The accessibility and usability of an Australian web‐based self‐management programme for people with lower health literacy and joint pain in the UK: A qualitative interview study

Parsons, Luke; Adams, Jo

doi:10.1002/msc.1355

Cited by 9 publications

(24 citation statements)

References 31 publications

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“…These findings corroborate conclusions reached in similar studies in the UK . However, MJP users with lower health literacy (n = 6) in the UK found the content confusing and complex , and the depth and breadth of the MJP content were seen to be excessive, hindering further engagement with the resource . None of these points were found to be problematic in our study, which reflects the difference in health literacy levels between participants in the 2 studies.…”

Section: Discussionsupporting

confidence: 90%

“…Notably, most participants reported that both the content of the MJP and the accessibility and interface of the DAT were straightforward, meaningful, and appealing to everyone, reflecting the reasonably high level of the participants’ perceived computer and health literacy. These findings corroborate conclusions reached in similar studies in the UK . However, MJP users with lower health literacy (n = 6) in the UK found the content confusing and complex , and the depth and breadth of the MJP content were seen to be excessive, hindering further engagement with the resource .…”

Section: Discussionsupporting

confidence: 87%

“…The participants also valued seeing the practical benefits of the innovation, such as its capacity to impart quality and balanced new insights, above and beyond their prior knowledge, and maintain and monitor their progress. As in a recent UK qualitative study (n = 10), the notions of trustworthiness in the MJP and its facility for personalized information preservation, monitoring, and planning were found to be important elements that helped individuals’ engagement in self‐management .…”

Section: Discussionmentioning

confidence: 60%

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Qualitative Evaluation of Evidence‐Based Online Decision Aid and Resources for Osteoarthritis Management: Understanding Patient Perspectives

Jeon

Flaherty

Urban

et al. 2018

Arthritis Care & Research

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Section: Discussionsupporting

confidence: 90%

Section: Discussionsupporting

confidence: 87%

Section: Discussionmentioning

confidence: 60%

See 1 more Smart Citation

Qualitative Evaluation of Evidence‐Based Online Decision Aid and Resources for Osteoarthritis Management: Understanding Patient Perspectives

Jeon

Flaherty

Urban

et al. 2018

Arthritis Care & Research

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“…MJP was reviewed by the study participants, as it represented an up-to-date and novel web-based tool for people with OA [28]. However, the site requires a high level of health literacy, particularly in relation to the level and quantity of information provided [15,16]. Consequently, it was important to understand whether a more accessible site could be developed for UK-based users.…”

Section: Lifeguide Softwarementioning

confidence: 99%

“…A key recommendation in most self-management programs for OA is to increase physical activity [12]. Although both face-to-face and digital interventions can effectively support the promotion of physical activity [13,14], digital interventions are accessible to a broader range of people [15] and acceptable as a method for supporting the self-management of joint pain [16]. Furthermore, digital tools for managing chronic conditions have been found to increase awareness and build capacity for people to better manage their condition [17].…”

Section: Introductionmentioning

confidence: 99%

Integrating a Web-Based Self-Management Tool (Managing Joint Pain on the Web and Through Resources) for People With Osteoarthritis-Related Joint Pain With a Web-Based Social Network Support Tool (Generating Engagement in Network Involvement): Design, Development, and Early Evaluation

Clarkson¹,

Vassilev²,

Rogers³

et al. 2020

JMIR Form Res

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Background Joint pain caused by osteoarthritis (OA) is highly prevalent and can be extremely debilitating. Programs to support self-management of joint pain can be effective; however, most programs are designed to build self-efficacy and rarely engage social networks. Digital interventions are considered acceptable by people with joint pain. However, many existing resources are not accessible for or developed alongside people with lower health literacy, which disproportionately affects people with OA. Objective This study aims to design and develop an accessible digital self-management tool for people with joint pain and integrate this with an existing social network activation tool (Generating Engagement in Network Involvement [GENIE]) and to explore the feasibility of these linked tools for supporting the management of joint pain. Methods The study was conducted in 2 phases: a design and development stage and a small-scale evaluation. The first phase followed the person-based approach to establish guiding principles for the development of a new site (Managing joint Pain On the Web and through Resources [EMPOWER]) and its integration with GENIE. People with joint pain were recruited from libraries, a community café, and an exercise scheme to take part in 3 focus groups. EMPOWER was tested and refined using think-aloud interviews (n=6). In the second phase, participants were recruited through the web via libraries to participate in a small-scale evaluation using the LifeGuide platform to record use over a 1-month period. Participants (n=6) were asked to complete evaluation questionnaires on their experiences. The NASSS (nonadoption, abandonment, scale-up, spread, and sustainability) framework was used to explore the feasibility of the sites. Results The focus groups established guiding principles for the development of the tool. These included ensuring accessibility and relevance for people with OA-related joint pain and recognizing that joint pain is the reason for seeking support, trust, social facilitation, and goal setting. Think-aloud interviews identified issues with user experience and site navigation and the need for professional input for referral and goal setting, confusion, and tensions over the role of GENIE and site connectivity. Participants expected the sites to be specific to their pain-related needs. EMPOWER was accessed 18 times; 6 users registered with the site during the evaluation study. Participants mostly explored information pages on being active and being a healthy weight. Only one participant undertook goal setting and 4 participants visited the GENIE website. Conclusions Using the NASSS framework, we identified the complexity associated with integrating EMPOWER and GENIE. The value proposition domain highlighted the technical and conceptual complexity associated with integrating approaches. Although identified as theoretically achievable, the integration of differing propositions may have caused cognitive and practical burdens for users. Nevertheless, we believe that both approaches have a distinct role in the self-management of joint pain.

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Clinical effects of online cognitive behavioral group therapy for chronic pain patients and developing a therapeutic alliance: A pre–post pilot trial

Yoshino,

Yokoyama,

Kurata

et al. 2024

Health Science Reports

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Background and AimsResearch suggests that various psychosocial factors influence chronic pain, with psychotherapies like cognitive behavioral therapy proving effective. However, the limited availability and accessibility have prolonged suffering among patients with chronic pain. This challenge has led to a growing demand for accessible online interventions. We developed an online cognitive behavioral group therapy (CBGT) program, building upon our existing face‐to‐face CBGT program. We compared the scores obtained by patients during the treatment‐as‐usual (TAU) period with those collected at the beginning and at the end of the intervention. MethodsPatients with chronic pain (N = 22) agreed to participate in the online CBGT program, which was conducted once a week for 12 sessions. The sample size was decided based on the effect sizes of our past face‐to‐face CBGT. We assessed pain intensity [Visual Analogue Scale (VAS)], pain catastrophizing [pain catastrophizing scale (PCS)] and psychiatric assessment [Beck Depression Inventory‐Second Edition (BDI)‐II], State‐Trait‐Anxiety Inventory (STAI), and Short Form Health Survey (SF‐36) at three points: entry, pretreatment, and posttreatment. We also evaluated the participants' therapeutic alliance with the treatment staff [short‐form version of the Working Alliance Inventory (WAI‐S)]. We utilized analyses of variance, Friedman test, paired t‐tests, Wilcoxon signed‐rank test, and Pearson correlation analysis for data evaluation.ResultsResults indicated a significant posttreatment improvement in VAS, PCS, and BDI‐II scores compared to the TAU period. Furthermore, posttreatment WAI‐S scores increased significantly compared to pretreatment scores. Also, positive correlations were observed among pre‐ and posttreatment changes in WAI‐S, pain intensity, and pain catastrophizing scores.ConclusionThere is a possibility that a therapeutic alliance can be established, and therapeutic effects achieved through an online CBGT intervention; however, additional research is required to substantiate this potential. We have registered this clinical trial in UMIN‐CTR on 04/21/2021 with the number UMIN000043982.

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The accessibility and usability of an Australian web‐based self‐management programme for people with lower health literacy and joint pain in the UK: A qualitative interview study

Cited by 9 publications

References 31 publications

Qualitative Evaluation of Evidence‐Based Online Decision Aid and Resources for Osteoarthritis Management: Understanding Patient Perspectives

Qualitative Evaluation of Evidence‐Based Online Decision Aid and Resources for Osteoarthritis Management: Understanding Patient Perspectives

Integrating a Web-Based Self-Management Tool (Managing Joint Pain on the Web and Through Resources) for People With Osteoarthritis-Related Joint Pain With a Web-Based Social Network Support Tool (Generating Engagement in Network Involvement): Design, Development, and Early Evaluation

Clinical effects of online cognitive behavioral group therapy for chronic pain patients and developing a therapeutic alliance: A pre–post pilot trial

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