Systematically handicapped? Social research in the data protection framework

Erdos, David

doi:10.1080/13600834.2011.578925

Cited by 7 publications

(4 citation statements)

References 9 publications

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“…Reading through the transcripts there is no evidence from the direction of questioning that the main focus of her project was the situation of South Asian overseas-trained doctors and it is even less likely that questions of racism or discriminatory practices were being investigated. It could therefore be argued that our re-use of the Jefferys data is beyond the scope of any consent which those interviewees gave and indeed a strict interpretation of the UK Data Protection Act (DPA), 1998 implies this (Erdos 2011). The archiving of those interviews opens up the original contributions to analyses which were not explicit at the time they were set up.…”

Section: Extending Consentmentioning

confidence: 99%

Revisiting the Archives: A case study from the history of geriatric medicine

Bornat

Raghuram

Henry

2012

Sociological Research Online

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Using two data sets in parallel, generated at different times by different researchers, the case is made for the re-use of archived qualitative data. Two sets of oral history interviews one, dating from 1990-1, with doctors and others who pioneered the development of the geriatric specialty in the early years of the National Health Service, the other, ESRC funded during 2007-9, with South Asian doctors who came to work in the UK and found work in geriatric medicine, are subjected to parallel investigation. The article argues that by considering the two sets of interviews together, each informs the other, leading to reconceptualisation and unexpected links between the data sets, new research questions and finally suggests additional dimensions to issues relating to the ethics of secondary analysis.

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Section: Extending Consentmentioning

confidence: 99%

Revisiting the Archives: A case study from the history of geriatric medicine

Bornat

Raghuram

Henry

2012

Sociological Research Online

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“…The DPA 1998 also permits the processing of personal data by data controllers in circumstances which arguably fall outside the acceptable ethical boundaries for most researchers (but see Erdos 2011aErdos , 2011b. For example, UK data protection law states that data controllers must meet certain conditions for the processing of personal data (Sch.1, s.1 DPA 1998).…”

Section: Ethics Guidelines and Legal Rulesmentioning

confidence: 99%

Data Protection, Freedom of Information and Ethical Review Committees

Charlesworth

2012

Information, Communication & Society

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Effective interpretation of, and compliance with, data protection and freedom of information law across the range of administrative and educational activities undertaken in a UK higher educational institution are tasks which, over a decade after the passage of the legislation, remain fertile ground for disagreement, misunderstanding and poorly conceived institutional policymaking. For social science researchers, the issue is further complicated by the need to simultaneously interpret and implement research ethics guidelines promulgated by diverse external bodies: the Research Councils, subject-specific research associations and other cross-disciplinary special interest groups. The cascade of new information communication technologies (ICTs) available to the social science researcher completes a triangle of policy variables and uncertainties for both researchers and institutional research scrutiny bodies. The aim of this article is threefold: first, to examine some of the issues raised by the application of data protection and freedom of information law to research in the social sciences, with a particular eye to the impact of ICTs; second, to discuss how the interplay between legal rules, ethical guidelines, and institutional regulation is developing; and finally, to suggest some potential ways forward.

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“…Taking regulation as censorship and research as analogous to speech and expression, the right to research involves freedom of speech and expression 11. This right is unjustifiably impinged in social research compared with, say, journalism 12. On these views research ethics governance infringes freedom of speech.…”

Section: Introductionmentioning

confidence: 99%

In defence of governance: ethics review and social research

2017

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There is a growing body of literature that has sought to undermine systems of ethical regulation, and governance more generally, within the social sciences. In this paper, we argue that any general claim for a system of research ethics governance in social research depends on clarifying the nature of the stake that society has in research. We show that certain accounts of this stake-protecting researchers' freedoms; ensuring accountability for resources; safeguarding welfare; and supporting democracy-raise relevant ethical considerations that are reasonably contested. However, these accounts cannot underpin a general claim in favour of, or against, a system of research ethics governance. Instead, we defend governance in social research on the grounds that research, as an institutionalised form of enquiry, is a constitutive element of human flourishing, and that society ought to be concerned with the flourishing of its members. We conclude by considering the governance arrangements that follow from, and are justified by, our arguments.

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Systematically handicapped? Social research in the data protection framework

Cited by 7 publications

References 9 publications

Revisiting the Archives: A case study from the history of geriatric medicine

Revisiting the Archives: A case study from the history of geriatric medicine

Data Protection, Freedom of Information and Ethical Review Committees

In defence of governance: ethics review and social research

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