Tarm- og flerorgantransplantasjon ved kronisk tarmsvikt

Bentdal, Øystein; Foss, Aksel; Østensen, Anniken B.; Lundin, Knut E.A.; Farstad, Inger Nina; Line, Pål–Dag

doi:10.4045/tidsskr.11.0817

Cited by 5 publications

(2 citation statements)

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“…An initiative to launch a national registry for short bowel syndrome in Sweden was described already in 2004 [23]. In Norway, the Oslo University Hospital serves as a national referral centre for Norwegian IF patients who are candidates for ITx [24].…”

Section: Discussionmentioning

confidence: 99%

Fragmented management of long-term parenteral support for adult intestinal failure in Finland

Pohju

Pakarinen

Sipponen

2019

Scandinavian Journal of Gastroenterology

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Objectives: Parenteral support (PS) is the first-line therapy for intestinal failure (IF). Optimal patient outcomes require experienced multidisciplinary teams adhering to structured protocols. As practices to provide long-term PS for adult IF patients in Finland are unknown, this cross-sectional nationwide study aimed to evaluate current management of PS for adult IF across the country. Materials and Methods:An internet-based survey was emailed to all Finnish hospitals and hospitalat-home services with the potential to provide PS for adult IF. The survey included 20 items addressing provision of long-term PS for adult IF patients (aged ≥18 years). Data were analysed using descriptive statistics.Results: Overall, 52 (47%) of the 111 identified units responded. Of responding units, 38 (73%) had at some point provided long-term (≥120 days) PS for adult IF, and 23 (44%) had done so during the preceding year. Only three units currently managed ≥3 adult patients. Most (65%) of the respondents worked in a hospital and were either physicians (38%) or dietitians (39%). Only 65% of respondents reported that their unit had an assigned physician responsible for PS provision, and 28% reported that a team was responsible for long-term PS. Only 26% of respondents reported having a written protocol to guide PS management.Conclusions: Health care providers with very limited experience and a fragmented approach manage most Finnish adult IF patients. Evidence-based protocols and multidisciplinary teams are scarce. The care for adult IF patients on long-term PS needs to be improved in Finland.

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