Telemedicine for the Care of Patients with Idiopathic Inflammatory Myopathies: Experience, Insights and Future Directions from the International Myositis Assessment and Clinical Studies Telemedicine Scientific Interest Group

Day, Jessica; Kushlaf, Hani; Tarvin, Stacey; Cavagna, Lorenzo; Codullo, Veronica; Shinjo, Samuel Katsuyuki; Lyu, Xia; Knitza, Johannes; Hajji, Raouf; Blier, Peter R.; Tseng, Chih Wei; Appenzeller, Simone; Rider, Lisa G.; Christopher-Stine, Lisa; Gupta, Latika; ,

doi:10.1007/s11926-024-01163-8

Curr Rheumatol Rep

2024

DOI: 10.1007/s11926-024-01163-8

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Telemedicine for the Care of Patients with Idiopathic Inflammatory Myopathies: Experience, Insights and Future Directions from the International Myositis Assessment and Clinical Studies Telemedicine Scientific Interest Group

Jessica Day,

Hani Kushlaf,

Stacey Tarvin

et al.

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Ringing in the Patient Voice: Measuring Patients’ Lived Experience of Dermatomyositis Symptoms

Ardalan,

Rider

2024

J Rheumatol

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The development and validation of measures of disease activity, damage, and health-related quality of life (HRQOL) over the past 30 years has been fundamental in advancing research and care for patients with adult and juvenile idiopathic inflammatory myopathies (IIMs).1These efforts have resulted in the development of core set measures of disease activity and damage for myositis, and the American College of Rheumatology (ACR)/European Alliance of Associations for Rheumatology (EULAR)–endorsed Myositis Response Criteria, which have been successfully implemented in IIM clinical trials and which recently facilitated the US Food and Drug Administration licensure of intravenous immunoglobulin for dermatomyositis (DM).2-5

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Ringing in the Patient Voice: Measuring Patients’ Lived Experience of Dermatomyositis Symptoms

Ardalan,

Rider

2024

J Rheumatol

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Telemedicine for the Care of Patients with Idiopathic Inflammatory Myopathies: Experience, Insights and Future Directions from the International Myositis Assessment and Clinical Studies Telemedicine Scientific Interest Group

Cited by 1 publication

References 16 publications

Ringing in the Patient Voice: Measuring Patients’ Lived Experience of Dermatomyositis Symptoms

Ringing in the Patient Voice: Measuring Patients’ Lived Experience of Dermatomyositis Symptoms

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