Technology‐assisted self‐testing and management of oral anticoagulation therapy: a qualitative patient‐focused study

Kuljis, Jasna; Money, Arthur G.; Perry, Mark; Barnett, Julie

doi:10.1111/scs.12374

Cited by 13 publications

(30 citation statements)

References 78 publications

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“…A set of 56 records identified from electronic database searches was selected for inclusion, and 3 additional studies [80][81][82] were identified by checking references included in a previously published guideline on the same topic. 83 Overall, we included 44 quantitative studies, [55][56][57][58][59][60][61][62][63][64][65][80][81][82] 14 qualitative studies, [66][67][68][69][70][71][72][73][74][75][76][77][78][79] and 1 study with both types of evidence 54 (Figure 1). Fourteen of the included studies reported patients' values or utilities, [24][25][26][27][28][29][30][31][32][33][34][35][36][37] 34 nonutility studies use...…”

Section: Searchesmentioning

confidence: 99%

“…Fourteen of the included studies reported patients' values or utilities, [24][25][26][27][28][29][30][31][32][33][34][35][36][37] 34 nonutility studies used quantitative methods, 24,32,35,[80][81][82] qualitative methods. 54,[66][67][68][69][70][71][72][73][74][75][76][77][78][79] Supplemental Table lists the studies that did not fulfill the inclusion criteria with the reasons for exclusion at full-text screening.…”

Section: Searchesmentioning

confidence: 99%

“…The 15 included qualitative studies involved individuals (570 participants) who had, or were at risk for having, VTE. 54,[66][67][68][69][70][71][72][73][74][75][76][77][78][79] Supplemental Table 5 summarizes the individual study characteristics, and supplemental Table 6 provides a descriptive summary of the study designs, qualitative methodologies, and study locations. Supplemental Table 7 reports a narrative assessment of the major strengths and weaknesses of included studies, based on the CASP Qualitative Checklist tool.…”

Section: ⊕⊕⊕○mentioning

confidence: 99%

“…Diagnosis of VTE and treatment benefits brought feelings of relief, empowerment, and control 54,70,71,74,75,78 that increased patient motivation and self-discipline to initiate and pursue the treatment while acknowledging its inconveniences. VTE treatment provided a solution to live without fear and restrictions 68,70 ; patients described treatment as going "back to normal" 54,67,[76][77][78] by learning to self-manage their condition and reprioritize their life goals and habits. 70,71,74,77 Patients expressed preferences for heparin injections, because these relieved them from the burdens of constant international normalized ratio monitoring.…”

Section: Disease and Treatment Benefits And Burdenmentioning

confidence: 99%

“…VTE treatment provided a solution to live without fear and restrictions 68,70 ; patients described treatment as going "back to normal" 54,67,[76][77][78] by learning to self-manage their condition and reprioritize their life goals and habits. 70,71,74,77 Patients expressed preferences for heparin injections, because these relieved them from the burdens of constant international normalized ratio monitoring. 54,75,76 For pregnant women, the diagnosis also provided reasons for past miscarriages and the treatment hopes for a healthy current pregnancy.…”

Section: Disease and Treatment Benefits And Burdenmentioning

confidence: 99%

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Patient values and preferences regarding VTE disease: a systematic review to inform American Society of Hematology guidelines

Etxeandia-Ikobaltzeta

Zhang

Brundisini

et al. 2020

Blood Advances

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Values and preferences relate to the importance that patients place on health outcomes (eg, bleeding, having a deep venous thrombosis) and are essential when weighing benefits and harms in guideline recommendations. To inform the American Society of Hematology guidelines for management of venous thromboembolism (VTE) disease, we conducted a systematic review of patients’ values and preferences related to VTE. We searched Medline, Embase, Cochrane Central Register of Controlled Trials, PsycINFO, and the Cumulative Index to Nursing and Allied Health Literature from inception to April of 2018 (PROSPERO-CRD42018094003). We included quantitative and qualitative studies. We followed Grading of Recommendations Assessment, Development and Evaluation (GRADE) guidance for rating the certainty and presenting findings for quantitative research about the relative importance of health outcomes and a grounded theory approach for qualitative thematic synthesis. We identified 14 quantitative studies (2465 participants) describing the relative importance of VTE-related health states in a widely diverse population of patients, showing overall small to important impact on patients’ lives (certainty of the evidence from low to moderate). Additionally, evidence from 34 quantitative studies (6424 participants) and 15 qualitative studies (570 participants) revealed that patients put higher value on VTE risk reduction than on the potential harms of the treatment (certainty of evidence from low to moderate). Studies also suggested a clear preference for oral medication over subcutaneous medication (moderate certainty). The observed variability in health state values may be a result of differences in the approaches used to elicit them and the diversity of included populations rather than true variability in values. This finding highlights the necessity to explore the variability induced by different approaches to ascertain values.

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Section: Searchesmentioning

confidence: 99%

Section: Searchesmentioning

confidence: 99%

Section: ⊕⊕⊕○mentioning

confidence: 99%

Section: Disease and Treatment Benefits And Burdenmentioning

confidence: 99%

Section: Disease and Treatment Benefits And Burdenmentioning

confidence: 99%

See 3 more Smart Citations

Patient values and preferences regarding VTE disease: a systematic review to inform American Society of Hematology guidelines

Etxeandia-Ikobaltzeta

Zhang

Brundisini

et al. 2020

Blood Advances

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Medical Treatment for Rheumatic Heart Disease: A Narrative Review

Rentta

Bennett²,

Leung³

et al. 2022

Heart, Lung and Circulation

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Delineating and clarifying the concept of self-care monitoring: a concept analysis

Johnsson

Strandberg

Tuvesson

et al. 2023

International Journal of Qualitative Studies on Health and Well

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Aim To delineate and clarify the meaning of the concept of self-care monitoring from a patient perspective. Methods A systematic search was performed in the databases ASSIA, CINAHL, PsycInfo, and PubMed (January 2016–September 2021). A selection of 46 peer-reviewed articles was included in the study and analysed using Rodgers’ Evolutionary Method for Concept Analysis. Results The following four attributes were identified: Tracking symptoms, signs, and actions, Paying attention, Being confident, and Needing routines, creating a descriptive definition: “Self-care monitoring is an activity that means a person has to pay attention and be confident and needs routines for tracking symptoms, signs, and action.” The antecedents of the concept were shown to be Increased knowledge, Wish for independence, and Commitment. The concepts’ consequences were identified as Increased interaction, Perceived burden, and Enhanced well-being. Conclusions This concept analysis provides extensive understanding of self-care monitoring from a patient perspective. It was shown that the concept occurs when a person practices self-care monitoring at home either with or without devices. A descriptive definition was constructed and presented with exemplars to encourage practice of the concept in various healthcare settings and could be of relevance to people with chronic illnesses or other long-term conditions.

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Technology‐assisted self‐testing and management of oral anticoagulation therapy: a qualitative patient‐focused study

Abstract: More personalised/real-time communication, pragmatic and collaborative patient-clinician partnerships and recognition of expert patient knowledge and expertise are needed if increased levels of engagement with self-testing and management service provision is to be realised.

Cited by 13 publications

References 78 publications

Patient values and preferences regarding VTE disease: a systematic review to inform American Society of Hematology guidelines

Patient values and preferences regarding VTE disease: a systematic review to inform American Society of Hematology guidelines

Medical Treatment for Rheumatic Heart Disease: A Narrative Review

Delineating and clarifying the concept of self-care monitoring: a concept analysis

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