The biographical impact of teenage and adolescent cancer

Grinyer, Anne

doi:10.1177/1742395307085335

Cited by 116 publications

(146 citation statements)

References 13 publications

(11 reference statements)

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“…This is because social forces often obscure and mute their suffering. Stage of life and timing of the illness during the life course has also been found to influence the extent to which an individual experiences illness as biographical disruption (Grinyer, 2007;Wilson, 2007). Thus, these challenges and qualifications suggest that universal prescriptions of chronic illness as biographical disruption cannot be justified.…”

Section: The Importance Of Contextmentioning

confidence: 99%

Disrupted lives and threats to identity: The experiences of people with colorectal cancer within the first year following diagnosis

Hubbard¹,

Kidd²,

Kearney³

2010

Health (London)

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Fax: +44(0)1786 460060 Word count 7853Dr Gill Hubbard is a senior research fellow who leads the 'Cancer as a long-term condition' research programme at CCRC. She has a background in sociology and social policy.Dr Lisa Kidd is a research fellow at CCRC. She has a background in nursing and has recently been awarded a Doctor of Philosophy for a study of perceived control and involvement in self care for people with cancer.Professor Nora Kearney is Director of CCRC. She has a background in nursing and an extensive track record in cancer care research, in particular, in symptom improvement and patient experiences. 1 Disrupted lives and threats to identity: The experiences of people with colorectal cancer within the first year following diagnosis AbstractIn this paper we focus on the experiences of 18 people with colorectal cancer, involved in a large longitudinal qualitative study to explore people's experiences of cancer within the first year following diagnosis. Three depth interviews over the course of the year were carried out.During analysis, we drew on biographically informed approaches of understanding chronic illness, particularly the work of Bury (1982;2001;1991) and Charmaz (1994;1983;1995;2002) to explore the extent to which people within the first year following diagnosis experience cancer as biographically disruptive. We explore the biographical work that individuals carry out in the context of an assault on their identity and discuss the relevance of the concept biographical disruption for people who experience cancer as an acute, chronic and/or life-threatening condition. We also discuss the concept's relevance for people who have lived a hard life and, hence, may anticipate these types of disruptions in their lives and experience their impact differently. We conclude that universal application of the concept biographical disruption to the experience of cancer within the first year of diagnosis is not appropriate. This study has implications for cancer services, in particular, the findings call for the development of interventions to support those people who experience cancer as an assault on their identity.

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Section: The Importance Of Contextmentioning

confidence: 99%

Disrupted lives and threats to identity: The experiences of people with colorectal cancer within the first year following diagnosis

Hubbard¹,

Kidd²,

Kearney³

2010

Health (London)

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“…However, few studies have explored patients' perceptions of wellness post-transplant and how these perceptions may change over time. Patient narratives are considered to offer a powerful tool for understanding biomedical reality in terms of illness experience and its social and cultural context (1)(2)(3)(4)(5). The specificities of kidney transplantation pose something of a problem for a narrative approach to analyzing patients' experiences after the transplant.…”

Section: Transplant Patients Introductionmentioning

confidence: 99%

Working to establish ‘normality’ post-transplant: A qualitative study of kidney transplant patients

Boaz

Morgan

2013

Chronic Illness

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Objectives: To explore patients' perceptions and experiences of 'normality' and the influences on this at three time points post-transplant.Methods: In-depth interviews with 25 patients at three months, one year and more than three years following kidney transplant. Patients' accounts were compared with Sanderson et al's typology of types of normality.Findings: Post transplant, patients worked hard to re-establish normality, albeit in a 'reset' form. This normality was a very personal construct, shaped by a wide range of factors including age, gender and personal circumstances. Some patients encountered significant challenges in regaining normality, both at three months for those experiencing acute and distressing side effects, and later relating to the long term side effects of transplant medication and co-morbidities. However, the most dramatic threat to normality (disrupted normality) came from episodes of rejection and transplant failure.Conclusions: The main forms of normality achieved varies for different conditions. Moreover despite improvements in health post-transplant and opportunities to build a new, reset normality, the participants recognised the need to pay careful attention to the spectre of future ill health and transplant failure. Transplant failure was therefore a source of disruption that was central to their illness narratives and perceived as an ever present risk

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“…A recent systematic review on this subject subdivides adolescents and young adults into three groups based on social needs. 45 The review found that mid-adolescents (15-17 years old) are principally coping with the physical changes of puberty and the formation of a social identity, 46 whereas emerging adults (18-25 years old) are often in the process of leaving their childhood home, obtaining higher education, and establishing social connections independent from childhood.…”

Section: Psychosocial Effectsmentioning

confidence: 99%

“…48 This may be associated with specific treatment side effects such as alopecia. 46 Any cognitive problems related to treatment may also hinder acquisition of social skills and lead to further problems with self esteem. 49 …”

Section: Social Effectsmentioning

confidence: 99%

Anticancer chemotherapy in teenagers and young adults: managing long term side effects

Ahmad

Reinius

Hatcher

et al. 2016

BMJ

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The biographical impact of teenage and adolescent cancer

Cited by 116 publications

References 13 publications

Disrupted lives and threats to identity: The experiences of people with colorectal cancer within the first year following diagnosis

Disrupted lives and threats to identity: The experiences of people with colorectal cancer within the first year following diagnosis

Working to establish ‘normality’ post-transplant: A qualitative study of kidney transplant patients

Anticancer chemotherapy in teenagers and young adults: managing long term side effects

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