Teaching about death and dying—A national mixed‐methods survey of palliative care education provision in Swedish undergraduate nursing programmes

Hagelin, Carina Lundh; Melin‐Johansson, Christina; Ek, Kristina; Henoch, Ingela; Österlind, Jane; Browall, Maria

doi:10.1111/scs.13061

Cited by 13 publications

(8 citation statements)

References 28 publications

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“…The development of PPCNI provides evidentiary support to the continued global trend in nursing education of making person-centered care explicit in the curriculum (Hagelin et al, 2016 ; Hagelin et al, 2022 ; Österlind & Henoch, 2021 ). Further, PPCNI serves as an essential tool as palliative care becomes one of the essential spheres of care for nurses (American Association of Colleges of Nursing, 2021 ) and is gaining importance in the contemporary post-COVID era.…”

Section: Discussionmentioning

confidence: 96%

Development and psychometric properties of the Person-centered Palliative Care Nursing Instrument (PPCNI) in the Philippines

Soriano,

Calong Calong,

Martinez

et al. 2023

Belitung Nurs J

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Background: Over the years, a few tools and instruments have been developed to assist in the assessment within a palliative care setting. However, many of these tools and instruments do not reflect a person-centered palliative care model. Objective: This study aims to develop a Person-centered Palliative Care Nursing Instrument (PPCNI) in the Philippines. Methods: An exhaustive search of the literature was conducted to develop a pool of items for the instrument. The validity of the instrument was evaluated using the content validity index (CVI), while the factor structure was assessed using exploratory factor analysis (EFA) using maximum likelihood estimation with Promax rotation. Also, the internal reliability was evaluated using Cronbach’s alpha. Results: EFA yielded three factors: 1) Caring as maintaining person’s dignity (13 items), 2) caring as empowerment of person’s autonomy (14 items), and 3) caring as understanding person’s momentary concerns (10 items). Whereas the internal consistency reliability of these subscales appeared excellent (i.e., 0.95, 0.96, and 0.93, respectively), the Cronbach’s alpha for the overall scale was 0.98. The item-total correlation coefficients were >0.30 for all items, ranging from 0.310 to 0.726. Conclusion: Findings support a three-factor, 37-item PPCNI that can be used in clinical practice to ensure that nurses provide palliative care based on patient needs and preferences.

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Section: Discussionmentioning

confidence: 96%

Development and psychometric properties of the Person-centered Palliative Care Nursing Instrument (PPCNI) in the Philippines

Soriano,

Calong Calong,

Martinez

et al. 2023

Belitung Nurs J

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“…Also, there remains limited research concerning the development, effects, or experiences with education and/or training in PPC at any level of the educational system in the Nordic countries. Furthermore, at times being a minor subgroup of general palliative care, there is a risk of children as patients and children as relatives are grouped together which might challenge the identification of actual PPC involvement [ 51 ]. Often, recommended education in palliative care has three levels, from the basic competencies in the palliative approach to general, and finally, more specialized palliative care [ 52 ].…”

Section: Discussionmentioning

confidence: 99%

Children with palliative care needs – the landscape of the nordic countries

Winger,

Holmen,

Birgisdóttir

et al. 2024

BMC Palliat Care

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Background To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries’ (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research. Methods The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC. Results In total, the Nordic child population comprises around six million children (0–19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done. Conclusion This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. Despite the varying structural premises for PPC, research endeavors aiming to provide evidence in this field seem increasing, timely and relevant for the Nordic countries, as well as the international context.

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“…[ 45 46 ] For example, a study used lecturing to provide palliative care education (issues related to death) for Swedish nurses at the undergraduate level. [ 47 ] Hence, the application of these teaching strategies seems appropriate based on previous research.…”

Section: Discussionmentioning

confidence: 99%

Development of a Heart Failure Palliative Care Educational Program for Nurses: A Multi-Method Approach

Bagheri,

Irajpour,

Hashemi

2024

Iranian Journal of Nursing and Midwifery Research

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Background: Comprehensive palliative care for patients with heart failure can be developed by educating cardiac nurses. The current study aimed to design a heart failure palliative care educational program for nurses. Materials and Methods: This study was carried out using the multi-method approach based on two out of four steps of Uys educational program development at Dr. Chamran Hospital, Isfahan, in 2020–2021. In step 1, educational needs were collected through literature review, interviews with 15 patients and 10 nurses, examination of patients’ documents and medical records, and observation. Then, in step 2, the importance and necessity of teaching the proposed topics and the teaching and evaluation method of the items were assessed through two rounds of delphi technique (15 expert panel members). Eventually, the educational program was finalized. Results: In step 1, the educational needs of nurses were identified in 6 general fields and 26 general learning topics. In step 2, educational needs [specialized knowledge (55% necessity and 55% importance) and social support (33% necessity and 33% importance)], teaching methods (role-playing, experiential learning, and journal club), and evaluation method (the information analysis method) were removed due to a lack of consensus (11%). Finally, the main parts of the program, including the program mission and vision, general learning topics, general goals, objectives, teaching strategies, and evaluation strategies, were compiled. Conclusions: This program provides nurses with up-to-date information on various aspects of the physical, psychological, social, spiritual, and educational needs of heart failure patients and ensures the provision of better services to them.

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Teaching about death and dying—A national mixed‐methods survey of palliative care education provision in Swedish undergraduate nursing programmes

Abstract: This is an open access article under the terms of the Creat ive Commo ns Attri butio n-NonCo mmerc ial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.

Cited by 13 publications

References 28 publications

Development and psychometric properties of the Person-centered Palliative Care Nursing Instrument (PPCNI) in the Philippines

Development and psychometric properties of the Person-centered Palliative Care Nursing Instrument (PPCNI) in the Philippines

Children with palliative care needs – the landscape of the nordic countries

Development of a Heart Failure Palliative Care Educational Program for Nurses: A Multi-Method Approach

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