Technology-dependent children: the meaning of home care – a descriptive study

Lima, Muriel Fernanda de; Paulo, Luis Fernando de; Higarashi, Ieda Harumi

doi:10.17665/1676-4285.20155191

Cited by 5 publications

(7 citation statements)

References 9 publications

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“…Eis os discursos: Considera-se que o enfermeiro, em seu campo de atuação, deve ser capaz de desenvolver atividades educativas de acordo com as necessidades de cada individuo e de grupos sociais. Assim, no cuidado à criança, a educação em saúde é primordial, considerando que todas as práticas do cuidado infantil devem envolver o familiar neste processo 8,17 .…”

Section: Resultsunclassified

“…Os pais experimentam uma gama de emoções, precisando incorporar saberes e práticas desconhecidas em seu cotidiano, e enfrentam cuidados desafiadores para o atendimento das atividades diárias de seu filho. O ambiente domiciliar passa por adaptações com presença de novos equipamentos para a sobrevida dessa criança, que se somam aos brinquedos e pertences, cujo valor é inestimável para o seu desenvolvimento 8,23 .…”

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Modelos de cuidado às famílias de crianças dependentes de tecnologia em contexto hospitalar [Models of care for families of technology-dependent children in a hospital context]

2017

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RESUMOObjetivo: descrever os modelos de cuidado às famílias de crianças dependentes de tecnologias presentes em um contexto hospitalar, a partir de depoimentos de enfermeiros. Método: estudo qualitativo e descritivo, realizado em uma instituição federal no Rio de Janeiro, com 08 enfermeiros. A coleta de dados foi realizada nos meses de setembro a outubro de 2011, mediante entrevistas e os dados tratados através da análise de conteúdo. A pesquisa foi aprovada pelo Comitê de Ética em Pesquisa, CAAE nº 0050.0.008.000-11. Resultados: os enfermeiros centram-se no cuidado baseado na tecnologia dura e ainda focado no modelo biológico. Entretanto, consideram que os familiares são importantes para a manutenção do equilíbrio emocional da criança. Conclusão: os resultados mostraram que é preciso compreender a criança como cidadã e integrar a família como uma extensão do cuidado a partir da escuta atenta às suas necessidades. Palavras-chave: Adolescente; transplante; oncologia; enfermagem pediátrica.ABSTRACT Objective: to describe models of care for families of technology-dependent children in a hospital context, on the basis of nurses' statements. Method: qualitative, descriptive study at a federal institution in Rio de Janeiro, with eight nurses. Data were collected by interview from September to October 2011 and processed by content analysis. The study was approved by the research ethics committee (CAAE 0050.0.008.000-11). Results: nurses focus on care based on hard technology and still centered on the biological model. However, they regard family members as important to maintaining the children's emotional balance. Conclusion: the results showed children must be understood as citizens and to integrate the family as an extension of care by listening attentively to their needs. Keywords: Adolescent; transplantation; oncology; pediatric nursing. RESUMENObjetivo: describir los modelos de cuidado a las familias de niños dependientes tecnologías presentes en un contexto hospitalario, a partir de declaraciones de enfermeros. Método: estudio cualitativo y descriptivo, realizado en una institución federal en Río de Janeiro, con 08 enfermeras. La recolección de datos se realizó en los meses de septiembre a octubre de 2011, por medio de entrevistas y los datos fueron tratados a través del análisis de contenido. La investigación fue aprobada por el Comité Ético de Investigación, CAAE nº 0050.0.008.000-11. Resultados: los enfermeros se centran en el cuidado basado en la tecnología dura y focalizado en el modelo biológico. Sin embargo, consideran que los familiares son importantes para el mantenimiento del equilibrio emocional del niño. Conclusión: los resultados mostraron que es necesario comprender al niño como ciudadano e integrar a la familia como una extensión del cuidado a partir de la escucha atenta a sus necesidades.

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Section: Resultsunclassified

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Modelos de cuidado às famílias de crianças dependentes de tecnologia em contexto hospitalar [Models of care for families of technology-dependent children in a hospital context]

2017

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“…CSHCN, with their care demands and chronic conditions, have to rely on tertiary health care services, recurrent and prolonged hospitalizations, difficult access to primary care and comprehensive care in the Unified Health System (SUS). Despite of the prolonged hospitalizations, family members of CSHCN reported lack of knowledge and misinformation regarding the transition from hospital to home, a moment marked by fear and doubt (3) .…”

Section: Introductionmentioning

confidence: 99%

“…Studies show that the current models for hospital discharge preparation are fragmented and place a high burden on family caregivers (4) , who claim that they were not prepared by health professionals to meet the care demands of children at home (3,5) .…”

Section: Introductionmentioning

confidence: 99%

Educational demands of family members of children with special health care needs in the transition from hospital to home

et al. 2020

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Objectives: to analyze the educational demands of family members of children with special health care needs in the transition from hospital to home Methods: qualitative research conducted between February and June 2018, using the handbook on creativity and sensitivity dynamics, from the sensitive creative method; the participants were nine family caregivers of children admitted to a public hospital in Rio de Janeiro; the data were subjected to French discourse analysis Results: the educational demands were clinical, centered on the categories complex and continuous care, technological care, modified habits, medication, development and mixed care, and social, related to the supplies and rights of children Final Considerations: the social educational demand has emerged as a new demand to be incorporated in the care of these children. The transition from hospital to home should be progressive and have the nurse as its coordinator, with the objective of providing participatory, safe, quality care, articulated within a social network

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“…The progressive increase in chronic diseases has generated discussions on health management scenarios for the new health needs can be met by services [1].…”

Section: Introductionmentioning

confidence: 99%

Validated instruments for children and adolescents with chronic disease: an integrative review

Santos

et al. 2016

Int Arch Med

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Objective: Conduct a survey of scientific articles that aim the validation of instruments for children and adolescents with chronic disease. Results: Were found 16 articles that met the inclusion criteria. Method: Discussion:The construction of the summary of selected studies shows that the creation of an instrument in that theme is connected to a specific disease such as diabetes, sickle cell anemia and asthma.

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Technology-dependent children: the meaning of home care – a descriptive study

Cited by 5 publications

References 9 publications

Modelos de cuidado às famílias de crianças dependentes de tecnologia em contexto hospitalar [Models of care for families of technology-dependent children in a hospital context]

Modelos de cuidado às famílias de crianças dependentes de tecnologia em contexto hospitalar [Models of care for families of technology-dependent children in a hospital context]

Educational demands of family members of children with special health care needs in the transition from hospital to home

Validated instruments for children and adolescents with chronic disease: an integrative review

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