Telemedicine using an iPad in the spinal cord injury population: a utility and patient satisfaction study

Sechrist, Samantha; Lavoie, Sarah; Khong, Cria-May; Dirlikov, Benjamin; Shem, Kazuko

doi:10.1038/s41394-018-0105-4

Cited by 32 publications

(29 citation statements)

References 30 publications

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“…In terms of technology usability and acceptance, the results reflected those of the PHOENIX study, which demonstrated iPads and iTunes U to be acceptable for peer-led education and self-management support among users with SCI [ 20 ]. A related study exploring the use of iPads to facilitate periodic web-based medical consultations between users with SCI and health professionals revealed similarly high user acceptance of tablets and an overall preference by participants for the web-based, rather than in-person or telephone-based meetings [ 19 ]. Our results echoed the same in the context of an intervention spanning multiple sessions.…”

Section: Discussionmentioning

confidence: 99%

“…Telephone-based self-management programs for people with SCI have proven to be safe and acceptable and to improve the participants’ level of activation and awareness [ 13 - 16 ]. Examples of internet-based health interventions include a nurse-led telehealth intervention that focused on newly discharged people with SCI [ 17 ], a tele-exercise intervention led by remote exercise coaches [ 18 ], and programs to support consultations with specialists [ 19 ] or peer educators [ 20 ] via iPads. However, internet-based self-management support for SCI, although associated with promising usability and feasibility results [ 19 - 21 ], are a relatively new concept and require further evaluation.…”

Section: Introductionmentioning

confidence: 99%

“…Examples of internet-based health interventions include a nurse-led telehealth intervention that focused on newly discharged people with SCI [ 17 ], a tele-exercise intervention led by remote exercise coaches [ 18 ], and programs to support consultations with specialists [ 19 ] or peer educators [ 20 ] via iPads. However, internet-based self-management support for SCI, although associated with promising usability and feasibility results [ 19 - 21 ], are a relatively new concept and require further evaluation. The internet may indeed have special affordances for people with SCI; in randomized trials comparing internet and phone-based nursing interventions following inpatient rehabilitation, for example, internet-based programming is associated with the least number of postdischarge hospital visits [ 17 ].…”

Section: Introductionmentioning

confidence: 99%

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Web-Based Health Coaching for Spinal Cord Injury: Results From a Mixed Methods Feasibility Evaluation

Allin

Shepherd

Thorson

et al. 2020

JMIR Rehabil Assist Technol

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Background Individuals with spinal cord injury (SCI) are at high risk of experiencing secondary conditions like pressure injuries. Self-management programs may reduce the risk of complications, but traditional programs have proven to be insufficiently tailored to the needs of people with SCI. To overcome barriers to self-management support, a web-based, self-management program was developed for Canadians with SCI called SCI & U. Objective This study aims to evaluate the feasibility and potential impact of the SCI & U program in the context of a mixed methods pilot study. Methods The study followed an explanatory, sequential mixed methods design. Participants (N=11) were Canadians with SCI who had been living in the community for more than 1 year. Each took part in a self-paced, six-session self-management program guided by a trained peer health coach. During sessions, participants could discuss a health topic with their coach from a predefined list (eg, skin or bowel management). Quantitative data were gathered before and after program participation to assess program feasibility and impact. Feasibility measures included attrition rates, frequency of topics selected, and recorded goals, whereas impact measures included measures of self-efficacy (University of Washington Self-Efficacy Scale [UW-SES]), mood (Personal Health Questionnaire Depression Scale [PHQ-8]), secondary conditions (Spinal Cord Injury Secondary Conditions Scale [SCI-SCS]), and resilience (Spinal Cord Injury Quality of Life Resilience Scale [SCI-QOL-R]). Qualitative measures were based on postintervention interviews; these were designed to confirm and expand on quantitative Results Of the 11 participants, 10 completed pre- and postassessments, and 6 coaching sessions. Sessions lasted between 31 and 81 min (average 55, SD 13), and the duration of the program ranged from 35 to 88 days (average 56, SD 23). Diet and exercise were selected as topics 40% (20/50 sessions with topics) of the time, whereas topics such as mental health, bladder management, pain, and bowel management were chosen less frequently. Results gathered before and after the pilot study demonstrated improvements with moderate effect sizes on the UW-SES and the electronic health literacy scale (ie, Hedges g>0.5). Effect sizes for measures of resilience (SCI-QOL-R), depression (PHQ-8), and secondary conditions (SCI-SCS) were small (ie, Hedges g>0.3). Qualitative results confirmed a common focus on diet and exercise, and defined coaches as sources of accountability, information, reassurance and affirmation, and emotional and technical support. Conclusions Results demonstrated that a web-based self-management program is feasible and acceptable by Canadians with SCI. Results also indicated a web-based, peer-led self-management program may impact resilience, self-efficacy, mood, and secondary complications. Finally, results illuminated the role of the coach in facilitating behavior change. Future work seeks to validate results in the context of a randomized controlled trial.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Web-Based Health Coaching for Spinal Cord Injury: Results From a Mixed Methods Feasibility Evaluation

Allin

Shepherd

Thorson

et al. 2020

JMIR Rehabil Assist Technol

View full text Add to dashboard Cite

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“…However, people with spinal cord injuries have difficulty in accessing medical services due to the inconvenience of movement due to physical impairment and the economic burden on hospital expenses [10,11]. Therefore, recently, a service for managing health by using a remote system has been provided [12,13]. Telerehabilitation using information and communication technology refers to providing comprehensive medical services to patients who have difficulty in moving to medical facilities or who wish to rehabilitate at home [14,15].…”

Section: Introductionmentioning

confidence: 99%

ICT-Based Health Care Services for People with Spinal Cord Injury: A Pilot Study

Wanho

Kim

et al. 2019

How AI Impacts Urban Living and Public Health

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People with Spinal cord injuries are having difficulty in health care, and complications cause physical, social and economic losses. In severe cases, complications lead to death and require systematic management. In this study, ICT-based health care service was developed to manage the respiratory function and urinary function of the people with spinal cord injuries and to help adapt to daily living activities and social participation through home visit occupational therapy. A pilot study was conducted with five clients with spinal cord injuries to investigate the effectiveness of the intervention services. As a result, it was confirmed that satisfaction, importance, and difficulty were appropriate. In the future, RCT clinical studies will be needed to diversify intervention services and expand the number of patients.

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“…Mobile technology (ie, smartphones and tablets) are becoming ubiquitous and may afford greater accessibility and convenience for the SCI population to participate in LTPA interventions [41,42]. Advancements and access to mobile technology may also extend the reach and effectiveness of telephone-delivered interventions.…”

Section: Introductionmentioning

confidence: 99%

Smartphone-Delivered Peer Physical Activity Counseling Program for Individuals With Spinal Cord Injury: Protocol for Development and Pilot Evaluation

Best¹,

Routhier²,

Sweet³

et al. 2019

JMIR Res Protoc

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Background Leisure-time physical activity (LTPA) is a critical component of a healthy lifestyle for individuals with spinal cord injury (SCI). However, most individuals are not sufficiently active to accrue health benefits. The Active Living Lifestyles program for individuals with SCI who use manual wheelchairs (ALLWheel) targets important psychological factors that are associated with LTPA uptake and adherence while overcoming some barriers associated with participation restrictions. Objective The goal of the paper is to describe the protocol for the development and evaluation of the ALLWheel program for individuals with SCI who use manual wheelchairs. Methods The first three stages of the Medical Research Council framework for developing and evaluating complex interventions (ie, preclinical, modeling, exploratory) are described. The preclinical phase will consist of scoping and systematic reviews and review of theory. The intervention will be modeled by expert opinions and consensus through focus groups and Delphi surveys with individuals with SCI, clinicians, and community partners. Finally, the feasibility and potential influence of the ALLWheel program on LTPA and psychological outcomes will be evaluated. Results This project is funded by the Craig H Neilsen Foundation, the Fonds de Recherche du Québec–Santé, and the Canadian Disability Participation Project and is currently underway. Conclusions Using peer trainers and mobile phone technology may help to cultivate autonomy-supportive environments that also enhance self-efficacy. Following a framework for developing and evaluating a novel intervention that includes input from stakeholders at all stages will ensure the final product (ie, a replicable intervention) is desirable to knowledge users and ready for evaluation in a randomized controlled trial. If effective, the ALLWheel program has the potential to reach a large number of individuals with SCI to promote LTPA uptake and adherence. International Registered Report Identifier (IRRID) DERR1-10.2196/10798

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Telemedicine using an iPad in the spinal cord injury population: a utility and patient satisfaction study

Abstract: Craig H. Neilsen Foundation.

Cited by 32 publications

References 30 publications

Web-Based Health Coaching for Spinal Cord Injury: Results From a Mixed Methods Feasibility Evaluation

Web-Based Health Coaching for Spinal Cord Injury: Results From a Mixed Methods Feasibility Evaluation

ICT-Based Health Care Services for People with Spinal Cord Injury: A Pilot Study

Smartphone-Delivered Peer Physical Activity Counseling Program for Individuals With Spinal Cord Injury: Protocol for Development and Pilot Evaluation

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