Telerehabilitation for Improving Adaptive Skills of Children and Young Adults with Multiple Disabilities: a Systematic Review

Caprì, Tindara; Nucita, Andrea; Iannizzotto, Giancarlo; Stasolla, Fabrizio; Romano, Alberto; Semino, Martina; Giannatiempo, Samantha; Canegallo, Virginia; Fabio, Rosa Angela

doi:10.1007/s40489-020-00214-x

Cited by 49 publications

(54 citation statements)

References 36 publications

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“…This may have limited the ability of therapists, who did not undergo training for use of telerehabilitation, to use the technology optimally. Indeed, existing evidence suggests that assessment in telerehabilitation may be feasible and valid for neurological [34] and orthopaedic [35] conditions (including in children), supporting the idea that training and technology may be key to improving these aspects of telerehabilitation usage [36]. Our results further showed that with younger children, the ability to communicate feedback, grade levels of difficulty and provide guidance for parents was diminished.…”

Section: Discussionsupporting

confidence: 75%

Transition to Multidisciplinary Pediatric Telerehabilitation during the COVID-19 Pandemic: Strategy Development and Implementation

Krasovsky

Silberg

Barak

et al. 2021

IJERPH

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Telerehabilitation offers a unique solution for continuity of care in pediatric rehabilitation under physical distancing. The major aims of this study were to: (1) describe the development of telerehabilitation usage guidelines in a large hospital in Israel, and to (2) evaluate the implementation of telerehabilitation from the perspectives of healthcare practitioners and families. An expert focus group developed guidelines which were disseminated to multidisciplinary clinicians. Following sessions, clinicians filled The Clinician Evaluation of Telerehabilitation Service (CETS), a custom-built feedback questionnaire on telerehabilitation, and parents completed the client version of the Therapist Presence Inventory (TPI-C) and were asked to rate the effectiveness of sessions on an ordinal scale. Four goals of telerehabilitation sessions were defined: (1) maintenance of therapeutic alliance, (2) provision of parental coping strategies, (3) assistance in maintaining routine, and (4) preventing functional deterioration. Principal Components Analysis was used for the CETS questionnaire and the relationships of CETS and TPI-C with child’s age and the type of session were evaluated using Spearman’s correlations and the Kruskal–Wallis H test. In total, sixty-seven telerehabilitation sessions, with clients aged 11.31 ± 4.8 years, were documented by clinicians. Three components (child, session, parent) explained 71.3% of the variance in CETS. According to therapists, their ability to maintain the therapeutic alliance was generally higher than their ability to achieve other predefined goals (p < 0.01). With younger children, the ability to provide feedback to the child, grade treatment difficulty and provide coping strategies to the parents were diminished. Families perceived the therapist as being highly present in therapy regardless of treatment type. These results demonstrate a potential framework for the dissemination of telerehabilitation services in pediatric rehabilitation.

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Section: Discussionsupporting

confidence: 75%

Transition to Multidisciplinary Pediatric Telerehabilitation during the COVID-19 Pandemic: Strategy Development and Implementation

Krasovsky

Silberg

Barak

et al. 2021

IJERPH

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“…As RTT is a rare condition, individuals are geographically dispersed but telehealth methods are being used increasingly across distances for the delivery of rehabilitation services such as for individuals diagnosed with cerebral palsy and traumatic brain injury 37 and across a range of domains to improve adaptive skills in those with multiple disabilities. 38 To build on previous research and inform practice, we designed this ActivRett clinical trial protocol.…”

Section: Introductionmentioning

confidence: 99%

Implementing telehealth support to increase physical activity in girls and women with Rett syndrome—ActivRett: protocol for a waitlist randomised controlled trial

et al. 2020

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IntroductionIndividuals with Rett syndrome (RTT) experience impaired gross motor skills, limiting their capacity to engage in physical activities and participation in activities. There is limited evidence of the effectiveness of supported physical activity interventions. This study aims to evaluate the effects of a telehealth-delivered physical activity programme on physical activity, sedentary behaviour and quality of life in RTT.Methods and analysisThis is a multicentre study, conducted in Australia, Denmark and Israel. It is a randomised waitlist-controlled trial comparing an intervention to support physical activity with usual care. Participants are children and adults with RTT, recruited from the Australian Rett Syndrome Database, the Danish Center for Rett Syndrome and the Rett Syndrome Association of Israel. The intervention duration is 12 weeks, including fortnightly telephone contact to plan, monitor and develop individual activity programmes. Outcomes are measured at baseline, at 13 weeks and then at 25 weeks. The primary outcomes are sedentary behaviour assessed with an activPAL accelerometer and the number of daily steps measured with a StepWatch Activity Monitor. Secondary outcomes include sleep, behaviour and quality of life. Caregiver experiences will be assessed immediately after the intervention using a satisfaction questionnaire. Group differences for each outcome will be evaluated with analysis of covariance, adjusting for baseline values on an intention-to-treat basis.Ethics and disseminationEthics approval has been obtained in Western Australia from the Child and Adolescent Health Services (RGS3371), in Denmark from the Capital Region Ethics Committee (H-19040514) and in Israel from the Ariel University Institutional Review Board (AU-HEA-ML-20190331). Manuscripts on the development of the intervention from pilot work and the results of the intervention will be submitted to peer-reviewed journals. Results will be presented at conferences and consumer forums. We will develop an online resource documenting the physical activity programme and available supporting evidence.Trial registration numberNCT04167059; Pre-results.

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“…Telerehabilitation includes robotic assistance therapy [37], portable devices [38,39] and immersive systems [40], among others. The different techniques and devices used in the interventions have a high degree of acceptance and satisfaction among users, as shown in the review presented in [41].…”

Section: Related Workmentioning

confidence: 99%

A Virtual Reality-Based Cognitive Telerehabilitation System for Use in the COVID-19 Pandemic

et al. 2021

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The COVID-19 pandemic has changed people’s lives and the way in which certain services are provided. Such changes are not uncommon in healthcare services and they will have to adapt to the new situation by increasing the number of services remotely offered. Limited mobility has resulted in interruption of treatments that traditionally have been administered through face-to-face modalities, especially those related to cognitive impairments. In this telerehabilitation approach, both the patient and the specialist physician enter a virtual reality (VR) environment where they can interact in real time through avatars. A spaced retrieval (SR) task is implemented in the system to analyze cognitive performance. An experimental group (n = 20) performed the SR task in telerehabilitation mode, whereas a control group (n = 20) performed the SR task through a traditional face-to-face mode. The obtained results showed that it is possible to carry out cognitive rehabilitation processes through a telerehabilitation modality in conjunction with VR. The cost-effectiveness of the system will also contribute to making healthcare systems more efficient, overcoming both geographical and temporal limitations.

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Telerehabilitation for Improving Adaptive Skills of Children and Young Adults with Multiple Disabilities: a Systematic Review

Cited by 49 publications

References 36 publications

Transition to Multidisciplinary Pediatric Telerehabilitation during the COVID-19 Pandemic: Strategy Development and Implementation

Transition to Multidisciplinary Pediatric Telerehabilitation during the COVID-19 Pandemic: Strategy Development and Implementation

Implementing telehealth support to increase physical activity in girls and women with Rett syndrome—ActivRett: protocol for a waitlist randomised controlled trial

A Virtual Reality-Based Cognitive Telerehabilitation System for Use in the COVID-19 Pandemic

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