The best possible start: A qualitative study on the experiences of parents of young children with or at risk for fetal alcohol spectrum disorders

Pruner, Misty; Jirikowic, Tracy; Yorkston, Kathryn M.; Olson, Heather Carmichael

doi:10.1016/j.ridd.2019.103558

Cited by 12 publications

(12 citation statements)

References 29 publications

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“…Despite this, the interactions between parents were very lively. As with other research among parents [23,57,58], most participants were women, and thus it reflects the mothers' points of view. (4) Some FGs were performed after holiday periods (Holy Week), which would increase the number of adolescents who reported BD, but we tried to increase the number of groups in other periods, to cushion this effect.…”

Section: Limitations and Strengthssupporting

confidence: 55%

Why are Spanish Adolescents Binge Drinkers? Focus Group with Adolescents and Parents

Martínez-Montilla

Mercken

Lima‐Serrano

et al. 2020

IJERPH

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Binge drinking in adolescents is a worldwide public healthcare problem. The aim of this study was to explore the perceptions about determinants of binge drinking in Spanish adolescents from the perspective of adolescents and parents. A qualitative study using fourteen semi-structured focus groups of adolescents was conducted during the 2014/2015 school year (n = 94), and four with parents (n = 19), based on the I-Change Model for health behaviour acquisition. Students had a low level of knowledge and risk perception and limited self-efficacy. Girls reported more parental control, and when they get drunk, society perceives them worse. Adolescents suggested focus preventive actions to improve self-efficacy and self-esteem. Parents were permissive about alcohol drinking but rejected binge drinking. They offered alcohol to their children, mainly during celebrations. A permissive family environment, lack of control by parents, adolescents’ low-risk perception, low self-esteem and self-efficacy, as well as the increase of binge drinking in girls as part of the reduction of the gender gap, emerge as risk factors for binge drinking. Future health programmes aimed at reducing binge drinking should focus on enhancing motivational factors, self-esteem, and self-efficacy in adolescents; supervision and parental control; as well as pre-motivational factors by increasing knowledge and risk awareness, considering gender differences.

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Section: Limitations and Strengthssupporting

confidence: 55%

Why are Spanish Adolescents Binge Drinkers? Focus Group with Adolescents and Parents

Martínez-Montilla

Mercken

Lima‐Serrano

et al. 2020

IJERPH

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“…Despite this, the interactions between parents were very lively. As with other research among parents (Jander et al, 2013;Seay, Iachini, DeHart, Browne & Clone, 2017;Pruner, Jirikowic, Yorkston & Olson, 2020), most participants were women, and thus it reflects the mothers' points of view. (4) Some FGs were performed after holiday periods (Holy Week), which would increase the number of adolescents who reported BD, but we tried to increase the number of groups in other periods, to cushion this effect.…”

Section: Limitations and Strengthssupporting

confidence: 55%

Alerta Alcohol

Montilla

Manuel²

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People interested in the research are advised to contact the author for the final version of the publication, or visit the DOI to the publisher's website. • The final author version and the galley proof are versions of the publication after peer review. • The final published version features the final layout of the paper including the volume, issue and page numbers. Link to publication General rights Copyright and moral rights for the publications made accessible in the public portal are retained by the authors and/or other copyright owners and it is a condition of accessing publications that users recognise and abide by the legal requirements associated with these rights. • Users may download and print one copy of any publication from the public portal for the purpose of private study or research. • You may not further distribute the material or use it for any profit-making activity or commercial gain • You may freely distribute the URL identifying the publication in the public portal. If the publication is distributed under the terms of Article 25fa of the Dutch Copyright Act, indicated by the "Taverne" license above, please follow below link for the End User Agreement:

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“…We anticipate that this methodology will be helpful in identifying those with neurodevelopmental delay associated with prenatal alcohol exposure, but more importantly, we recognize this methodology may also identify potential neurodevelopmental delay resulting from other etiologies that also impact prefrontal cortical responses related to encoding environmental events. The main goal of using this system is to improve early identification of those with neurodevelopment delay so that habilitative care can be initiated as early as possible [ 10 ]. Children with neurodevelopmental compromise have been shown to benefit from early interventions, such as cognitive stimulation and speech, occupational therapies, and physical therapies, that can prevent a cascade of secondary adaptive skill deficits [ 11 ].…”

Section: Resultsmentioning

confidence: 99%

Wireless Heart Sensor for Capturing Cardiac Orienting Response for Prediction of Neurodevelopmental Delay in Infants

Aguilar‐Rivera

Kable

Yevtushok

et al. 2022

Sensors

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Early identification of infants at risk of neurodevelopmental delay is an essential public health aim. Such a diagnosis allows early interventions for infants that maximally take advantage of the neural plasticity in the developing brain. Using standardized physiological developmental tests, such as the assessment of neurophysiological response to environmental events using cardiac orienting responses (CORs), is a promising and effective approach for early recognition of neurodevelopmental delay. Previous CORs have been collected on children using large bulky equipment that would not be feasible for widespread screening in routine clinical visits. We developed a portable wireless electrocardiogram (ECG) system along with a custom application for IOS tablets that, in tandem, can extract CORs with sufficient physiologic and timing accuracy to reflect the well-characterized ECG response to both auditory and visual stimuli. The sensor described here serves as an initial step in determining the extent to which COR tools are cost-effective for the early screening of children to determine who is at risk of developing neurocognitive deficits and may benefit from early interventions. We demonstrated that our approach, based on a wireless heartbeat sensor system and a custom mobile application for stimulus display and data recording, is sufficient to capture CORs from infants. The COR monitoring approach described here with mobile technology is an example of a desired standardized physiologic assessment that is a cost-and-time efficient, scalable method for early recognition of neurodevelopmental delay.

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The best possible start: A qualitative study on the experiences of parents of young children with or at risk for fetal alcohol spectrum disorders

Cited by 12 publications

References 29 publications

Why are Spanish Adolescents Binge Drinkers? Focus Group with Adolescents and Parents

Why are Spanish Adolescents Binge Drinkers? Focus Group with Adolescents and Parents

Alerta Alcohol

Wireless Heart Sensor for Capturing Cardiac Orienting Response for Prediction of Neurodevelopmental Delay in Infants

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