Testing a Model of Resilience in Family Members of Relatives with Traumatic Brain Injury vs Spinal Cord Injury: Multigroup Analysis

Simpson, Grahame; Anderson, Malcolm; Daher, Mayssa; Jones, Kate; Morey, Peter

doi:10.1016/j.apmr.2021.06.016

Cited by 13 publications

(9 citation statements)

References 52 publications

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“…Alternatively, for the informants who had come to an acceptance post-stroke, this was associated with more positive emotions, which is generally associated with better mental health and QoL (Ch’ng et al, 2008 ; Clarke & Black, 2005 ), highlighting the importance of positive emotion. In other neurological (individual or carer) samples, resilience was strongly associated with positive emotion which contributed to positive mental health and acted as a buffer against negative affect and psychological distress (Simpson et al, 2021 ).…”

Section: Discussionmentioning

confidence: 99%

Contribution of participation and resilience to quality of life among persons living with stroke in Sweden: a qualitative study

Matérne

Simpson

Jarl

et al. 2022

International Journal of Qualitative Studies on Health and Well

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Purpose Resilience contributes to positive adaptation after many health conditions, but little is known about its contribution to long-term recovery after stroke. This study investigated the lived experience of resilience and participation and their relationship to quality of life after stroke in Sweden. Material and method Semi-structured telephone interviews were conducted with 19 informants (10 male, 9 female), aged from 44–89 years and between 1 and 19 years post-stroke. Stroke severity ranged from mild (n = 8), moderate (n = 9) to severe (n = 2). Interviews were analysed using content analysis. Results The analysis resulted in an overarching theme; Life with stroke has been adapted to but not accepted , built on five subthemes: 1) Adapting and adjusting life, 2) Meaningful values in life, 3) Inner resources, 4) Support and treatment from social relations, and 5) Support and treatment from external resources. Conclusion Participants described a tension between adapting and accepting life after stroke. Resilience was a useful framework, highlighting the contribution of inner, social and societal resources to recovery and quality of life, both directly and as enhanced through increased participation. Important factors for adaptation are meaningful values in life, individual strategies for adaptation and support from both social relationship and the society.

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Section: Discussionmentioning

confidence: 99%

Contribution of participation and resilience to quality of life among persons living with stroke in Sweden: a qualitative study

Matérne

Simpson

Jarl

et al. 2022

International Journal of Qualitative Studies on Health and Well

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“…Similar associations have been revealed in studies on resilience in caregivers of persons with TBI and acquired brain injury. Resilient caregivers tend to cope more actively and have better mental health (Simpson & Jones, 2013;Simpson et al, 2021). Simpson et al (2021) suggest that resilience and social support mediate the relationship between coping and caregiver burden.…”

Section: Introductionmentioning

confidence: 99%

“…Resilient caregivers tend to cope more actively and have better mental health (Simpson & Jones, 2013;Simpson et al, 2021). Simpson et al (2021) suggest that resilience and social support mediate the relationship between coping and caregiver burden. Higher levels of resilience are also associated with better mental health-related quality of life in both individuals with TBI and family members (Rasmussen et al, 2020), consistent with the resilience theory.…”

Section: Introductionmentioning

confidence: 99%

Associations between protective resources and family functioning after traumatic brain injury: A cross-sectional study using a structural equation modeling approach

Rasmussen

Howe

Anđelić

et al. 2023

NRE

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BACKGROUND: A strength-based approach in the rehabilitation after traumatic brain injury (TBI) is recommended for patients and their families. However, further exploration of the complexity of individual and family factors is needed. OBJECTIVE: To explore the associations between individual protective resources in patients and family members and the overall family functioning using a strength-based approach. METHODS: Secondary data collected at baseline in a randomized controlled trial were analyzed. A structural equation modeling with two latent constructs and six observed variables was performed. Outcome measures included the Resilience Scale for Adults, the Mental Component Summary (SF-36), the General Self-Efficacy Scale, and the Family Adaptability and Cohesion Evaluation Scale-IV. RESULTS: Hundred-and-twenty-two participants (60 patients, 62 family members) with a mean age of 43 years were included at a median of 11 months post-injury. The final model demonstrated a strong covariance (coefficient = 0.61) between the latent Protective construct and Family functioning. Model-fit statistics indicated an acceptable fit to the data. CONCLUSION: Higher levels of protective resources (resilience, self-efficacy, and mental HRQL) were positively associated with Family functioning. These resources should be further assessed in patients and their families, to identify factors that can be further strengthened through TBI rehabilitation interventions.

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“…To date, few studies have explored resilience in caregivers of people who have survived a moderate-to-severe TBI (Las Hayas et al, 2015; Simpson et al, 2021; Simpson & Jones, 2013). Las Hayas et al (2015) found that the resilience of Spanish caregivers of persons with TBI was positively associated with quality of life and negatively related to perceived burden.…”

mentioning

confidence: 99%

“…In a recent study examining resilience among caregivers of injured service members (two-thirds with a history of TBI), lower caregiver depressive symptomatology was related to higher caregiver resilience scores (Dreer et al, 2019). In another study by Simpson et al (2021) which compared resilience among caregivers of individuals with TBI andspinal cord injury (SCI), both groups had lower scores than that of the general population but higher scores than individuals seeking medical care. In summary, the few studies that have focused on resilience among caregivers of people with TBI have suggested that lower levels of resilience are generally associated with subjective burden, decreased quality of life, and negative affective state, and are somewhat lower than expected in both TBI and SCI populations.…”

mentioning

confidence: 99%

Caregiver resilience following traumatic brain injury: Findings at six months postinjury.

Marwitz,

Perera,

Klyce

et al. 2023

Rehabilitation Psychology

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Purpose/Objective: Examine contributors to resilience among caregivers of individuals who have sustained a moderate-to-severe traumatic brain injury (TBI), with the goal of identifying important targets for an intervention to improve caregiver resilience as well as outcomes for people with TBI. Research Method/Design: Participants were adult caregivers (n = 176) and individuals with TBI who required inpatient rehabilitation at six TBI Model System sites. Measures included the Connor–Davidson Resilience Scale-10, Family Needs Questionnaire, Zarit Burden Interview, Patient Health Questionnaire-9, and Generalized Anxiety Disorder-7. Data were collected between September 2018 and June 2021. Results: Caregivers endorsed levels of personal resilience that were comparable to norms for community samples and slightly higher than groups under stress or with medical illness. Reports of the burden associated with the caregiving role were relatively low, as was reported psychological distress. In a multivariable model, higher proportions of met emotional support needs were associated with increased resilience. Conclusions/Implications: Resilience may be strengthened by emotional support networks, including friends or family who may not already be directly involved in the provision of care. Supporting engagement with community agencies, peer mentors, or other informal resources within the family system that provide emotional support may bolster resilience outcomes for caregivers.

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Testing a Model of Resilience in Family Members of Relatives with Traumatic Brain Injury vs Spinal Cord Injury: Multigroup Analysis

Cited by 13 publications

References 52 publications

Contribution of participation and resilience to quality of life among persons living with stroke in Sweden: a qualitative study

Contribution of participation and resilience to quality of life among persons living with stroke in Sweden: a qualitative study

Associations between protective resources and family functioning after traumatic brain injury: A cross-sectional study using a structural equation modeling approach

Caregiver resilience following traumatic brain injury: Findings at six months postinjury.

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