The Allocation of Family Responsibility for Asthma Management Tasks in African-American Adolescents

Walders, Natalie; Drotar, Dennis; Kercsmar, Carolyn M.

doi:10.3109/02770900009055432

Cited by 79 publications

(61 citation statements)

References 22 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Several studies have found that, for children with chronic illness, discrepancies in parent and child reports of decision making autonomy specifically regarding the management of the child's medical regimen (i.e. whether the child or parent is responsible for daily illness management tasks) may be related to higher family conflict, nonadherence, and morbidity (Miller & Drotar, 2003;Walders, Drotar, & Kercsmar, 2000). Further research on the nature of discrepancies between family members' reports of trajectory of autonomy development in children with spina bifida may provide a greater understanding of family relationship transformations that may occur over time.…”

Section: Discussionmentioning

confidence: 99%

Trajectories of autonomy development across the adolescent transition in children with spina bifida.

Friedman¹,

Holmbeck²,

DeLucia³

et al. 2009

Rehabilitation Psychology

View full text Add to dashboard Cite

Objective:The current study investigated individual growth in autonomy development across the adolescent transition, comparing the trajectories of children with and without spina bifida. Method: Individual growth curve modeling procedures were utilized to describe the developmental course of autonomy across four waves of data collection, from ages 9 to 15, and to test whether illness status [spina bifida vs. matched comparison group (N ϭ 68 for both groups at Time 1)] would significantly predict individual variability in autonomy development. Potential moderators [child gender, SES, and Peabody Picture Vocabulary Test (PPVT) score] of the association between illness status and autonomy development were also examined. Results: Children with spina bifida demonstrated distinct developmental trajectories, though the nature of the group differences varied by type of autonomy development (emotional vs. behavioral), context (i.e. school vs. family), and reporter. Significant interactions with PPVT score and child gender were found. Conclusion: Overall, children with spina bifida show considerable developmental resiliency, but may lag behind their peers in specific areas of autonomy. Boys with spina bifida, and children with spina bifida who have lower than average levels of verbal intelligence, appear to be at greater risk for exhibiting delays in autonomy development.

show abstract

Section: Discussionmentioning

confidence: 99%

Trajectories of autonomy development across the adolescent transition in children with spina bifida.

Friedman¹,

Holmbeck²,

DeLucia³

et al. 2009

Rehabilitation Psychology

View full text Add to dashboard Cite

show abstract

“…The current study found limited variability in responses to most items, suggesting that a different response set may improve the measure. A similar measure to assess responsibility for asthma management has the respondent rate each task on a 5-point Likert-type scale ranging from 1 (parent is completely responsible) to 5 (child is completely responsible), 12 although only limited support was found for the relationship between that measure and children's adherence. 12,72 Another option would have respondents report how frequently over a set period of time a caregiver (versus child) actually completed each task.…”

Section: Family Experiences With Antiretroviral Therapymentioning

confidence: 99%

“…Research among adolescents with a variety of chronic illnesses suggests that children assume increasing levels of responsibility for disease management as they mature, [8][9][10][11] and at least one study suggests that caregivers may assume less responsibility as children become older. 12 At the same time, adherence problems increase as children get older, [13][14][15] especially during adolescence. [15][16][17][18] Thus, children and adolescents may be given responsibility for regimen-related tasks when they may be unlikely to complete them successfully.…”

mentioning

confidence: 99%

Family Experiences with Pediatric Antiretroviral Therapy: Responsibilities, Barriers, and Strategies for Remembering Medications

Marhefka

Koenig

Allison

et al. 2008

AIDS Patient Care and STDs

View full text Add to dashboard Cite

This study examines the relationship between adherence to pediatric HIV regimens and three family experience factors: (1) regimen responsibility; (2) barriers to adherence; and (3) strategies for remembering to give medications. Caregivers of 127 children ages 2-15 years in the PACTS-HOPE multisite study were interviewed. Seventy-six percent of caregivers reported that their children were adherent (taking Ն 90% of prescribed doses within the prior 6 months). Most caregivers reported taking primary responsibility for medication-related activities (72%-95% across activities); caregivers with primary responsibility for calling to obtain refills (95%) were more likely to have adherent children. More than half of caregivers reported experiencing one or more adherence barriers (59%). Caregivers who reported more barriers were also more likely to report having non-adherent children. Individual barriers associated with nonadherence included forgetting, changes in routine, being too busy, and child refusal. Most reported using one or more memory strategies (86%). Strategy use was not associated with adherence. Using more strategies was associated with a greater likelihood of reporting that forgetting was a barrier. For some families with adherence-related organizational or motivational difficulties, using numerous memory strategies may be insufficient for mastering adherence. More intensive interventions, such as home-based nurse-administered dosing, may be necessary. 637

show abstract

“…Fourth, roles for managing asthma may not be clearly defined. Caretakers may not adequately assess or monitor the child's asthma management abilities (22,23) or negotiate developmentally appropriate responsibilities for asthma management tasks among caregivers and children (24,25).…”

mentioning

confidence: 99%

Enhancing Medication Adherence Among Inner-City Children with Asthma: Results from Pilot Studies

Bartlett¹,

Lukk²,

Butz³

et al. 2002

Journal of Asthma

102

View full text Add to dashboard Cite

Despite the availability of effective treatments that aid in controlling asthma symptoms, inner-city children with asthma have high rates of morbidity and are frequent users of emergency department services. The goal of these studies was to pilot test an intervention that used social learning strategies (e.g., goal-setting, monitoring, feedback, reinforcement, and enhanced self-efficacy) and targeted known barriers to individualize a family-based asthma action plan. Participants were 15 children with asthma, aged 7-12 years, who had been prescribed at least one daily inhaled steroid. The children and their mothers lived in inner-city Baltimore and all were African-American. Participants received up to five visits in their home by a nurse. Electronic monitors were installed on the children's MDI to provide immediate feedback on medication adherence to the families and validate medication use. At baseline, only 28.6% of the children were using their medications as prescribed. Within four weeks, the number of children who were using their medications appropriately doubled from 28.6% at baseline to 54.1% (90% increase; p = 0.004), while underutilization decreased from 51.2% to 25.4% (100% decrease; p = 0.02). The number of children with no medication use at all dropped from 28.3% at baseline to 15.1% by week 5 (87% decrease; p = 0.009). Thus, within four weeks, more than half the children were using their inhaled steroids appropriately. In addition, the rate of underutilization decreased and that of nonutilization was cut in half. Our initial data suggest that an individualized, home-based intervention can significantly enhance adherence to the daily use of inhaled steroids in inner-city children with asthma. Nevertheless, adherence to daily inhaled steroid therapy remains a significant problem in this group.

show abstract

The Allocation of Family Responsibility for Asthma Management Tasks in African-American Adolescents

Cited by 79 publications

References 22 publications

Trajectories of autonomy development across the adolescent transition in children with spina bifida.

Trajectories of autonomy development across the adolescent transition in children with spina bifida.

Family Experiences with Pediatric Antiretroviral Therapy: Responsibilities, Barriers, and Strategies for Remembering Medications

Enhancing Medication Adherence Among Inner-City Children with Asthma: Results from Pilot Studies

Contact Info

Product

Resources

About