The assessment of telemedicine to support outpatient palliative care in advanced cancer

Hennemann-Krause, Lilian; Lopes, Agnaldo José; Araújo, Janete A.; Petersén, Elisabeth; Nunes, Rodolfo Acatauassú

doi:10.1017/s147895151400100x

Cited by 76 publications

(154 citation statements)

References 21 publications

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“…41,43,44 From this review, we may also derive the need to continue implementing and evaluating cares that are being valued as very positive by patients and family caretakers for a positive transition between the hospital and the home. Among others, they highlight the following: education of the dyad during hospital discharge, 35,38,45 telephone follow up, 46,47 homecare teams, 48,49 and support groups of patients and caregivers. 30,31 Regarding these types of support, Stajduhar et al, 50 comment that the nature of the experiences of the dyads in PC can vary according to the structure of the health systems and of the social services, of access to services, and of the types of support available.…”

Section: Discussionmentioning

confidence: 99%

The transition of palliative care from the hospital to the home: a narrative review of experiences of patients and family caretakers

Rojas

García-Vivar

2015

Invest Educ Enferm

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Objective. This work sought to identify, analyze, and synthesize the qualitative studies published on the experiences of patients and family caretakers during the transition of palliative care from the hospital to the home. Methodology. A narrative review was conducted on the PubMed, Cochrane Central, ScienceDirect, Ovid Nursing, CINALH, Scielo, and Bireme databases, from 2000 to 2014. Results. After the analysis and comparison of the data, the results were grouped into six themes: (1) the dyad and its knowledge regarding the diagnosis and prognosis; (2) emotions experienced by the family caretaker and the patient during discharge; (3) effective communication among those involved with the care; (4) education for the care of the person at home; (5) continuous support to the dyad at home, and (6) care overload: social support for the family caretaker. Conclusion. Patients and relatives in palliative care experience a broad range of needs during the transition process from the hospital to the home, which are often not covered by healthcare professionals. This review evidences the need to research further on the experiences of these families, especially during the stage prior to the transfer to the domicile. The transition of palliative care from the hospital to the home: a narrative review of experiences of patients and family caretakers en seis temas: (1) la díada y su conocimiento ante el diagnóstico y pronóstico; (2) emociones experimentadas por el cuidador familiar y el paciente durante el alta; (3) comunicación efectiva entre los actores del cuidado; (4) educación para el cuidado de la persona en el hogar; (5) apoyo continuo a la diada en el hogar, y (6) sobrecarga del cuidado: soporte social para el cuidador familiar. Conclusión. Los pacientes y familiares en cuidados paliativos experimentan un amplio rango de necesidades durante el proceso de transición entre el hospital y el hogar, que en ocasiones no están cubiertas por parte de los profesionales de la salud. Esta revisión evidencia la necesidad de seguir investigando sobre las experiencias de estas familias, especialmente en la etapa previa al traslado al domicilio.Palabras clave: cuidadores; cuidados paliativos; revisión; alta del paciente; servicios de atención de salud a domicilio.A transição de cuidados paliativos do hospital ao lar: uma revisão narrativa das experiências de pacientes e cuidadores familiares Objetivo. Identificar, analisar e sintetizar os estudos qualitativos publicados sobre as experiências de pacientes e cuidadores familiares na transição de cuidados paliativos do hospital ao lar. Metodologia. Realizou-se uma revisão narrativa nas bases de dados PubMed, Cochrane Central, ScienceDirect, Ovid Nursing, CINALH, Scielo e Bireme, desde 2000 a 2014. Resultados. Depois da análise e comparação dos dados, os resultados se agruparam em seis temas: (1) a dupla e seu conhecimento ante o diagnóstico e prognóstico; (2) emoções experimentadas pelo cuidador familiar e o paciente durante o alta; (3) comunicação efetiva entre os atores do cuidado; (4)...

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Section: Discussionmentioning

confidence: 99%

The transition of palliative care from the hospital to the home: a narrative review of experiences of patients and family caretakers

Rojas

García-Vivar

2015

Invest Educ Enferm

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“…In all the included studies, patients' experiences were predominantly positive for eHealth applications and communication (32)(33)(34)(35)(36)(37)(38)(39)(40)(41)(42)(43). Eleven studies described patients' practical experiences of using various technological tools to communicate digitally with their caregivers (32,33,(35)(36)(37)(38)(39)(40)(41)(42)(43). In the twelfth study, patients described wanting technical communication aids both to receive and to provide information digitally, and thus facilitate communication with healthcare professionals (34).…”

Section: E-health Applications -Promoting Communication On Patients' mentioning

confidence: 99%

“…Through technology, new opportunities and arenas for meetings were made possible, as an addition to the more common traditional face to face care meetings or conferences. Several studies described that patients perceived various technical communication aids as user-friendly and feasible (32,33,(35)(36)(37)(38)(39)(40)(41)(42)(43). An example of user exibility, was an app that could be used in the way individual patients or families wanted, either on a mobile phone, a computer or a tablet (33,35,(39)(40)(41).…”

Section: Usability and Feasibility Of Ehealth Applicationsmentioning

confidence: 99%

“…An example of user exibility, was an app that could be used in the way individual patients or families wanted, either on a mobile phone, a computer or a tablet (33,35,(39)(40)(41). Communicating via video link also worked well and was found convenient (33,(35)(36)(37)(38)(39)42). Patients experienced bene ts of videoconferencing as compared to telephone consultations, since the added visual dimension provided information about body language and emotions (35,36,40).…”

Section: Usability and Feasibility Of Ehealth Applicationsmentioning

confidence: 99%

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Patients’ experiences of eHealth in palliative care: an integrative review.

Widberg

Wiklund

Klarare

2020

Preprint

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Background: With a growing world population, a longer life expectancy, and more deaths due to chronic diseases, the need for palliative care is increasing. E-Health involves the use of information and communication technology to provide care, and also to transmit health information through the Internet and related technologies. E-Health can be an effective way of supporting communication between patient and healthcare providers, but it is unclear to how patients regard information and communication technology (ICT) within palliative careMethods: The aim of this study was to describe patients’ experiences of eHealth in palliative care. An integrative review with a systematic literature search of six databases: Cinahl Complete; MEDLINE with Full Text; PubMed; Psychology and Behavioral Sciences Collection; Nursing and Allied Health; and PsycINFO generated 12 scientific articles. The articles were evaluated, data extracted, analyzed and synthesized, according to the aim.Results: The results are presented in the main theme: E-health applications – promoting communication on patients’ and families’ terms, and three sub- themes: usability and feasibility of eHealth applications; symptom control and individualized care promoted through eHealth applications; and use of eHealth applications increased sense of security and patient safety. Patients described ease of use, usability and feasibility of eHealth applications. Equal and individualized care, security, better symptom management, participation through increased accessibility and increased patient safety were described.Conclusions: E-Health applications promoted equal, individualized care, and may be a tool to promote accessibility and patient participation in palliative care settings. Furthermore, care transparency increased with eHealth communication when patients and families received more information, and experiences were that patient safety and feelings of security also were promoted. At organizational and societal levels, eHealth may contribute to sustainable development and more efficient use of resources in palliative care.

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“…Fortunately, remote palliative care consultation with patients and their primary care physicians is likely to be feasible and cost-effective [54]. Monitoring and triage of pain and depression related to cancer can also be successfully accomplished using automated systems administered by telephone with nursing coordinator follow-up [55], or by video conferencing from patients' homes and may improve access and symptom management compared to standard of care [56,57].…”

Section: Post-treatment Surveillance and Follow-upmentioning

confidence: 99%