The association between positive–negative reactions of informal caregivers of people with dementia and health outcomes in eight European countries: a cross‐sectional study

Alvira, M. Carme; Risco, Ester; Cabrera, Esther; Farré, Marta; Hallberg, Ingalill Rahm; Bleijlevens, Michel H. C.; Meyer, Gabriele; Koskenniemi, Jaana; Soto, María; Zabalegui, Adelaida

doi:10.1111/jan.12528

Cited by 63 publications

(58 citation statements)

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“…, Alvira et al . ). Several studies agree that it is important for informal and formal networks to complement each other in giving support to both caregivers and dependents and suggest a more specific orientation of the type of support depending on the social determinants of the caregivers and their care recipients and also on the particular types and duration of caring (Sorensen et al .…”

Section: Introductionmentioning

confidence: 97%

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Gender and socio‐economic inequalities in health and living conditions among co‐resident informal caregivers: a nationwide survey in Spain

Abajo

Rodríguez-Sanz²,

Malmusi³

et al. 2016

Journal of Advanced Nursing

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Section: Introductionmentioning

confidence: 97%

“…) and also find that caregiver burden is associated with lack of family support and health problems (Alvira et al . ).…”

Section: Introductionmentioning

confidence: 97%

Gender and socio‐economic inequalities in health and living conditions among co‐resident informal caregivers: a nationwide survey in Spain

Abajo

Rodríguez-Sanz²,

Malmusi³

et al. 2016

Journal of Advanced Nursing

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“…In dementia, the family, or on occasion friends or neighbours, assumes the role of main caregiver, taking responsibility for daily care of the PwD, meeting basic and instrumental daily life needs (Chiao, Wu, & Hsiao, ) and maintaining the patient in a good state of health. In Spain, the caregiver role is usually taken on by a family member (Alvira et al, ; Wimo et al, ). It is highly demanding care and provokes burden, particularly due to a lack of specific training and scant support from other family members (Bleijlevens et al, ; Chiao et al, ; Zabalegui, Navarro, et al, ).…”

Section: Introductionmentioning

confidence: 99%

Effectiveness of a psychoeducational intervention for caregivers of People With Dementia with regard to burden, anxiety and depression: A systematic review

Frías

Garcia‐Pascual

Montoro

et al. 2020

Journal of Advanced Nursing

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Aim To assess the effectiveness of psychoeducational interventions with respect to burden, anxiety and depression in family caregivers of People With Dementia living at home. Background In dementia, the family assumes the role of main caregiver, maintaining the patient in a good state of health. Nevertheless, burden, anxiety and depression may have negative repercussions in caregivers. Therefore, professional supports through psychoeducational programmes are recommended as interventions for improving caregivers' health. Design A quantitative systematic review. Data Sources Electronic searches were performed in CINAHL/AMED/CENTRAL/Web of Science/LILACS/PUBMED from January 2005–August 2018. Review Methods The review was conducted using the JADAD scale to assess bias risk and the quality of the randomized controlled trials (RCTs) and the CONSORT instrument to assess study quality report. The extracted data were reviewed by independent reviewer pairs. The review was reported using PRISMA. Results A total of 18 RCTs met inclusion criteria. Seven were classified as Technology‐based Interventions and 11 as Group‐based Interventions. Conclusion Psychoeducational interventions for caregivers allow them to increase their knowledge of the illness, develop problem‐solving skills and facilitate social support. Technology‐based Interventions significantly affect burden while Group‐based Interventions affect anxiety, depression, insomnia and burden and quality of life and self‐efficacy. Impact Research findings can be used to classify caregivers in future interventions according to illness stage to obtain more precise results.

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“…Previous research has been dedicated to family caregiving of people living with dementia, with a special focus on the correlation between caregiver burden and health outcomes , as well as between caregiver burden and their old relative's residential home placement . There has also been a research interest in the correlation between patient participation in relation to caregiver participation in dementia care .…”

Section: Introductionmentioning

confidence: 99%

Dignity as a guiding principle for family care partners in the care of an old relative with dementia

Söderberg

Ståhl

Emilsson

2019

Scandinavian Caring Sciences

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Aim There is a growing number of older people (65+) with dementia, and many family care partners are involved in making help‐seeking choices. The aim of this study was to reveal how family care partners with an old relative with dementia proceed in the name of dignity in their desire to secure the best care possible while still maintaining their own dignity. Methods Data were collected in 2009–2010 in open semi‐structured interviews and follow‐up contacts with seven family care partners with an old relative with dementia on 14 occasions. From this collected data and for this study, a design based on patterns labelled archetypes was chosen to permit an in‐depth data analysis. Results In the analysis, three archetypes emerged, emanating from three specific family care partners. A prominent feature in the findings was that the dignity of an old relative with dementia was hard to separate from the dignity as a family care partner, which gave rise to their need to express accounts in terms of excuses and justifications. Conclusion This study provides an important insight into the connection between different elements of dignity and it contributes to explain the complexity behind family care partners’ decisions in the care of an old relative with dementia. This multifaceted meaning of dignity needs more attention for a better understanding and thereby implementation in practice and in the follow‐up of policy for older people.

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The association between positive–negative reactions of informal caregivers of people with dementia and health outcomes in eight European countries: a cross‐sectional study

Abstract: Study results support links between the reactions of informal caregivers of people with dementia and health outcomes. These may have implications in terms of how services are addressed.

Cited by 63 publications

References 53 publications

Gender and socio‐economic inequalities in health and living conditions among co‐resident informal caregivers: a nationwide survey in Spain

Gender and socio‐economic inequalities in health and living conditions among co‐resident informal caregivers: a nationwide survey in Spain

Effectiveness of a psychoeducational intervention for caregivers of People With Dementia with regard to burden, anxiety and depression: A systematic review

Dignity as a guiding principle for family care partners in the care of an old relative with dementia

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