The burden of caring for people with dementia at the end of life in nursing homes: a postdeath study among nursing staff

Albers, Gwenda; Block, Lieve Van den; Stichele, Robert Vander

doi:10.1111/opn.12050

Cited by 23 publications

(19 citation statements)

References 48 publications

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“…Response rate is lower than previous studies regarding end-of-life care conducted in long-term care settings in other countries (Albers, van den Block, & van der Stichele, 2014;Rys, Mortier, Deliens, & Bilsen, 2014), but not in Spain.…”

Section: Study Limitationscontrasting

confidence: 72%

End of life care in nursing homes in Spain: Exploratory analysis and evidences of validity of a new scale

Sánchez-García

Gutiérrez-Romero

Fernández‐Alcántara

et al. 2017

Applied Nursing Research

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In this study, the objective was to develop an instrument to assess quality of end-of-life care in the context of Spanish care homes. A 24 item scale Nursing Home End of Life Care Scale (NHEOLC) was developed through a systematic evaluation of existing tools combined with an iterative process of consultation with group experts in end of life care in long term care settings. A total of 307 health care professionals agreed to participate in the study and completed the scale. The scale was grouped in six dimensions: physical, psychological aspects and spiritual aspects of care, family care, bereavement, and patient/family preferences management. The results suggest an adequate factorial structure of the scale and good internal consistency for the total score and the subscales. In addition, the results showed significant differences depending on the size of the nursing home, the category of health professionals, and their own perceptions of his work regarding end-of-life care.Keywords: quality of end-of life; nursing homes; instrument; palliative care; health professionals.

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Section: Study Limitationscontrasting

confidence: 72%

End of life care in nursing homes in Spain: Exploratory analysis and evidences of validity of a new scale

Sánchez-García

Gutiérrez-Romero

Fernández‐Alcántara

et al. 2017

Applied Nursing Research

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“…As burnout and caregiver burden are associated with negative experiences for both the staff and residents in care homes (Moniz-Cook et al, 1997), targeting and reducing caregiver burden should be a priority (Åström et al, 1991). However, the prevalence of burden is yet to be established (Albers et al, 2014). This is particularly relevant as high levels of caregiver burden may have an impact on staff turnover, which in turn has a negative impact on the The Prospective Role 4 quality of care provided (Castle & Engberg, 2005).…”

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confidence: 99%

The prospective role of defeat and entrapment in caregiver burden and depression amongst formal caregivers

Griffiths

Wood

Tai

2018

Personality and Individual Differences

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“…Caregiver burden in nursing professionals who work in long-term care facilities is often associated with compassion fatigue, burnout, moral, and psychological distress [4][5][6]. Music therapists are equipped with therapeutic tools that may assist in making caregiving tasks easier.…”

Section: Introductionmentioning

confidence: 99%

Caring for Individuals with Dementia on a Continuum: An Interdisciplinary Approach Between Music Therapy and Nursing

Ray¹,

Dassa²,

Maier³

et al. 2016

Update on Dementia

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Background: Music has long been used to ease symptoms of dementia. Several studies have shown the therapeutic benefits of music therapy to decrease symptoms of agitation in people with dementia (PWD). Other research has demonstrated that the use of music during caregiving can ease agitated behaviors. However, few studies have shown the clinical benefits of using translational research in practice between music therapists and certified nursing assistants. Introduction: We recruited 28 nursing home residents who were diagnosed with moderate to severe dementia to determine the effects of music therapy and music in aid of caregiving on symptoms of agitation. Methods: Participants were evaluated for agitation, then baseline assessments were completed 2 weeks apart. After the 2-week music therapy intervention, participants were evaluated immediately, 2 weeks post music therapy, and immediately following music in aid of caregiving. Results: A repeated measures analysis of variance (ANOVA) found that after 2 weeks of music therapy, agitation was significantly reduced and symptoms continued to decline following music in aid of caregiving. Conclusion: Results suggest that consideration for interdisciplinary use of music therapy and music in aid of caregiving should be considered to reduce and sustain symptoms of agitation in nursing home residents with dementia.

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The burden of caring for people with dementia at the end of life in nursing homes: a postdeath study among nursing staff

Abstract: This study highlights the need to support nursing home staff in providing compassionate end-of-life care for people with dementia and suggests that both the physical and emotional burdens in staff should be monitored regularly to achieve optimal working.

Cited by 23 publications

References 48 publications

End of life care in nursing homes in Spain: Exploratory analysis and evidences of validity of a new scale

End of life care in nursing homes in Spain: Exploratory analysis and evidences of validity of a new scale

The prospective role of defeat and entrapment in caregiver burden and depression amongst formal caregivers

Caring for Individuals with Dementia on a Continuum: An Interdisciplinary Approach Between Music Therapy and Nursing

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