Telemedically augmented palliative care

Nemecek, Romina; Huber, Patrick; Schur, Sophie; Masel, Eva Katharina; Baumann, Lukas; Höeller, Christoph; Watzke, Herbert; Binder, Michael

doi:10.1007/s00508-019-01562-3

Cited by 17 publications

(39 citation statements)

References 22 publications

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“…There is emerging evidence on the utility of telemedicine in the provision of palliative care; however, adequate preparation and technical expertise are needed to effectively implement this in the acute care setting. [30][31][32][33][34][35][36] Palliative care and hospice teams will need to be proactive in identifying, implementing and training on the most suitable remote platform to deliver services to patients and families.…”

Section: Reviewmentioning

confidence: 99%

Integration of palliative care into COVID-19 pandemic planning

Fadul

Elsayem

Bruera

2020

BMJ Support Palliat Care

119

107

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The COVID-19 pandemic is expected to surpass the healthcare system’s capacity to provide intensive care to all patients who deteriorate as a result of the disease. This poses a unique challenge to healthcare teams of rationing care during pandemic when resources are scarce. Healthcare providers will need to acquire new skills in care decision making and effective symptom control for patients who do not receive life-saving measures. In this review, we describe some of the important palliative care considerations that need to be incorporated into COVID-19 pandemic planning. The main aspects to be considered include decision algorithms for rationing care, training on effective symptoms management, alternative delivery methods of palliative care services such as telemedicine and finally death and bereavement support for surviving family members who are likely to be isolated from their loved one at the moment of death.

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Section: Reviewmentioning

confidence: 99%

Integration of palliative care into COVID-19 pandemic planning

Fadul

Elsayem

Bruera

2020

BMJ Support Palliat Care

119

107

View full text Add to dashboard Cite

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“…The provided PC services ameliorate burdens, such as taxing symptoms and exhaustion, fear of infections after chemotherapy, practical arrangements, travel expenses, and long waiting times in hospitals, that are associated with travel-to-hospital consultations [ 47 , 48 , 50 , 52 , 69 , 71 , 75 , 80 ]. In contrast, some patients expressed that they did not feel that the use of telehealth prevented unnecessary hospital admissions [ 60 ]. One study indicated no significant differences in the number of hospital admissions between patients receiving teleconsultations with HCPs and the control group [ 53 ].…”

Section: Resultsmentioning

confidence: 99%

“…Patients expressed that substantial advantages of the technology were that it was both easy to learn how to use and to use [ 45 , 46 , 58 , 60 , 61 , 66 , 67 , 69 , 71 , 72 , 74 , 77 , 81 , 82 ] and that the technology was user-friendly, useful, and beneficial for their care [ 46 , 47 , 54 , 63 , 64 , 66 , 67 , 74 , 82 ]. Patients described that using the technology at home promoted feelings of satisfaction and comfort [ 47 , 48 , 53 , 57 , 58 , 60 , 63 , 68 , 69 , 71 , 72 , 74 , 75 , 79 ]. They did not experience the technology as onerous, burdensome, or time consuming [ 44 , 58 , 69 , 72 , 81 , 82 ], and they would recommend telehealth use to others [ 60 , 63 , 67 , 69 , 74 , 75 , 81 , 82 ].…”

Section: Resultsmentioning

confidence: 99%

“…Patients described that using the technology at home promoted feelings of satisfaction and comfort [ 47 , 48 , 53 , 57 , 58 , 60 , 63 , 68 , 69 , 71 , 72 , 74 , 75 , 79 ]. They did not experience the technology as onerous, burdensome, or time consuming [ 44 , 58 , 69 , 72 , 81 , 82 ], and they would recommend telehealth use to others [ 60 , 63 , 67 , 69 , 74 , 75 , 81 , 82 ]. Nonetheless, some patients also reported that telehealth was a challenge because communication became more intense and intrusive than telephone consultations [ 45 , 76 ].…”

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Advantages and Challenges of Using Telehealth for Home-Based Palliative Care: Systematic Mixed Studies Review

Steindal¹,

Nes²,

Godskesen³

et al. 2023

J Med Internet Res

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Background Owing to the increasing number of people with palliative care needs and the current shortage of health care professionals (HCPs), providing quality palliative care has become challenging. Telehealth could enable patients to spend as much time as possible at home. However, no previous systematic mixed studies reviews have synthesized evidence on patients’ experiences of the advantages and challenges of telehealth in home-based palliative care. Objective In this systematic mixed studies review, we aimed to critically appraise and synthesize the findings from studies that investigated patients’ use of telehealth in home-based palliative care, focusing on the advantages and challenges experienced by patients. Methods This is a systematic mixed studies review with a convergent design. The review is reported according to the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) statement. A systematic search was performed in the following databases: Allied and Complementary Medicine Database, CINAHL, Cochrane Central Register of Controlled Trials, Embase, Latin American and Caribbean Health Sciences Literature, MEDLINE, PsycInfo, and Web of Science. The inclusion criteria were as follows: studies using quantitative, qualitative, or mixed methods; studies that investigated the experience of using telehealth with follow-up from HCPs of home-based patients aged ≥18; studies published between January 2010 and June 2022; and studies published in Norwegian, Danish, Swedish, English, Portuguese, or Spanish in peer-reviewed journals. Five pairs of authors independently assessed eligibility of the studies, appraised methodological quality, and extracted data. The data were synthesized using thematic synthesis. Results This systematic mixed studies review included 41 reports from 40 studies. The following 4 analytical themes were synthesized: potential for a support system and self-governance at home; visibility supports interpersonal relationships and a joint understanding of care needs; optimized information flow facilitates tailoring of remote caring practices; and technology, relationships, and complexity as perpetual obstacles in telehealth. Conclusions The advantages of telehealth were that patients experience a potential support system that could enable them to remain at home, and the visual features of telehealth enable them to build interpersonal relationships with HCPs over time. Self-reporting provides HCPs with information about symptoms and circumstances that facilitates tailoring care to specific patients. Challenges with the use of telehealth were related to barriers to technology use and inflexible reporting of complex and fluctuating symptoms and circumstances using electronic questionnaires. Few studies have included the self-reporting of existential or spiritual concerns, emotions, and well-being. Some patients perceived telehealth as intrusive and a threat to their privacy at home. To optimize the advantages and minimize the challenges with the use of telehealth in home-based palliative care, future research should include users in the design and development process.

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“…La plataforma de Globalmed® consiste en una alternativa modular para la cual se pueden adaptar módulos de telemonitorización básicos como A pesar de los usos actuales en los cuidados paliativos, creemos que la tecnología está infrautilizada y tiene un gran potencial para mejorar la calidad de los cuidados paliativos y los resultados de los pacientes y las familias (30).…”

Section: Otras Tecnologías De Monitoreo Ambulatoriounclassified

Telemonitoreo de pacientes con enfermedades avanzadas no curables: Revisión narrativa y experiencia inicial en el programa de visita domiciliar del Centro Nacional de Control del Dolor y Cuidados Paliativos durante la emergencia nacional relacionada con C

Carvajal-Valdy

Ferrandino-Carballo

Maykall-Mora

et al. 2021

Rev Peru Investig Salud

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La telemedicina describe la entrega electrónica de datos médicos para diagnóstico, tratamiento y educación médica al paciente en el hogar mediante el uso de tecnologías de información y comunicación. En pocas semanas, la situación mundial actual relacionada con COVID-19 ha generado presiones sin precedentes en el sistema de salud y ha transformado la práctica de cuidados paliativos. El programa de visita domiciliar del Centro Nacional de Control del Dolor y Cuidados Paliativos adoptó la modalidad de teleconsulta en marzo 2020 y se estableció un plan piloto de evaluación de la tecnología de telemonitoreo. Durante el periodo inicial de evaluación comprendido entre marzo y julio 2020, un médico especialista en Medicina Paliativa revisó los signos vitales dentro de las 24 horas posteriores a la transmisión y realizó una teleconsulta al paciente permitiendo analizar los datos recibidos. En total 14 pacientes fueron monitorizados durante un promedio de 10.2 ± 3.7 días para un total de 143 días de monitoreo multiparamétrico y 3432 horas monitoreo. Los resultados preliminares de este estudio sugieren un efecto positivo en el control de síntomas, la satisfacción del paciente, la educación del personal y la comunicación entre los miembros del equipo.

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Telemedically augmented palliative care

Cited by 17 publications

References 22 publications

Integration of palliative care into COVID-19 pandemic planning

Integration of palliative care into COVID-19 pandemic planning

Advantages and Challenges of Using Telehealth for Home-Based Palliative Care: Systematic Mixed Studies Review

Telemonitoreo de pacientes con enfermedades avanzadas no curables: Revisión narrativa y experiencia inicial en el programa de visita domiciliar del Centro Nacional de Control del Dolor y Cuidados Paliativos durante la emergencia nacional relacionada con C

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