Identify Potential Palliative Care Beneficiaries: A Systematic Review

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