Systemic sclerosis (scleroderma): An integrated challenge in rehabilitation

Casale, Roberto; Buonocore, Michelangelo; Matucci‐Cerinic, Marco

doi:10.1016/s0003-9993(97)90087-3

Cited by 55 publications

(43 citation statements)

References 38 publications

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“…Poole (13) reviewed the evidence for the efficacy of rehabilitation techniques for musculoskeletal impairments in persons with SSc; Casale et al (14) summarized the current management of skin, joints, tendons, muscles, pain, ergonomics, and working interventions in SSc; and Alantar et al (15) reviewed preventive and curative treatments for oral and dental involvement in patients with SSc. However, these reviews did not use a systematic approach to identify and synthesize evidence, did not assess the quality of included studies, and had a narrow scope of nonpharmacologic interventions and outcome measures to be included in the review.…”

Section: Introductionmentioning

confidence: 99%

Effectiveness of Nonpharmacologic Interventions in Systemic Sclerosis: A Systematic Review

Willems

Vriezekolk

Schouffoer

et al. 2015

Arthritis Care & Research

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Objective. To systematically and comprehensively document the effectiveness of nonpharmacologic interventions on physical functioning and psychological well-being in patients with systemic sclerosis (SSc). Methods. Multiple electronic databases were searched for studies on the effectiveness of nonpharmacologic interventions in SSc. Randomized clinical trials (RCTs), controlled clinical trials (CCTs), and observational designs (ODs) with ‡10 participants were included. Two reviewers independently assessed methodologic quality using the Downs and Black checklist. Results. Twenty-three studies (9 RCTs, 4 CCTs, and 10 ODs) were included. Studies assessing comparable interventions were grouped, resulting in data for 16 different interventions. The total number of patients included per study ranged from 10 to 53. Seventeen different outcome domains were assessed, with hand function, limitations in activities, and quality of life being assessed most frequently. Three studies, all RCTs, were rated as high quality. These RCTs reported that 1) a multifaceted oral health intervention improves mouth hygiene, and additional orofacial exercises did not improve mouth opening, 2) a multidisciplinary team-care program improves limitations in activities, mouth opening, and hand grip strength, and 3) manual lymph drainage improves hand function, limitations in activities, and quality of life. Conclusion. The body of knowledge regarding nonpharmacologic care in SSc is very limited due to the wide variety in studied interventions and outcomes in the relatively uncommon but highly disabling disease. To structure and focus future research, an international consensus should be established to prioritize primary targets for nonpharmacologic treatment and the content of interventions and to agree on a core set of outcome measures.

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Section: Introductionmentioning

confidence: 99%

Effectiveness of Nonpharmacologic Interventions in Systemic Sclerosis: A Systematic Review

Willems

Vriezekolk

Schouffoer

et al. 2015

Arthritis Care & Research

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show abstract

“…Systemic Sclerosis (SSc) is characterised by induration of the skin and internal organs, by joint modifications and muscle impairment [1][2][3][4][5]. Skin fibrosis leads to tissue retraction and atrophy, and consequently to disability and reduction of patients quality of life (QoL).…”

Section: Introductionmentioning

confidence: 99%

“…Though most authors agree that specific SSc rehabilitation program can prevent and reduce disabilities deriving from skin and joint involvement [2], only few studies on this matter are available [6][7][8][9]. The involvement of face and oral tissues is a typical feature of SSc patients, that causes important aesthetic changes and impairment of the self-image [10].…”

Section: Introductionmentioning

confidence: 99%

The rehabilitation of facial involvement in systemic sclerosis: efficacy of the combination of connective tissue massage, Kabat’s technique and kinesitherapy: a randomized controlled trial

Maddali-Bongi

Landi²,

Galluccio

et al. 2010

Rheumatol Int

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“…All the changes described above cause varying degrees of difficulty in performing daily activities [9]. Approximately 90% of patients with systemic sclerosis report the loss of hand mobility [10]. An assessment of hand function can be performed with the HAMIS test (Hand Mobility in Scleroderma Test).…”

Section: Streszczeniementioning

confidence: 99%