Telerehabilitation for persons with multiple sclerosis

Khan, Fary; Amatya, Bhasker; Kesselring, Jürg

doi:10.1002/14651858.cd010508

Cited by 27 publications

(32 citation statements)

References 36 publications

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“…More recently, cooled wearable pads and garments have been successfully used as a method of combating increased heating in MS patients during exercise and maintaining motor function. 46 Renom et al, 2014, 48 Pepping et al, 2013, 47 Langdon, 2011, 45 DasGupta et al, 2003, 43 Buzaid et al, 2013, 42 Khan et al, 2015, 44 Svestkova et al, 2010, 49 National Clinical Guideline Centre, 2014. 41 …”

Section: Body Temperaturementioning

confidence: 99%

Neurorehabilitation in Multiple Sclerosis – Resilience in Practice

Kesselring¹

2017

European Neurological Review

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In recent years, enormous strides have been made in increasing the range and efficacy of disease-modifying drugs available for the treatment of multiple sclerosis (MS) in its early and remitting stages, and more continue to emerge. Another equally important concept of successful treatment of MS is neurorehabilitation, which must be pursued alongside these medications. Key factors that contribute to the impact of neurorehabilitation include resilience and neuroplasticity. In the former, components such as nutrition, self-belief and physical activity provide a stronger response to the disease and improved responses to treatment. Neuroplasticity is the capacity of the brain to establish new neuronal networks after lesion damage has occurred and distant brain regions assume control of lost functions. In MS, it is vital that each patient is treated by a coordinated multidisciplinary team. This enables all aspects of the disease including problems with mobility, gait, bladder/bowel disturbances, fatigue and depression to be effectively treated. It is also important that the treating team adopts current best practice and provides internationally agreed standards of care. A further vital aspect of MS management is patient engagement, in which individuals are fully involved and are encouraged to strive and put effort into meeting treatment goals. In this approach, healthcare providers become motivators and patients need less intervention and consume fewer resources. Numerous interventions that promote neurorehabilitation are available, though evidence to support their use is limited by a lack of data from large randomised controlled trials. Combining interventions that promote neurorehabilitation with newer, more effective treatments creates a promising potential to substantially improve the outlook for patients at all stages of MS.

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Section: Body Temperaturementioning

confidence: 99%

Neurorehabilitation in Multiple Sclerosis – Resilience in Practice

Kesselring¹

2017

European Neurological Review

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“…It facilitates an increase in physical function and independence by improving physical parameters such as muscular power, endurance and reducing fatigue [6][7][8]. Telerehabilitation is de ined as "the use of information and communication technologies as a medium for the provision of rehabilitation services to sites or patients that are at a distance from the provider" [9]. It is considered a form of rehabilitation.…”

Section: Telerehabilitationmentioning

confidence: 99%

“…Telerehabilitation offers an excellent platform in which to provide necessary physiotherapy interventions to patients who have limited access to transport or inhabit very remote areas [10]. Much of the current literature explores its use in stroke patients (e.g., [11]), however the rehabilitation method is now being implemented across a broader range of patient groups, including MS [9,12]. To the best of the author's knowledge, there is no available literature denoting the value of social support in telerehabilitation interventions.…”

Section: Telerehabilitationmentioning

confidence: 99%

Determining the use and value of social support in Telerehabiliation Interventions for individuals with Multiple Sclerosis: A narrative synthesis review

Soundy¹

2017

J Nov Physiother Rehabil

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Background: Telerehabilitation has been identifi ed as an effective treatment that promotes exercise rehabilitation in individuals with multiple sclerosis (MS). Social support is recognised as a core element of such interventions. However further research is needed to consider the role and value of different social support domains. Aim:Review available literature to assess and synthesise the use and value of social support within telerehabilitation interventions for individuals with MS.Method: A narrative synthesis was conducted. A systematic search of included articles was conducted. Electronic databases were searched from inception to January 2017. Other search methods were undertaken. Evaluation and synthesis of included articles utilised risk of bias assessment and a 4-stage synthesis process.Main Results: A total of fourteen studies, involving 718 participants (505 female, 213 male; aggregated mean age 47.6 years) with MS, were included. Esteem support was the most frequently reported method of social support, followed by informational, emotional and tangible. It would appear social support can be benefi cial in assisting participants to adhere to treatment interventions. Visual feedback may be directly benefi cial to improve impaired balance in individuals with MS. A model for future interventions is provided. Conclusions:Social support appears to increase the adherence of participants with MS to telerehabilitation interventions. Unique fi ndings provide an indication for the direction and content of future interventions. Further research is necessary to ascertain the optimal types and frequencies of social support delivery and its effect on health outcomes for participants with MS.

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“…Lo studio non ha dimostrato differenze sul test dei 25 piedi ma un miglioramento della MSIS. Una recente revisione della Cochrane [12] si è posta i seguenti interrogativi: la tele-riabilitazione raggiunge migliori obiettivi rispetto alla tradizionale neuro-riabilitazione che è svolta con contatto diretto operatore-paziente? Quali tipi di interventi di tele-riabilitazione sono efficaci?…”

Section: Iv) La Telemedicina Nella Neuro-riabilitazioneunclassified

Sistemi telematici di aiuto al paziente: esempi di “best practice”

Bertolotto

2015

abtpn

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IntroduzioneLa telemedicina (TM) è definita come lo scambio di informazioni mediche fra due luoghi fisicamente distanti. Le finalità della TM sono di offrire servizi che non possono essere forniti tramite incontri "faccia a faccia" tra medico o personale sanitario e paziente e di migliorare quelli esistenti. La sclerosi multipla (SM) è una malattia cronica progressiva, caratterizzata da una moltitudine di sintomi e può portare a una disabilità severa che può rendere difficile al paziente l'accessibilità ai servizi medici, impedirne o ridurne specifiche funzioni con conseguente peggioramento della qualità della vita (QoL). L'utilizzo della TM può migliorare la QoL dei pazienti e ridurre i costi della malattia.La TM può anche utilizzare le misurazioni degli esiti riferiti dal paziente, in inglese denominati Patient-reported outcomes oppure Patient self-reports (per una revisione vedi Dossier 238/2014 della Regione Emilia-Romagna [1]), una modalità di raccolta informazioni incentrate sulla prospettiva del paziente, che permette di svolgere studi su interventi medici e neuro-riabilitativi e sulla QoL. Inoltre la TM ha la potenzialità di sviluppare misure più sensibili dell'Esame neurologico obiettivo, come ad esempio la misurazione dell'attività motoria media giornaliera, e di quantificare più strettamente la progressione della disabilità nell'ambiente in cui vive il paziente. È probabile che l'utilizzo della TM continuerà ad aumentare nei prossimi anni, ma sono necessari studi controllati più ampi per confermare i benefici della TM nel fornire alle persone con SM il migliore trattamento [2]. Per illustrare le potenzialità della TM vengono presi in considerazioni quattro recenti studi, che affrontano quattro importanti argomenti: i) la valutazione della funzione motoria; ii) la valutazione multifunzionale della SM tramite iPad: Multiple Sclerosis Performance test (MSPT); iii) la misurazione e il miglioramento Sistemi telematici di aiuto al paziente: esempi di "best practice" Antonio Bertolotto Neurologia 2 -CRESM, AOU San Luigi, Orbassano (TO)Indirizzo per la corrispondenza:

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Telerehabilitation for persons with multiple sclerosis

Cited by 27 publications

References 36 publications

Neurorehabilitation in Multiple Sclerosis – Resilience in Practice

Neurorehabilitation in Multiple Sclerosis – Resilience in Practice

Determining the use and value of social support in Telerehabiliation Interventions for individuals with Multiple Sclerosis: A narrative synthesis review

Sistemi telematici di aiuto al paziente: esempi di “best practice”

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