The association between illness perception and quality of life among Chinese adults with epilepsy: The mediating role of coping style

Factors associated with illness representations in adults with epileptic and functional seizures: A systematic review

“…Indeed, other researchers found that BIPQ total scores were significant predictors of health-related quality of life in people with epilepsy, accounting for 23.1% of variance (p < .001) [29]. Similarly, structural equation modelling results demonstrated that IPQ-R scores explained 77.5% of the variance in quality of life (β = -0.775, p < .001) and that IPQ-R scores had a direct impact on quality of life (β = − 0.6, p = .001) [35].…”

“…Some caution should be taken when interpreting significant correlations between the IPQ subscale of 'consequences' and quality of life scales; these measures are arguably capturing similar constructs and so an identified association may be unsurprising. Conversely, the 'illness coherence', 'personal control', and 'treatment control' subscales positively correlated with higher scores on a quality of life measure [35], indicating that patients who perceived themselves to have a better understanding of their epilepsy and considered their epilepsy to be more controllable, reported better health-related quality of life. Indeed, other researchers found that BIPQ total scores were significant predictors of health-related quality of life in people with epilepsy, accounting for 23.1% of variance (p < .001) [29].…”

“…Several studies demonstrated the close interplay between illness representations and coping styles in people with epilepsy. 'Active coping' (analogous to 'problem-focused' coping [43]) on the Simplified Coping Style Questionnaire [SCSQ; 44] was positively associated with 'personal control' [40], 'illness coherence' [35], and 'treatment control' [40,35] and negatively associated with 'emotional representation' [35] on the Chinese IPQ-R [CIPQ-R; 45]. Conversely, 'passive coping' (cf.…”

“…Conversely, 'passive coping' (cf. 'emotion-focused' coping [43]) was positively associated with 'consequences', 'timeline cyclical', [35], 'identity' [40], and 'emotional representation' [40,35] and negatively associated with 'illness coherence' [40,35]. Furthermore, Goldstein et al [39] found that escape avoidant coping styles on the Ways of Coping Questionnaire [46] were positively associated with scores on the 'identity', and 'consequences' subscales of the IPQ, whereas planful problem-solving coping styles were associated with higher scores on 'controllability/cure subscale'.…”

“…Given the observed associations between IPQ scores, clinical characteristics, distress, and coping, it is perhaps unsurprising that IPQ scores have also been observed to be associated with quality of life in people with epilepsy. BIPQ total as well as 'timeline acute/chronic', 'timeline cyclical', 'consequences', and 'emotional representation' subscores on the CIPQ-R were negatively correlated with scores on the 31item Quality of Life in Epilepsy Inventory (QOLIE-31) [QOLIE-31; 47] a self-report measure of health-related quality of life in epilepsy [32,35]. This finding suggests that patients who perceived their epilepsy to be more threatening, chronic, unpredictable, distressing, and to have greater impact on their lives, experienced poorer health-related quality of life.…”