Importance-Sleep-disordered breathing (SDB) is prevalent and impacts physical and behavioral health of children. Adenotonsillectomy (AT), the primary treatment, is subject to unexplained variation in utilization which may be reduced by improving physician-patient communication and decision quality for this elective procedure.Objectives-We aimed to learn factors that influence parental experience and decision-making in pediatric SDB and AT surgery.Design-Parents of children with prior SDB evaluation participated in semi-structured interviews. Open-ended questions regarded experiences of having a child with SDB, communication with pediatric clinicians and surgeons, and experiences with AT surgery. Recordings were transcribed and analyzed for emergent themes using grounded theory methodology.Address correspondence to: Emily F Boss, MD, MPH (erudnic2@jhmi.edu), 601 N Caroline St., Baltimore MD. Phone: 410 955 9772. Fax: 410 955 0035. Author Contributions: Emily F Boss, MD, MPH: Dr. Boss conceptualized and designed the study, contributed to analysis, drafted the initial manuscript, revised the manuscript, and approved the final manuscript as submitted. Anne R Links, MS, MHS: Ms. Links carried out analysis and interpretation of the data, drafted the initial manuscript, revised the manuscript, and approved the final manuscript as submitted. Ron Saxton, MS: Mr. Saxton coordinated data collection, drafted the initial manuscript, and approved the final manuscript as submitted. Tina L Cheng, MD, MPH: Dr. Cheng contributed to the conception nd design of the study, revised the manuscript, and approved the final manuscript as submitted. Mary Catherine Beach, MD, MPH: Dr. Beach contributed to the conception and design of the study, revised the manuscript, and approved the final manuscript as submitted All authors approved the final manuscript as submitted and agree to be accountable for all aspects of the work.Financial Disclosure: Authors have no financial relationships relevant to this article to disclose.
Conflict of Interest:Authors have no conflicts of interest to disclose. There was no involvement by sponsors in design, data collection, analysis, drafting of the manuscript, or decision to submit for publication. No honorarium or payment was given to authors to produce this manuscript.Access to data: Dr. Boss and Ms. Links had full access to all the data in the study, and take responsibility for the integrity of the data and the accuracy of the data analysis.
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Author Manuscript Author Manuscript Author Manuscript Author ManuscriptSetting-Interviews were conducted at locations convenient for participants and separate from the pediatric clinic.Participants-Parents (N = 11) of children aged 2-17 who had previously been diagnosed or treated for SDB.Main Measures-Themes of parental experiences and treatment decision-making processes with pediatric SDB.Results-Overarching themes related to clinical factors of SDB/AT and clinician interpersonal behaviors/communication. Parents described an urgency that ...