Background: Despite Ghana's Persons with Disability Act, 2006 (Act 715) making provisions for access to healthcare services for Children with Disabilities and their families, corpus of literature has reported that persons with disabilities continue to face challenges in accessing the healthcare services. However, the voices of children with disabilities and their families are very scare in such discourse. This study explored the experiences of children with disabilities and their families in accessing healthcare services as per the provisions described in Ghana’s Act 715. The study attempted to connect legal provisions to experiences of families and children in accessing healthcare.
Methods: This qualitative study involved 45 participants, including 25 children with disabilities and 20 family members from a municipality in Ghana. Employing a phenomenological design, semi-structured interviews were conducted which was then analyzed thematically and interpreted using Critical Disability Theory.
Results: The study identified two major categories of barriers to healthcare access: environmental (socio-economic difficulties, poor built environment, unavailability of rehabilitation services) and systemic (cultural beliefs, poor support at healthcare facilities and inadequate healthcare legislative provisions for families of children with disabilities). Despite legal provisions for free healthcare, participants faced significant financial barriers, with specialist services often not covered by the National Health Insurance Scheme. Poor infrastructure and cultural beliefs also impeded access, while healthcare workers' indifferent attitudes and disrespect further compounded these challenges.
Conclusions: The study reinforces the principles of Critical Disability Theory, emphasizing the importance of upholding individual rights, echoing marginalized voices, appreciating diversity, and fostering independence in healthcare access. The study further calls for policy adjustments to fully cover specialist care under Ghana's National Health Insurance Scheme, establishment of district-level health assessment and resource centers, educational campaigns to change cultural perceptions, and training of healthcare workers to promote quality access to healthcare.