Thalassemia in Messina: A Sociological Approach to Chronic Disease

Carbone, Silvia

doi:10.4081/thal.2014.2207

Cited by 2 publications

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“…In Italy patients with thalassemia are about 7.000 and are mainly concentrated in areas of the Po Delta, Sardinia and Sicily (Figure 1). In our province, the thalassemia patients, taken into care by the University Hospital of Messina and the Microcythemia Center of S.Agata Militello are about 130 (Carbone, 2014).…”

Section: Introductionmentioning

confidence: 99%

Affective control and life satisfaction in thalassemics

Mento

Piraino

Rizzo

et al. 2015

Int. j. psychol. res.

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Background. Thalassemia is a chronic disease that can lead to an impact on psychological functioning and social behavior of patients. However, still little is known about the specific psychological aspects of the disease, such as the degree of tension, life satisfaction and affective control, especially in adult patients. Aim. The purpose of this study is to investigate whether patients with thalassemia have specific psychological pattern relating to the dimensions of tension, satisfaction and quality of life, management of affection. Method. We evaluated 31 patients with thalassemia major and intermedia (19 women and 12 men) aged between 18 and 50 years (M = 34 + 16), belonging to the Complex Unit of Medical Genetics. For the evaluation were used the Profile of Mood States (POMS), the Quality of Life Enjoyment and Satisfaction Questionnaire (Q-LES-Q) and the Rorschach test. Results. The findings show an inverse relationship between the levels of self-reported tension and the affective control indicators at Rorschach. Life satisfaction, instead, seems to vary according to the severity of the disease -major vs. intermediate -and the type of therapy.Conclusions. An understanding of the psychological mechanisms involved in thalassemia, both self-reported and projective, can contribute to a wider patient takeover, by considering the subjective aspects related to the psychological and socioemotional well-being, fundamental in the care compliance. RESUMEN Antecedentes:La Talasemia es una enfermedad crónica que puede conducir a un impacto en el funcionamiento psicológico y el comportamiento social de los pacientes. Sin embargo, todavía se sabe poco sobre los aspectos psicológicos específicos de esta enfermedad, tales como el grado de tensión, satisfacción con la vida y el control afectivo, sobre todo en pacientes adultos. Objetivo: El propósito de este estudio, es investigar si los pacientes con Talasemia tienen un patrón psicológico específico relacionado con las dimensiones de tensión, Palabras clave: talasemia, control afectivo, calidad de vida. Affective Control and Life Satisfaction in ThalassemicsControl Afectivo y Satisfacción con la Vida en Talasémicos R E S E A R C H INTERNATIONAL JOURNAL OF PSYCHOLOGICAL RESEARCH Affective control and life satisfaction in ThalassemicsMento et al. (2015) int.j.psychol.res. Resultados: Los resultados muestran una relación inversa entre los niveles de tensión de auto-reporte y los indicadores de control afectivo en el test de Rorschach. La satisfacción con la vida, por el contrario parece variar según la gravedad de la enfermedad: major vs. intermedio -y el tipo de terapia. Conclusiones: la comprensión de los mecanismos psicológicos implicados en la talasemia, tanto en el auto-reporte como en lo proyectivo, puede contribuir a una toma de control más amplia del paciente, considerando los aspectos subjetivos relacionados con el bienestar psicológico y socio-emocional, fundamentales en el cumplimiento del cuidado.

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Section: Introductionmentioning

confidence: 99%