The awareness, visibility and support for young carers across Europe: a Delphi study

Abstract

Background Across Europe there is limited attention paid in media, policy and empirical research to the situation of young carers (YCs) and their needs for support, while similarly to adult carers, they provide care to ill family members. The Delphi study, a qualitative research methodology, which provides the focus for this article, had the overall aim of exploring existing successful strategies to support YCs. Compared to YCs, even less is known about AYCs (Adolescent Young Carers), a group that is in a critical life transition phase. The study forms part of an EU Horizon 2020 funded research project on AYCs aged 15-17 years. MethodsA two-round Delphi study was conducted with 66 experts on YCs from 10 European countries. Topics included: (1) visibility and awareness raising of YCs at local, regional, and national levels, (2) current interventions to support YCs, and (3) future strategies to support YCs. ResultsExperts reported that there is a lack of visibility and awareness about YCs in general and AYCs in particular. Although awareness is slowly increasing in most countries, with the UK ranked highest, experts acknowledged that it remains challenging to identify YCs in many countries. Furthermore, the level and type of support available for YCs differs, with most countries mainly offering support on a local level. Diverse views were expressed regarding future strategies to support YCs. Experts highlighted the importance of specific legislation to formalize the rights of YCs, and the issue of whether young people should be safeguarded from caregiving or if this is part of regular family life. They also emphasised the relevance of available integrated support services for YCs, including schools, family, health and social care.Conclusion(s) with key messageIn most European countries, there is a lack of awareness and visibility on YCs. Identification of YCs is a crucial first step and a common definition of YCs is called for, together with greater opportunities for young adults to identify themselves as YCs.StatementIdentification alone is not sufficient, rather recognition of YCs by society is needed combined with the necessary resources to ensure integrated YC friendly support services.