2012
DOI: 10.1093/neuonc/nor229
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Systematic review of supportive care needs in patients with primary malignant brain tumors

Abstract: In adults, primary malignant brain tumors (PMBT) are rare, but they have a devastating impact and the chances for survival are limited. UK clinical guidance on supportive care for patients with brain and central nervous system tumors was published in 2006 and relied on very limited evidence. The current article reviews literature from 2005 through 2011 on the psychosocial and supportive needs of patients with PMBT and their families or caregivers. Searches were conducted in PubMed, Web of Science, Psychinfo, C… Show more

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Cited by 185 publications
(185 citation statements)
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“…Our results add to growing evidence that a gap between patients' needs and their use of supports or support services exists [2][3][4][11][12][13]. The gap may be partly due to factors relating to the availability of appropriate services, particularly in regional or rural areas [14].…”
Section: Introductionsupporting
confidence: 57%
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“…Our results add to growing evidence that a gap between patients' needs and their use of supports or support services exists [2][3][4][11][12][13]. The gap may be partly due to factors relating to the availability of appropriate services, particularly in regional or rural areas [14].…”
Section: Introductionsupporting
confidence: 57%
“…Participants reported accessing a median of three (range 0-9) different types of support services (Table 1), most commonly physiotherapists, information booklets on diagnosis, information available on the internet, and speech therapists. 2 Use of services collected at follow-up; refers to number of different types of services used…”
Section: Participants and Settingmentioning
confidence: 99%
See 1 more Smart Citation
“…1,4 Patients with brain tumors are quite different from others in the cancer patient population due to the complexity of supportive care needs, the trajectory of disease, the very short life expectancy, and the presence of specific symptoms related to neurological deterioration, and therefore they need a specific palliative approach. 12,16 Caregivers as well have a high level of distress during the course of the disease and a high need for help in dealing with patients' mental habits and difficult behavior, which change mainly in the last stage of the disease.…”
mentioning
confidence: 99%
“…Many of the previously published reviews have primarily focused on describing the needs of neuro-oncology caregivers (e.g., Ford et al 2012;Sterckx et al 2013). In this article, we will instead focus on support for the management of glioma from the family caregivers' perspective following the adapted PMBC model.…”
Section: Family Caregiversmentioning
confidence: 99%