The biopsychosocial model and quality of life in persons with active epilepsy

Elliott, John O.; Richardson, Virginia

doi:10.1016/j.yebeh.2014.09.035

Cited by 48 publications

(41 citation statements)

References 245 publications

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“…While the accounts are in line with the notion that both epilepsy and PNES are biopsychosocial disorders associated with significant effects on social, psychological and emotional functioning (Elliott & Richardson, 2014;Reuber, 2009), there was great variation in how the two groups presented themselves as living with and managing their condition.…”

Section: Discussionmentioning

confidence: 54%

Written Accounts of Living With Epilepsy or Psychogenic Nonepileptic Seizures: A Thematic Comparison

et al. 2018

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This study examines the subjective experience of living with epilepsy or psychogenic nonepileptic seizures (PNES) by thematically comparing individuals' written accounts of their condition. Five key differences emerged. Theme 1: 'Seizure onset' revealed differences in how individuals think about and ruminate over the possible causes of their condition. Theme 2: 'Emotive tone' demonstrated that writings of those with epilepsy reflected stable emotions (no intense emotional reactions) whereas those of writers with PNES reflected anxiety and low mood. Theme 3:

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Section: Discussionmentioning

confidence: 54%

Written Accounts of Living With Epilepsy or Psychogenic Nonepileptic Seizures: A Thematic Comparison

et al. 2018

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“…Screening for depression has been recommended [19, 20] but is still not routine. In epilepsy with persistent seizures, anxiety symptoms are even more common, and this is another diagnostic gap [37].…”

Section: Discussionmentioning

confidence: 99%

Characteristics associated with quality of life among people with drug-resistant epilepsy

Ridsdale¹,

Wojewodka²,

Robinson

et al. 2017

J Neurol

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Quality of Life (QoL) is the preferred outcome in non-pharmacological trials, but there is little UK population evidence of QoL in epilepsy. In advance of evaluating an epilepsy self-management course we aimed to describe, among UK participants, what clinical and psycho-social characteristics are associated with QoL. We recruited 404 adults attending specialist clinics, with at least two seizures in the prior year and measured their self-reported seizure frequency, co-morbidity, psychological distress, social characteristics, including self-mastery and stigma, and epilepsy-specific QoL (QOLIE-31-P). Mean age was 42 years, 54% were female, and 75% white. Median time since diagnosis was 18 years, and 69% experienced ≥10 seizures in the prior year. Nearly half (46%) reported additional medical or psychiatric conditions, 54% reported current anxiety and 28% reported current depression symptoms at borderline or case level, with 63% reporting felt stigma. While a maximum QOLIE-31-P score is 100, participants’ mean score was 66, with a wide range (25–99). In order of large to small magnitude: depression, low self-mastery, anxiety, felt stigma, a history of medical and psychiatric comorbidity, low self-reported medication adherence, and greater seizure frequency were associated with low QOLIE-31-P scores. Despite specialist care, UK people with epilepsy and persistent seizures experience low QoL. If QoL is the main outcome in epilepsy trials, developing and evaluating ways to reduce psychological and social disadvantage are likely to be of primary importance. Educational courses may not change QoL, but be one component supporting self-management for people with long-term conditions, like epilepsy.

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“…Embora a qualidade de vida seja uma noção subjetiva do grau de satisfação encontrada na vida familiar, amorosa, social e cultural, independente da idade e do nível socioeconômico (13) , alguns estudos relacionam baixos níveis de qualidade de vida com fatores, como sexo feminino, idade avançada, baixo nível de escolaridade e estar solteira ou não ter companheiro (14)(15)(16) , corroborando o perfil dos idosos estudados. A maior prevalência de idosos do sexo feminino, observada neste estudo, é justificada pelo fato de as mulheres apresentarem maior expectativa de vida no Brasil.…”

Section: Discussionunclassified

Qualidade De Vida De Idosos Em Uma Instituição De Longa Permanência

Miyamoto¹,

Cabrera²,

Esteves³

et al. 2016

ACS

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Conflito de interesses:Não Contribuição dos autores: AYM obtenção, análise/interpretação dos dados e redação do manuscrito. EMSC redação e revisão crítica. ME coleta de dados, redação e revisão crítica. LGL concepção do projeto, análise/interpretação dos dados, redação e revisão crítica do manuscrito. Contato para correspondência: Luciano Garcia Lourenção. E-mail: luciano.famerp@gmail. This is s a cross-sectional study performed with 18 elderly living at Lar de BetaniaSão José do Rio Preto. Data were collected from July to August of 2011, using the WHOQOL-OLD, an instrument of the World Health Organization (WHO) to evaluate the quality of life of elderly people. Calculation of scores was carried out according to the WHOQOL Group, using the software SPSS, version 17.1. Results: The general quality of life of this population has changed from 57.00 to 99.00 (79.94 ±12.14). In relation to the WHOQOL-OLD domains, it was found that the elderly showed impairment of Intimacy, Autonomy, and Social Participation. Mean scores were 42.36 ± 25.23, 50.34 ± 16.53, and 60.06 ± 18.58, respectively. The best scores of the quality of life were observed in sensory function (68.05 -DP: ± 23.76), death and dying (65.27 -DP: ± 22.50) and past-present-future activities (63.54 -DP: ± 16.07). Conclusion: The studied elderly showed that they were committed with the quality of life related to aspects of intimacy, autonomy, and social participation. We observed a better quality of life for the aged regarding the functioning of the psychomotor performance, Death, and Dying, as well as in past-present-future activities.The results indicate the need of a general restructuring of both the service and the training of caregivers.

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The biopsychosocial model and quality of life in persons with active epilepsy

Cited by 48 publications

References 245 publications

Written Accounts of Living With Epilepsy or Psychogenic Nonepileptic Seizures: A Thematic Comparison

Written Accounts of Living With Epilepsy or Psychogenic Nonepileptic Seizures: A Thematic Comparison

Characteristics associated with quality of life among people with drug-resistant epilepsy

Qualidade De Vida De Idosos Em Uma Instituição De Longa Permanência

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