Technological Caregiving: A Qualitative Perspective

Scott, Linda D.

doi:10.1177/108482230101300308

Cited by 18 publications

(68 citation statements)

References 19 publications

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“…4 Many caregivers of patients with heart failure have felt rewarded by being able to provide care for a family member. 7,40 Nevertheless, factors associated with the positive aspects of caregiving in the context of heart failure have remained unclear until now. In our …”

Section: Factors Associated With the Positive Impact Of Caregiving Anmentioning

confidence: 99%

Caregiving for Patients With Heart Failure: Impact on Patients’ Families

Hwang

Fleischmann

Howie-Esquivel

et al. 2011

American Journal of Critical Care

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Background Factors that affect the impact of caregiving on patients’ family members who provide care to patients with heart failure have not been adequately addressed. In addition, social support and positive aspects of caregiving have received little attention. Objective To identify factors associated with the impact of caregiving. Methods Self-report data were collected from 76 dyads of patients with heart failure and their family caregivers. Clinical data were obtained from medical records. Results A sense of less family support for caregiving was associated with a higher New York Heart Association class of heart failure, being a nonspousal caregiver, lower caregivers’ perceived control, and less social support. More disruption of caregivers’ schedules was associated with higher class of heart failure, more care tasks, and less social support. Greater impact of caregiving on caregivers’ health was related to more recent patient hospitalization, lower caregivers’ perceived control, and less social support. Nonwhite caregivers and caregivers whose family member had fewer emergency department visits felt more positive about caregiving than did other caregivers. Social support had a moderating effect on the relationship between patients’ comorbid conditions and positive aspects of caregiving. Conclusions Caregiving has both positive and negative effects on family caregivers of patients with heart failure. The findings suggest the need for interventions to increase caregivers’ sense of control and social support. Family caregivers may need additional support immediately after patient hospitalizations to minimize the negative impact of caregiving.

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Section: Factors Associated With the Positive Impact Of Caregiving Anmentioning

confidence: 99%

Caregiving for Patients With Heart Failure: Impact on Patients’ Families

Hwang

Fleischmann

Howie-Esquivel

et al. 2011

American Journal of Critical Care

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“…It has been well documented that caregivers are often poorly trained on required role and skills, are doubtful in patient management [10] and for these reasons they often give up the project [11]. In addition, the lack of official educational guidelines determines that educational training frequently is carried out in an imperfect and uncoordinated way [12].…”

Section: Introductionmentioning

confidence: 99%

Educational discharge training forms to patients with home mechanical ventilation

2011

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Among chronic respiratory patients discharged at home, patients under mechanical ventilation (MV) are the more critical subgroup. The mandatory multidisciplinary care and assistance for them is particularly difficult and complex and pre-discharge educational training with specific items is currently recommended, but it does not exist a scientific consensus of instruments, training form, sheets to be used for this. Aims of this article are identify main educational pre-discharge needs and to create dedicated training forms. The study was conducted in two respiratory units trough three stages: (1) identification of needs and forms preparation by a primary team work (PTW), (2) training forms discussion by a questionnaire submitted to an Expert Staff (ES), (3) training forms final approval. Stage 1: Needs of patient were synthesized by PTW in 51 items resumed in six training forms: Bronchoaspiration, Tracheostomy tube management, Respiratory Problems, Use of Cough Assist Machine, Oxygen saturation measurement and Ventilator Use. Stage 2: ES was composed by 47 health operators, the average score of questionnaire answers is 8.46 ± 0.22 (best 10, worse 0). Twenty-five requests of forms changes were suggested. Stage 3: 21 items (45%) were changed. Our study proposes 51 items with 6 discharging educational forms for make an easy and uniform educational training for patient using MV at home. Future studies should be addressed to validate use of these forms on a larger patient population.

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“…However, individuals who assumed caregiving roles perceived little preparation or forewarning for the role, experienced physical and mental challenges, and frequently made personal sacrifices to fulfill caregiving responsibilities (Scott & Arslanian-Engoren, 2002). In other technologically dependent populations, caregivers have reported frequent change, uncertainty, and unpredictability (O'Brien, 2001;Scott, 2001), as well as insufficient preparation for the role (Scott, 2000(Scott, , 2001Smith et al, 1998) and strained interpersonal relationships (O'Brien, 2001).…”

mentioning

confidence: 99%

“…Furthermore, feelings of worry, anxiety, and fear concerning the care recipient's condition and ability to learn the intricate aspects of providing technological care have been identified as contributing factors to caregiver strain (Ferrario, Zotti, Zaccaria, & Donner, 2001;Scott, 2000Scott, , 2001Smith et al, 1998). Despite perceptions that caring for technologically dependent care recipients is financially burdensome, socially confining, and psychologically distressing (Scott, 2001), family caregivers were still able to describe positive aspects of the role (Scott, 2001;Sevick et al, 1994), deriving personal gratification from caregiving (Scott & Arslanian-Engoren, 2002).…”

mentioning

confidence: 99%

“…Despite perceptions that caring for technologically dependent care recipients is financially burdensome, socially confining, and psychologically distressing (Scott, 2001), family caregivers were still able to describe positive aspects of the role (Scott, 2001;Sevick et al, 1994), deriving personal gratification from caregiving (Scott & Arslanian-Engoren, 2002).…”

mentioning

confidence: 99%

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