Telehealth for people with spinal cord injury: a narrative review

Irgens, Ingebjørg; Rekand, Tiina; Arora, Mohit; Liu, N; Marshall, Ruth; Biering‐Sørensen, Fin; Alexander, Marcalee

doi:10.1038/s41393-017-0033-3

Cited by 59 publications

(43 citation statements)

References 39 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…These results also demonstrate the widespread and rapid implementation of telemedicine around the world, and a relaxation of privacy rules, at least in the United States, to accomplish this. Telemedicine for people with SCI/D has previously been reviewed [9] and has many advantages including saving travel time, limiting the costs of medical transportation, serving as an environmentally sound form of health care, and limiting the spread of infection to a potentially vulnerable population. Case reports have also demonstrated the utility of telemedicine to monitor and adjust home therapy regimens to maintain and improve functional potential [10].…”

Section: Discussionmentioning

confidence: 99%

COVID-19 and spinal cord injury and disease: results of an international survey

Stillman

Capron

Alexander³

et al. 2020

Spinal Cord Ser Cases

View full text Add to dashboard Cite

Study design An online survey.Objectives To query the international spinal cord medicine community's engagement with and response to the novel coronavirus (COVID-19) pandemic and to assess pandemic-specific information needs and patient concerns. Setting An international collaboration of authors and participants. Methods Two near-identical surveys (one English and one Spanish language) were distributed via the internet. Responses from those questions shared between the surveys were pooled then analyzed; four questions' responses (those not shared) were analyzed separately.Results A total of 783 responses were submitted from six continents. Few participants (5.8%) had tested their outpatients with SCI/D for COVID-19; only 4.4% reported having a patient with SCI/D with the virus. Of respondents who worked at an inpatient facility, 53.3% reported that only individuals with symptoms were being screened and 29.9% said that no screening was occurring. Participants relayed several concerns offered by their patients with SCI/D, including vulnerability to infection (76.9%) and fragility of caretaker supply (42%), and those living in countries with guaranteed health care were more likely to report widespread availability of COVID-19 testing than were those living in countries without universal care, χ 2 (3, N = 625) = 46.259, p < 0.001. Conclusion There is substantial variability in the rehabilitation medicine community in COVID-19 screening practices and availability of screening kits. People living with SCI/D are expressing legitimate and real concerns about their vulnerability to COVID-19. More and rapid work is needed to address these concerns and to standardize best-practice protocols throughout the rehabilitation community. 1234567890();,:1234567890();,:

show abstract

Section: Discussionmentioning

confidence: 99%

COVID-19 and spinal cord injury and disease: results of an international survey

Stillman

Capron

Alexander³

et al. 2020

Spinal Cord Ser Cases

View full text Add to dashboard Cite

show abstract

“…For health maintenance and follow-up care, it is recommended that each health care teams visit persons with SCI in their community similar to the programme of Paraplegia Safari (a follow-up programme/home visit programme for persons with SCI) in India [16]. Telespinalcordinjury is also another potential means for follow ups [17], especially for patients who may lack family support or may reside in distant or rural areas with transportation and financial issues.…”

Section: Lack Of Follow-up Post Dischargementioning

confidence: 99%

Lack of adequate care post spinal cord injury - a case report

Gupta

2019

Spinal Cord Ser Cases

View full text Add to dashboard Cite

Introduction Health needs of individuals with spinal cord injury (SCI) are unmet in developing countries. Quality of life of these individuals is not on par with global standards. The decline in quality of life can be attributed to lack of a specialised rehabilitation centres, lack of expertise in local hospitals and lack of access to dedicated SCI wards/centres in India. The present case report depicts many such challenges in India. Case presentation As part of an online focus group, A 21-year-old male was identified who sustained SCI in motor vehicle. His care was inappropriate at the accident site. He was not taught basic skills such as bed mobility, transfers, and wheel-chair mobility and was not educated about long-term complications before discharged to home. Lack of training made him functionally dependent on others for his basic needs. There were few job opportunities for him in his state. He strongly emphasises the need to create an awareness regarding SCI among the general public in India. Discussion This case report depicts many challenges faced by a person with paraplegia in India. These include mishandling at the accident site, lack of adequate care post injury and lack of follow-up post discharge. In addition, lack of knowledge of SCI among the general public and lack of education regarding SCI for the patient and his care givers post injury are reported.

show abstract

“…Voiding diary is a simple and primary tool used to understand urinary tract function and assess urinary symptoms, with a view to providing doctors with sufficient data for an appropriate clinical diagnosis. However, diary record with pen and paper is time-consuming and it may cause frequent omissions and increase the patients' burden [18][19][20][21]. Furthermore, SCI patients need social support to overcome depression and neurosis derived from fear and self-imposed pressure after a sudden injury [22,23].…”

Section: Introductionmentioning

confidence: 99%

Development of an Assistant System of Clean Intermittent Catheterization for Neurogenic Bladder Dysfunction Patients

et al. 2019

View full text Add to dashboard Cite

Clean intermittent catheterization (CIC) is one of the methods currently used to prevent overdistention of the bladder in patients with neurogenic bladder dysfunction (NBD). It is also helpful in preventing urinary tract infection and retaining the function of the bladder. Voiding diary and social behavior are necessary for the patients to maintain their physical and mental health, nevertheless there are currently no good assistant systems to help them achieve these goals. In this study, we propose a CIC assistant system with the functions of recording and tracking the voided volume and accessible lavatory. The aim of this study is to assess the effects from the 12 patients who joined the proposed system. Information collected from participants included their demographics, past medicals, injury characteristics, current and past bladder managements, and any NBD related complications. The results indicate that most patients felt relieved that they could know the voided volume and track their history easily. Moreover, the accessible lavatory function of the proposed system could reduce time consumption by 43.1% in finding the suitable lavatory, thus the desire and willingness of patients to travel increased from 25% to 75% after using the system. The proposed system could help doctors with clinical diagnoses, and help patients to understand more about the history of their catheterization volume and time period. This study provided essential information and design for future investigation.

show abstract

Telehealth for people with spinal cord injury: a narrative review

Cited by 59 publications

References 39 publications

COVID-19 and spinal cord injury and disease: results of an international survey

COVID-19 and spinal cord injury and disease: results of an international survey

Lack of adequate care post spinal cord injury - a case report

Development of an Assistant System of Clean Intermittent Catheterization for Neurogenic Bladder Dysfunction Patients

Contact Info

Product

Resources

About