Systematic Review of the Primary Research on Minority Ethnic Groups and End-of-Life Care From the United Kingdom

Evans, Natalie; Meñaca, Arantza; Andrew, Erin; Koffman, Jonathan; Harding, Richard; Higginson, Irene J; Pool, Robert; Gysels, Marjolein

doi:10.1016/j.jpainsymman.2011.04.012

Cited by 66 publications

(77 citation statements)

References 56 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…We conclude that cancer deaths occur most often in hospital, home and hospice in that order for all Scotland; differences in place of death by ethnic group found in England6 7 and internationally8 9 10 are limited in Scotland, in part reflecting very small ethnic populations, but also perhaps implying more equitable access to palliative care services regardless of ethnicity. However, regardless of socioeconomic indicator used, more affluent Scottish White patients were less likely to die in hospital; existing socioeconomic indicators detected no clear trend for the non-White population.…”

Section: Conclusion and Policy Implicationsmentioning

confidence: 72%

“…A systematic review of primary research on minority ethnic groups and end-of-life care in the UK reports that Asian patients with cancer were half as likely to die in a hospice as non-Asian patients while similar proportions of Black and White patients who wanted to die at home did so 6. Compared with the White population in southeast England, death in hospice was significantly less likely for Pakistani, Indian and Bangladeshi patients; death at home was significantly less likely for Black African, Black Caribbean and Chinese patients; while Pakistani, Indian, Bangladeshi, Black African, Black Caribbean and Chinese patients were all significantly more likely than White patients to die in hospital 7…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Policy for home or hospice as the preferred place of death from cancer: Scottish Health and Ethnicity Linkage Study population cohort shows challenges across all ethnic groups in Scotland

Sharpe

Cézard²,

Bansal³

et al. 2013

BMJ Support Palliat Care

View full text Add to dashboard Cite

Cancer deaths occur most often in hospital (52.3%) for all ethnic groups. Regardless of the socioeconomic indicator used, more affluent Scottish White patients were less likely to die in hospital; existing socioeconomic indicators detected no clear trend for the non-White population. Regardless of ethnic group, significant work is required to achieve more people dying at home or the setting of their choice.

show abstract

Section: Conclusion and Policy Implicationsmentioning

confidence: 72%

Section: Introductionmentioning

confidence: 99%

Policy for home or hospice as the preferred place of death from cancer: Scottish Health and Ethnicity Linkage Study population cohort shows challenges across all ethnic groups in Scotland

Sharpe

Cézard²,

Bansal³

et al. 2013

BMJ Support Palliat Care

View full text Add to dashboard Cite

show abstract

“…A detailed description of the systematic search procedure has been published elsewhere. 48 In summary, searches were carried out in 13 electronic databases, 8 journals, reference lists, and grey literature (Table 1).…”

Section: Search Strategymentioning

confidence: 99%

Cultural Competence in End-of-Life Care: Terms, Definitions, and Conceptual Models from the British Literature

Evans

Meñaca

Koffman

et al. 2012

Journal of Palliative Medicine

Self Cite

View full text Add to dashboard Cite

Background: Cultural competency is increasingly recommended in policy and practice to improve end-of-life (EoL) care for minority ethnic groups in multicultural societies. It is imperative to critically analyze this approach to understand its underlying concepts. Aim: Our aim was to appraise cultural competency approaches described in the British literature on EoL care and minority ethnic groups. Design: This is a critical review. Articles on cultural competency were identified from a systematic review of the literature on minority ethnic groups and EoL care in the United Kingdom. Terms, definitions, and conceptual models of cultural competency approaches were identified and situated according to purpose, components, and origin. Content analysis of definitions and models was carried out to identify key components. Results: One-hundred thirteen articles on minority ethnic groups and EoL care in the United Kingdom were identified. Over half (n = 60) contained a term, definition, or model for cultural competency. In all, 17 terms, 17 definitions, and 8 models were identified. The most frequently used term was ''culturally sensitive,'' though ''cultural competence'' was defined more often. Definitions contained one or more of the components: ''cognitive,'' ''implementation,'' or ''outcome.'' Models were categorized for teaching or use in patient assessment. Approaches were predominantly of American origin. Conclusions: The variety of terms, definitions, and models underpinning cultural competency approaches demonstrates a lack of conceptual clarity, and potentially complicates implementation. Further research is needed to compare the use of cultural competency approaches in diverse cultures and settings, and to assess the impact of such approaches on patient outcomes.

show abstract

“…Die Autoren erklä-ren die Ergebnisse in erster Linie als Ausdruck des mangelhaften Zugangs zur HPC und weniger durch die Präferenzen der Patienten. Ein Grund für den unzureichenden Zugang ist in dem fehlenden Wissen um die Möglichkeiten der HPC unter den Migranten zu finden [25], wie die Londoner Forscher um Evans in einem systematischen Review 2012 darlegten.…”

Section: Internationaler Vergleichunclassified

“…in vielen ostasiatischen Ländern, ein Tabu dar. Die Aufklärung über die Angebote der HPC unter den Menschen mit Migrationshintergrund ist ein wesentlicher Schritt, um den Zugang zu erleichtern [25]. Hier können Broschüren in verschiedenen Sprachen und Informationsveranstaltungen von HPC-Anbietern (Hospizstationen und -diensten, SAPV-Teams und Palliativstationen) in den unterschiedlichen Migrationsgemeinden, wie Kulturvereinen oder religiösen Gemeinschaften, zum Einsatz kommen.…”

Section: Gemeinsamkeitenunclassified

Hospiz- und Palliativversorgung von Patienten mit Migrationshintergrund in Deutschland

Henke

Thuss‐Patience

2012

Palliativmedizin

View full text Add to dashboard Cite

Zusammenfassung Einleitung: Die demografische Entwicklung in Deutschland wird zuk?nftig nicht nur die Anzahl der Palliativpatienten insgesamt, sondern auch die der Patienten mit Migrationshintergrund gr??er werden lassen. Dennoch gibt es kaum valide Daten ?ber die Gesundheitsversorgung von Migranten allgemein und speziell im hospizlichen und palliativmedizinischen Kontext. Ziel dieser ?bersichtsarbeit ist es die Datenlage darzustellen, Probleme zu identifizieren und L?sungswege zu skizzieren. Methodik: Systematische Literaturrecherche in den Datenbanken NCBI Pubmed und der Deutschen Nationalbibliothek sowie den Fachzeitschriften ?Zeitschrift f?r Palliativmedizin? und ?Die Hospiz-Zeitschrift?. Zus?tzlich freie Internetrecherche zur Erschlie?ung der Grauen Literatur. Ergebnisse: Die Suche ?ber die Datenbanken ermittelt nur einzelne Ver?ffentlichungen, die sich dem Thema Hospiz- und Palliativversorgung (HPC) von Migranten in Deutschland wissenschaftlich widmen. Die Graue Literatur zeichnet ein etwas umfangreicheres Bild, ist jedoch zumeist regional begrenzt. Diskussion: Die Hauptthemen der Publikationen sind a) der erschwerte Zugang zur HPC, b) Kommunikationsbarrieren und c) die interkulturelle Kompetenz der HPC-Mitarbeiter. Diese Themen spiegeln sich auch in der internationalen Literatur wider. Neben den Problemen einer ad?quaten HPC stehen die Gemeinsamkeiten aller Patienten in Bezug auf Erwartungen und Priorit?ten im Vordergrund. Folgerung: L?sungsans?tze zur Verbesserung der Versorgung k?nnen u.?a. a) die gezielte Aufkl?rung in den Migrantengemeinden ?ber die Versorgungsstruktur, b) der fl?chendeckende Einsatz von Dolmetschern und der Einsatz von Patientenverf?gungen und c) die Ausbildung einer interkulturellen Kompetenz seitens der HPC-Mitarbeiter bieten.

show abstract

Systematic Review of the Primary Research on Minority Ethnic Groups and End-of-Life Care From the United Kingdom

Cited by 66 publications

References 56 publications

Policy for home or hospice as the preferred place of death from cancer: Scottish Health and Ethnicity Linkage Study population cohort shows challenges across all ethnic groups in Scotland

Policy for home or hospice as the preferred place of death from cancer: Scottish Health and Ethnicity Linkage Study population cohort shows challenges across all ethnic groups in Scotland

Cultural Competence in End-of-Life Care: Terms, Definitions, and Conceptual Models from the British Literature

Hospiz- und Palliativversorgung von Patienten mit Migrationshintergrund in Deutschland

Contact Info

Product

Resources

About