CONTEXT
Homebound adults experience significant symptom burden.
OBJECTIVES
(1) To examine demographic and clinical characteristics associated with high symptom burden in the homebound, and (2) to examine associations between symptom burden and time to hospitalization, nursing home placement, and death.
METHODS
318 patients newly enrolled in the Mount Sinai Visiting Doctors Program, an urban home-based primary care program, were studied. Patient sociodemographic characteristics, symptom burden (measured via the Edmonton Symptom Assessment Scale, ESAS), and incidents of hospitalization, nursing home placement, and death were collected via medical chart review. Multivariate Cox proportional hazards models were used to analyze the effect of high symptom burden on time to first hospitalization, nursing home placement, and death.
RESULTS
43% of the study sample had severe symptom burden (i.e. ESAS score ≥6 on at least one symptom). Patients with severe symptom burden were younger (82.0 vs 85.5 yrs, p<0.01), had more comorbid conditions (3.2 vs 2.5 Charlson score, p<0.01), higher prevalence of depression (43.4% vs 12.0%, p<0.01), lower prevalence of dementia (34.3% vs 60.6%, p<0.01), and utilized fewer hours of home health services (86.2 vs 110.4 hrs/wk, p<0.01). Severe symptom burden was associated with a shorter time to first hospitalization (hazards ratio=1.51, 95% CI 1.06–2.15) in adjusted models, but had no association with time to nursing home placement or death.
CONCLUSION
The homebound with severe symptom burden represent a unique patient cohort who are at increased risk of hospitalization. Tailored symptom management via home-based primary and palliative care programs may prevent unnecessary healthcare utilization in this population.