The balance of give and take in caregiver–partner relationships: An examination of self-perceived burden, relationship equity, and quality of life from the perspective of care recipients following stroke.

McPherson, Christine; Wilson, Keith G.; Chyurlia, Livia; Leclerc, C.

doi:10.1037/a0019359

Cited by 114 publications

(122 citation statements)

References 61 publications

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“…Todavia, se o cuidador possuir um ajustamento conjugal elevado, mais intensa é a relação negativa entre a depressão e as dimensões física e psicológica da qualidade de vida do que quando o ajustamento conjugal é baixo. McPherson et al (2010) referem a motivação intrínseca do cuidador como redutora da sua angústia psicológica, em relação à sua motivação extrínseca, incentivada pela família e sociedade. Podemos especular que, no caso de um bom ajustamento conjugal, o cuidador tem o apoio do parceiro(a) em relação à função de cuidar, podendo, desta forma, advir maior motivação intrínseca por parte do cuidador e, neste caso, a depressão poderá conduzir a um elevado stress psicológico que se repercute de forma mais evidente na qualidade de vida (Ciechanowski, Katon & Russo, 2000).…”

Section: Discussionunclassified

“…Wolff e Kasper (2006) verificaram que 41,3% dos cuidadores de idosos dependentes são filhos adultos e 38,4% são cônjuges. Cônjuges cuidadores relatam mais sintomas de depressão, maior sobrecarga financeira e física e menor qualidade de vida psicológica (McPherson, Wilson, Chyurlia, & Leclerc, 2010). As repercussões de uma dependência interferem com diversos domínios da qualidade de vida (QV) do idoso e família (Martins, 2004).…”

Section: Introductionunclassified

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Qualidade vida, sobrecarga, suporte social, ajustamento conjugal e morbidade psicológica em cuidadores de idosos com dependência funcional

Pereira¹,

Carvalho²

2012

Temas Psicol.

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ResumoMudanças recentes ao nível dos serviços de saúde resultaram em internamentos mais curtos nos hospitais e na procura de substitutos para cuidar dos doentes, levando a que as famílias assumissem frequentemente esses cuidados. Quality of life, burden, social support, marital adjustment and psychological morbidity in caregivers of elders with functional dependence AbstractChanges in medical practice resulted in shorter hospitalization and in the search for substitute caregivers leading families to assume care. Family members who become caregivers need to deal with changes in their lives on several levels, particularly when caregiving falls upon a dependent family member. This study focused on the implications of caregiving on burden, life activities, quality of life, satisfaction with social support, dyadic adjustment, depression and anxiety. 109 informal caregivers of functionally dependent elders participated in the study. The instruments used were: Barthel Index, Zarit Burden Interview, WHOQOL-BREF, Satisfaction with Social Support Scale, Revised Dyadic Adjustment Scale, Beck Depression Inventory and State Trait Anxiety Inventory. The results revealed that quality of life was inversely related with burden and psychological morbidity and positively with satisfaction with friends. Burden and quality of life were correlated with social support. In turn, marital adjustment was found to be a moderator in the relationship between depression and quality of life (physical and psychological dimensions) but not between burden and quality of life. Caregivers that were partners of those they cared for showed lower quality of life and adult children caregivers

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Section: Discussionunclassified

Section: Introductionunclassified

Qualidade vida, sobrecarga, suporte social, ajustamento conjugal e morbidade psicológica em cuidadores de idosos com dependência funcional

Pereira¹,

Carvalho²

2012

Temas Psicol.

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“…An SPBS cutoff score of ≥20 was established in a validation study to distinguish between advanced cancer patients with high or low SPB [30]. This cutoff score has been used in other studies [18,31].…”

Section: Independent Variablesmentioning

confidence: 99%

“…Although adequate social support is recognized as a valuable resource for buffering stress and loss [16], dying cancer patients may have a more complex reaction. Those who receive care may feel that they are creating physical, emotional, social, and economic hardships on their family without opportunities to restore the balance between receiving and giving help, thereby increasing self-perceived burden to others (SPB) [17,18] and precipitating depressive mood [17][18][19][20].…”

Section: Introductionmentioning

confidence: 99%

Prevalence of severe depressive symptoms increases as death approaches and is associated with disease burden, tangible social support, and high self-perceived burden to others

Tang

Chen

Chou

et al. 2015

Support Care Cancer

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Prevalence of severe depressive symptoms increased as death approached and was associated with several modifiable factors. Healthcare professionals should become familiar with these factors to identify vulnerable patients. To decrease the likelihood of terminally ill cancer patients' severe depressive symptoms, they should receive effective interventions to manage their symptoms, appropriately foster social support to restore their fragile self-esteem due to depending on others, and lighten their SPB.

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“…This belief has been termed self-perceived burden, and it has been defined as "a multidimensional construct arising from care recipients' feelings of dependence and the resulting frustration and worry, which then lead to feelings of guilt at being responsible for the caregiver's hardship" (p. 111). 1 The prevalence of a problematic sense of self-perceived burden is quite high in some medical populations, ranging from 26% to 65% among patients receiving palliative care for cancer, [2][3][4][5][6] 65% to 70% among stroke survivors, 7,8 and over 70% among patients entering treatment for chronic nonmalignant pain. 9 Self-perceived burden has been correlated with measures of pain, disability, and depression in different patient groups.…”

Section: Introductionmentioning

confidence: 99%

Self-perceived burden, perceived burdensomeness, and suicidal ideation in patients with chronic pain

Wilson

Kowal

Caird

et al. 2017

Canadian Journal of Pain

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Background: Self-perceived burden and perceived burdensomeness are two apparently related constructs that have arisen independently from research in physical and mental health, respectively. Although both are associated with suicidal ideation in individuals with chronic pain, they have yet to be examined concurrently in the same group of patients. Aims: The aim of this study was to investigate the relationship between the two constructs and their differential prediction of suicidal ideation. Methods: Participants were 260 outpatients of an interdisciplinary chronic pain treatment program. Each participant completed the Self-Perceived Burden Scale (SPBS), the Interpersonal Needs Questionnaire Perceived Burdensomeness Scale (INQPBS), the Beck Scale for Suicide Ideation, and the thoughts of self-harm item of the Patient Health Questionnaire-9. Results: The SPBS and the INQPBS were both unifactorial measures with good internal consistency. They correlated significantly with one another (r = 0.50, P < 0.001), as well as with scores on the two measures of suicidal ideation (rs ranging from 0.29 to 0.62, Ps < 0.001). However, the INQPBS correlated more highly with suicidal ideation than did the SPBS. In regression analyses, the INQPBS predicted unique variance in suicidal ideation after adjusting for the SPBS. Conversely, the SPBS did not contribute uniquely when the INQPBS was entered first. Conclusions: Patients with chronic pain who believe that they have become "a burden to others" are at increased risk for suicidal ideation. The conceptual similarities and differences between the constructs of self-perceived burden and perceived burdensomeness are reviewed to explain why perceived burdensomeness is the stronger predictor of this increased risk.

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The balance of give and take in caregiver–partner relationships: An examination of self-perceived burden, relationship equity, and quality of life from the perspective of care recipients following stroke.

Abstract: For some receiving care from a partner after stroke is associated SPB. This sense of burden is related to changes in help-seeking behavior, quality of life, and distress.

Cited by 114 publications

References 61 publications

Qualidade vida, sobrecarga, suporte social, ajustamento conjugal e morbidade psicológica em cuidadores de idosos com dependência funcional

Qualidade vida, sobrecarga, suporte social, ajustamento conjugal e morbidade psicológica em cuidadores de idosos com dependência funcional

Prevalence of severe depressive symptoms increases as death approaches and is associated with disease burden, tangible social support, and high self-perceived burden to others

Self-perceived burden, perceived burdensomeness, and suicidal ideation in patients with chronic pain

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