Temporal Belonging: Loss of Time and Fragile Attempts to Belong with Alzheimer’s Disease

Glavind, Ida Marie Lind

doi:10.1007/s11013-022-09803-3

Cited by 4 publications

(2 citation statements)

References 33 publications

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“…In general, throughout our participant observation studies and our interviews with different welfare professionals involved in caring for people diagnosed with dementia, all were preoccupied with the ways in which care assistants and the person diagnosed with dementia affected each other and had the ability to set the “mood” of the mutual interaction (see also Driessen, 2018a; and Glavind, 2022 for similar ethnographic findings from the Netherlands and Denmark respectively). Such moods were essential, all agreed, for those diagnosed with dementia to trust their care assistants and thus accept and receive their acts of care and guidance.…”

Section: Setting the Mood Of A Care Interactionmentioning

confidence: 99%

Trust in interpersonal care relations between care providers and people diagnosed with dementia: An ethnographic study from a Danish welfare context

Thorsen

Nielsen

2023

Dementia

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This article examines how trust is built and maintained in interpersonal care relations between people diagnosed with dementia and their vocationally trained care assistants in a Danish welfare context. The issue of trust is singled out as being particularly relevant, as people diagnosed with dementia often possess different cognitive abilities than those most commonly mentioned within existing social theory and research as prerequisites for building and maintaining trust in interpersonal care relations. The article is based on ethnographic fieldwork conducted in various locations in Denmark, primarily during the summer and fall of 2021. It argues that in order for care assistants to build trustful relations with people diagnosed with dementia, they need to acquire the ability to set the “tone” or the “mood” of the care interactions, as that makes it possible to step into the world of people diagnosed with dementia in ways that acknowledge fundamental human affectedness as captured in Heidegger’s notion of “being-in-the-world.” Put differently, the social aspects of caregiving should not be separated from the specific nursing tasks that need to be performed. Rather, they should be considered prerequisites for providing those tasks in the first place.

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Section: Setting the Mood Of A Care Interactionmentioning

confidence: 99%

Trust in interpersonal care relations between care providers and people diagnosed with dementia: An ethnographic study from a Danish welfare context

Thorsen

Nielsen

2023

Dementia

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“…As I followed research participants and their families for 2.5 years, I was repeatedly struck by the continuous efforts of wives, husbands, children, and siblings to sustain the social recognition of the person with Alzheimer's. For example, this was evident in careful attempts to preserve a sense of time by keeping the person with Alzheimer's in synch with the social time of their surroundings, while carefully adjusting these efforts as the disease progressed (Glavind 2022). It was also evident in the ways in which partners became experts in reading the body language of their spouse with Alzheimer's, understanding without the use of words in which activities they wished to participate and which would be too overwhelming (Glavind and Mogensen 2022).…”

Section: Lives Go Onmentioning

confidence: 99%

Questions of (non)Disclosure among People Living with Alzheimer’s Disease in Denmark

Lind Glavind

2023

A&A

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This article explores questions of (non)disclosure among people diagnosed with Alzheimer’s disease, arguing that whether to reveal one’s diagnosis to family and friends is not a straightforward choice. I use the term (non)disclosure to emphasize the fluidity of that choice, as participants often toggle between revelation and concealment. Common to various strategies is an aim to avoid the strong associations with dementia as social death. By following the aftermaths of disclosure, the article shows that people with Alzheimer’s disease living in Denmark do not experience social death. Rather, they experience marginalization and estrangement but also continuing care. The article reveals that while social death is commonly ascribed to Alzheimer’s, this ascription does not account for the manifold social implications of the diagnosis. The continuing care that people with Alzheimer’s disease receive is often overlooked. To challenge commonplace mischaracterizations of dementia as social death, we must take seriously the experiences of people living with the disease and contribute to redefining common understandings of dementia in ways that include the continuity of social recognition and the possibility of living a good life.

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Temporalities of Aged Care: Time Scarcity, Care Time and Well-Being in Danish Nursing Homes

Balkin

Martinsen

Kymre

et al. 2023

Medical Anthropology

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Temporal Belonging: Loss of Time and Fragile Attempts to Belong with Alzheimer’s Disease

Cited by 4 publications

References 33 publications

Trust in interpersonal care relations between care providers and people diagnosed with dementia: An ethnographic study from a Danish welfare context

Trust in interpersonal care relations between care providers and people diagnosed with dementia: An ethnographic study from a Danish welfare context

Questions of (non)Disclosure among People Living with Alzheimer’s Disease in Denmark

Temporalities of Aged Care: Time Scarcity, Care Time and Well-Being in Danish Nursing Homes

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