The association between medical diagnosis and caregiver burden: a cross-sectional study of recipients of informal support and caregivers from the general population study ‘Good Aging in Skåne’, Sweden

Elmståhl, Sölve; Dahlrup, Beth; Ekström, Henrik; Nordell, Eva

doi:10.1007/s40520-017-0870-0

Cited by 37 publications

(33 citation statements)

References 22 publications

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“…Researchers reported that individuals undergoing PD were at a greater risk of emotional distress than community‐based adults receiving haemodialysis (Griva et al 2014), and that elderly people on assisted PD had a higher prevalence of depressive symptoms than those on haemodialysis (Iyasere et al 2016). The emotional distress of the care recipients, such as anxiety and depression, was significantly associated with caregiver burden among the general elderly population (Elmståhl et al 2018). Previous studies have shown that dialysis individuals with depression had an increased risk of infections and experienced lower quality of life (Troidle et al 2003; Mok et al 2019).…”

Section: Literature Reviewmentioning

confidence: 99%

Family caregiver's burden and the social support for older patients undergoing peritoneal dialysis

Tao

Chow

Hai-fen

et al. 2020

Journal of Renal Care

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SUMMARY Background Most elderly people undergoing peritoneal dialysis (PD) treatment have a high incidence of frailty, cognitive impairment and emotional disturbance leading to a significant impact on families. The burden experienced by the family caregivers could affect their physical and emotion health. The objective of this study was to examine the level of burden on family caregivers of elderly adults receiving PD and to identify any contributing factors. Materials and Methods This was a cross‐sectional study employing convenience sampling. Patient–caregiver dyads were recruited from the outpatient clinic of a university hospital in China in 2019. Caregivers provided information on their perceived burden and health‐related quality of life. The elderly patients reported their functional dependence and depressive symptoms in the same interview. Linear regression analyses were used to determine the factors contributing to caregivers’ burden. Results Sixty patient–caregiver dyads were recruited. The patients had a mean age of 70.7 ± 7.4 years. The caregivers reported moderate levels of burden having ZBI score of 30.5 ± 15.9. Multivariate analyses showed that being female, perceiving one's financial status as insufficient, a low level of social support for the caregiver, depressive symptoms in the patients and disability in carrying out the instrumental activities of daily life were statistically significant predictors of caregiver burden (adjusted R2 = 0.46, p < 0.001). Conclusion Elderly adults receiving PD who experience physical dependence and depressive symptoms are a burden for caregivers. In response to this challenge, interventions designed with the goal of supporting the emotional and mental wellbeing of caregivers are warranted.

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Section: Literature Reviewmentioning

confidence: 99%

Family caregiver's burden and the social support for older patients undergoing peritoneal dialysis

Tao

Chow

Hai-fen

et al. 2020

Journal of Renal Care

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“…A higher score indicates a greater burden. The CBS has satisfactory validity and reliability with kappa values in the range of 0.89-10.0 [17,18], and has been used in psycho-oncology [19]. A Polish version of this scale is available [20,21].…”

Section: Instrumentsmentioning

confidence: 99%

Emotional Burden and Perceived Social Support in Male Partners of Women with Cancer

Jabłoński

García-Torres

Zielińska

et al. 2020

IJERPH

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Background: The aim of this study was to describe the correlations between the psychosocial burden on male caregivers and their perception of social support, as well as distress, anxiety, and depression among their partners in the first six months after a cancer diagnosis. Methods: A cross-sectional, longitudinal and observational study was conducted on a group of 61 couples, with the use of Zarit Burden Interview (ZBI), Caregiver Burden Scale (CBS), Berlín Social Support Scales (BSSS), Hospital Anxiety and Depression Scale (HADS) and Distress Thermometer (DT). Statistical analysis was performed using Statistica v.13. Results: A strong positive correlation between the ZBI and CBS, as well as between support-seeking and the emotional involvement of male partners, was documented. The negative correlation between the lack of instrumental support and a much greater burden on caregivers, in emotional, social, and family life was documented. The level of distress, anxiety, and depression, as well as family problems reported by female patients, were positively correlated with the male caregiver′s burden. A demographic analysis showed significant relationships between the number of offspring and the negative health indicators of patients and their partners. Implications: The obtained results encourage deeper reflection on the need to improve the availability of instrumental support for male caregivers and support for families with an oncological ill parent in caring for minor children, and to maintain the social activity of the caregiver.

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“…En nuestro estudio no hemos encontrado asociaciones entre la variable "parentesco" y otras como "carga" o "depresión", pero hay estudios que refieren un mayor nivel de carga y un mayor nivel de depresión cuando los cuidadores son hijos o hijas de la persona cuidada (12,14,34,37) Vivir con la persona cuidada también tiene repercusiones en cómo el cuidador vive la experiencia del cuidado. En nuestro estudio se ha encontrado una mayor soledad social en los cuidadores que vivían con los pacientes; sin embargo, en otros estudios (21,39) refieren una mayor carga cuando el cuidador y el paciente conviven.…”

Section: Discussionunclassified

“…Así mismo, las características sociodemográficas de los cuidadores influyen en su calidad de vida, nivel de carga, ansiedad, depresión, etc. (20) El tipo de diagnóstico (21) , el parentesco que mantiene con la persona atendida (14) , el tiempo que dedican a la tarea de cuidado (22) , etc., se han relacionado con la aparición de estas patologías en los cuidadores.…”

Section: Introductionunclassified

Women with high level of education, victims of the care of people with Alzheimer's

et al. 2020

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Objetivo: Conocer la relación existente entre la tarea de cuidar a pacientes con Enfermedad de Alzheimer, el Género de los cuidadores y su nivel de formación académica. Método: Estudio descriptivo, como sujetos de estudio 69 personas diagnosticadas de Enfermedad de Alzheimer y sus respectivos cuidadores familiares. En los cuidadores se analizó: la edad, el género, el nivel de estudios, carga, depresión, nivel de ansiedad, calidad de vida y soledad social. En los pacientes se valoró la edad, género, nivel de dependencia y estado neuropsicológico. La recogida de datos se realizó en 2016. Entre otros análisis se realizó análisis de regresión logística.Resultados: Se obtuvo que los cuidadores con estudios superiores sufrían mayor carga, siendo mujeres en su mayoría. Mujeres con más probabilidad de presentar soledad social, altos niveles de ansiedad y peor calidad de vida que los hombres. La carga puede ser debida al gran número de responsabilidades y a la imposibilidad de combinarlas con el papel de cuidador. Se puede concluir que las mujeres llegan a ser víctimas del cuidado de personas con Enfermedad de Alzheimer. The aim of this job is to know the existing relationship between the task of caring patients with Alzheimer's disease, caregivers' gender and their level of academic studies. Descriptive study, 69 persons diagnosed with Alzheimer’s disease and their respective familiar caregivers as subjects of the study. Age, gender, academic level, burden, depression, anxiety level, quality of life and social loneliness have been measured in caregivers. Age, gender, dependency level and neuropsychological state have been measured in patients. Data collection was done in 2016. Logistic regression analysis was performed. Caregivers with high levels of academic studies suffer more burden, being women in their majority. They are more likely to present social loneliness and higher levels of anxiety and a worse quality of life than men. The burden may be due to a greater number of responsibilities to respond to, and to the inability to combine it with the role of caregiver. We can conclude that women become victims of caring Alzheimer' patients.

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The association between medical diagnosis and caregiver burden: a cross-sectional study of recipients of informal support and caregivers from the general population study ‘Good Aging in Skåne’, Sweden

Cited by 37 publications

References 22 publications

Family caregiver's burden and the social support for older patients undergoing peritoneal dialysis

Family caregiver's burden and the social support for older patients undergoing peritoneal dialysis

Emotional Burden and Perceived Social Support in Male Partners of Women with Cancer

Women with high level of education, victims of the care of people with Alzheimer's

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