The acceptability of implementing patient‐reported measures in routine maternity care: A systematic review

Chen, An; Väyrynen, Kirsi; Leskelä, Riikka‐Leena; Torkki, Paulus; Heinonen, Seppo; Tekay, Aydin; Acharya, Ganesh

doi:10.1111/aogs.14506

Cited by 8 publications

(3 citation statements)

References 48 publications

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“…One barrier to adaptation of PROMs in routine use is patient burden. In the field of maternity care, a systematic review by Chen et al ( 36 ) found that one factor hindering the acceptability of PROM collection was that the patients were concerned about the length of the questionnaires and the inadequacy of instructions. They offered suggestions for increasing response rate, such as explaining the purpose of the questionnaires to the patients and giving clear instructions, which could be applicable in the elderly population as well.…”

Section: Discussionmentioning

confidence: 99%

Measuring outcomes of rehabilitation among the elderly—a feasibility study

Pitkänen,

Niskanen,

Malmivaara

et al. 2023

Front. Health Serv.

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A feasible system for measuring patient outcomes of rehabilitation is required for assessing the real-world cost-effectiveness of rehabilitation. This study aims to assess the feasibility of measuring outcomes of rehabilitation among elderly individuals with early-stage Alzheimer's. We used the principles of Design Science to construct a set of metrics consisting of standardized PROM (Patient-Reported Outcome Measure) questionnaires, clinician-reported measures, and observational measures of functioning. We used standardized questionnaires whenever possible to ensure the validity and reliability of the questionnaires. The set of metrics was piloted on 16 individuals living at home with regular home care services. After the pilot, we further refined the set of metrics based on relevance, sensitivity to change, and applicability. We found that measurement was feasible and we propose the final set of metrics as a minimum set, which could be further improved upon by addition of metrics relevant to each subgroup of elderly individuals. We also found that using self-reported questionnaires in this population is not without difficulties. We therefore suggest that the role of informal caregivers be considered, and that accessibility of outcome questionnaires be improved.

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Section: Discussionmentioning

confidence: 99%

Measuring outcomes of rehabilitation among the elderly—a feasibility study

Pitkänen,

Niskanen,

Malmivaara

et al. 2023

Front. Health Serv.

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“…The focus of both measures is centered on the paradigm of personcentered care [11], prioritizing capturing the experiences and outcomes that matter to individuals over clinical outcome measures [12,13]. Similar to other healthcare specialties, interest in PROMs and PREMs has grown in maternity, pregnancy, and childbirth care [14]. From this contextualization, maternal satisfaction related to their breastfeeding process, directly linked to PROMs, should also be included as an appropriate outcome indicator.…”

Section: Introductionmentioning

confidence: 99%

Psychometric properties of the Maternal Breastfeeding Evaluation Scale: confirmatory factor analysis

Escribano,

Herrero-Oliver,

Oliver-Roig

et al. 2024

Preprint

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Background Maternal satisfaction related to their breastfeeding process should also be included as an appropriate outcome indicator. The aim of this study was to analyze the psychometric properties of different proposed versions of the Maternal Breastfeeding Evaluation Scale in a Spanish sample. Methods This was a longitudinal, observational study, evaluated at three different timepoints: at hospital after delivery, 5 and 12 months after delivery in a Spanish sample Results A total of 690 mother participated in this study. Comparing three different models of the scale, the results of Confirmatory Factor Analysis reflected a better fit of the data to the original model. The variable satisfaction with breastfeeding is negatively related to the difficulty percieved in continuing breastfeeding due to return to work and positively related to the rate of breastfeeding at five months postpartum. Finally, the scale can predict breastfeeding behavior at twelve months after birth. Conclusions The results of this study indicated that the structure of the original version of the MBFES is valid and reliable for evaluating mothers' perception of their breastfeeding experience in Spain. The research contributes to a better understanding of the maternal satisfaction with the breastfeeding experience and its potential implications for supporting breastfeeding practices, potentially impacting academic, healthcare, and policy spheres.

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“…The TFA defines acceptability as a multifaceted construct, comprising of seven domains (affective attitude, burden, ethicality, intervention coherence, opportunity costs, perceived effectiveness, and self-efficacy, see Table 1 for construct definitions) that can be applied at different timepoints (before, during or after an intervention) to assess the prospective, concurrent, or retrospective acceptability of an intervention. Perinatal research has used the TFA to assess acceptability in a variety of healthcare contexts (e.g., 57 – 61 ), including the use of exposure therapy among pregnant women with elevated anxiety ( 62 ), and a systematic review on the acceptability of implementing patient reported measures in routine maternity care ( 63 ). However, the authors know of no research that has used the TFA to assess the acceptability of suicide-related screening items to perinatal women.…”

Section: Introductionmentioning

confidence: 99%

Acceptability and content validity of suicidality screening items: a qualitative study with perinatal women

Dudeney,

Coates,

Ayers

et al. 2024

Front. Psychiatry

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BackgroundSuicide is a leading cause of death for perinatal women. It is estimated that up to 50% of women with mental health issues during pregnancy and/or after birth are not identified, despite regular contact with healthcare services. Screening items are one way in which perinatal women needing support could be identified. However, research examining the content validity and acceptability of suicide-related screening items with perinatal women is limited.AimsThis study sought to: (i) assess the acceptability and content validity of 16 suicide-related items that have been administered and/or validated in perinatal populations; and (ii) explore the potential barriers and facilitators that may affect how women respond to these items when administered during pregnancy and after birth.MethodsTwenty-one cognitive and semi-structured interviews were conducted with pregnant and postnatal women in the UK. The sample included women who had experienced self-reported mental health problems and/or suicidality during the perinatal period, and those who had not. Interviews were transcribed verbatim, and a coding framework based on the Theoretical Framework of Acceptability was applied to explore the data using deductive and inductive approaches.ResultsFindings indicated that the acceptability and content validity of suicide-related items were largely unacceptable to perinatal women in their current form. Women found terms such as ‘better off dead’ or ‘killing myself’ uncomfortable. Most women preferred the phrase ‘ending your life’ as this felt less confronting. Comprehensibility was also problematic. Many women did not interpret ‘harming myself’ to include suicidality, nor did they feel that abstract language such as ‘leave this world’ was direct enough in relation to suicide. Stigma, fear, and shame was central to non-disclosure. Response options and recall periods further affected the content validity of items, which created additional barriers for identifying those needing support.ConclusionsExisting suicide-related screening items may not be acceptable to perinatal women. Maternity practitioners and researchers should consider the phrasing, clarity, context, and framing of screening items when discussing suicidality with perinatal women to ensure potential barriers are not being reinforced. The development of specific suicidality screening measures that are acceptable, appropriate, and relevant to perinatal women are warranted.

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The acceptability of implementing patient‐reported measures in routine maternity care: A systematic review

Abstract: This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.

Cited by 8 publications

References 48 publications

Measuring outcomes of rehabilitation among the elderly—a feasibility study

Measuring outcomes of rehabilitation among the elderly—a feasibility study

Psychometric properties of the Maternal Breastfeeding Evaluation Scale: confirmatory factor analysis

Acceptability and content validity of suicidality screening items: a qualitative study with perinatal women

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