Systematic review of heath care interventions to improve outcomes for women with disability and their family during pregnancy, birth and postnatal period

Abstract

BackgroundHealth care providers are often unfamiliar with the needs of women with disability. Moreover maternity and postnatal services may not be specifically tailored to the needs of women with disability and their families. We conducted a systematic review to determine the effectiveness of healthcare interventions to improve outcomes for pregnant and postnatal women with disability and for their families.MethodsStudies on pregnant and postnatal women with disability and their families which evaluated the effectiveness of an intervention using a design that met the criteria used by the Cochrane Effective Practice and Organization of Care group were eligible for inclusion in this review. A comprehensive search strategy was carried using eleven electronic databases. No restriction on date or language was applied. Included studies were assessed for quality and their results summarized and tabulated.ResultsOnly three studies fully met the inclusion criteria. All were published after 1990, and conducted as small single-centre randomized controlled trials. The studies were heterogeneous and not comparable. Therefore the main finding of this review was the lack of published research on the effectiveness of healthcare interventions to improve outcomes for pregnant women with disability and their families.ConclusionsMore research is required to evaluate healthcare interventions to improve outcomes for pregnant women with disability and their families.

Experiences of midwifery students, about to give care for women with disability<p>Ebelik öğrencilerinin engelli kadınlara bakım verme deneyimleri

“…Özellikle üreme dönemindeki engelli kadınlar, ergenlik, cinsellik, üreme sağlığı, aile planlaması ve gebelik gibi önemli sağlık konularında bakım hizmetlerine gereksinim duymaktadırlar. Ancak, birçok engelli kadın, çevresel ve fiziksel sınırlılıklar, ayrıcı tutum ve davranışlar, tıbbi bakım ve rehabilitasyona ilişkin hizmet yetersizlikleri, eğitim ve ekonomik kısıtlılıklar gibi çeşitli engellerden dolayı gereksinim duydukları sağlık bakım hizmetlerine ulaşamamaktadır (Piotrowski &Snell, 2007;Malouf et al, 2014;Timur et al, 2006).…”

Das subjektive Erleben chronisch kranker Frauen in der Zeit von Schwangerschaft, Geburt und Wochenbett – eine Analyse qualitativer Studien

“…Damit geraten assoziierte Fragestellungen auch in den Fokus der medizinischen, pflegewissenschaftlichen, soziologi schen und psychologischen Forschung. Der Schwerpunkt von Studien, die sich mit dem Themenspek trum der Reproduktionsgesundheit bei chronischer Erkrankung beschäftigen, liegt auf medizinischen Fragestellungen [14], die subjektive Perspektive der Betroffenen ist hingegen seltener Ge genstand der Forschung [15]. Trotzdem ist in den vornehmlich letzten 15 Jahren auch ein wesentlicher Anstieg solcher Studien zu vermerken, die psychosoziale Aspekte des Themenkomplexes und die Sichtweisen der Betroffenen fokussieren.…”

“…Diese behan deln bspw. Themen aus dem Bereich von Kinderwunsch und Verhütung [16], allgemeine Fragen des Mutter seins mit einer Erkrankung [17][18][19][20] sowie der Auswirkung von Strukturmerk malen der Gesundheitssysteme und der subjektiven Sicht auf Interventionen [14,17,21]. Auch eine Elternschaft bei geistiger Behinderung wird thematisiert [22][23][24].…”

“…Auch eine Elternschaft bei geistiger Behinderung wird thematisiert [22][23][24]. In einigen Studien wer den psychosoziale Aspekte vor dem Hintergrund spezifischer Erkrankungen wie Diabetes [21,25], HIV [14,26,27], oder Epi lepsie untersucht. Bagshaw et al [18] anderem den Effekt, dass eine Schwangerschaft nicht intuitiv gelebt werden oder neue körperliche Erfahrungen vornehmlich mit nahestehenden Menschen kommuniziert werden können.…”

Preventing maternal deaths and overcoming challenges related to disability in pregnant women

“…Disabled pregnant women may have additional problems and specific needs related to their disability. Published research on interventions that may help these women and improve pregnancy outcomes is sparse . A qualitative study by Lisa I. Iezzoni et al.…”