The burden of filial piety: A qualitative study on caregiving motivations amongst family caregivers of patients with cancer in Singapore

Ng, Hui Ying; Griva, Konstadina; Lim, Haikel A.; Tan, Jinsong; Mahendran, Rathi

doi:10.1080/08870446.2016.1204450

Cited by 90 publications

(111 citation statements)

References 40 publications

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“…All studies included here lent insight to the situational demands that influenced adult caregivers' motivation for providing care to a friend or relative with a long‐term illness. Most of the studies had investigated caregivers' quality of motivation and classified it according to different constructs in SDT such as intrinsic motivation, identified motivation, introjected motivation, external motivation and amotivation . In these studies, SDT terminology has been used to identify, measure, classify, categorise or describe caregivers' quality of motivation.…”

Section: Resultsmentioning

confidence: 99%

“…helping because you enjoy/value this behaviour and experience volition and choice), or controlled motivation, understood as extrinsic motivation (i.e. helping because you believe you should) . One qualitative study reported that in real life, the constructs and categories of motivation are more ambiguous than, and not as easy to identify as, in the theory .…”

Section: Resultsmentioning

confidence: 99%

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Understanding informal caregivers' motivation from the perspective of self‐determination theory: an integrative review

Dombestein

Norheim

Husebø

2019

Scandinavian Caring Sciences

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Scand J Caring Sci; 2020; 34: 267-279. Dombestein H, Norheim A, Lunde Husebø AM.Understanding informal caregivers' motivation from the perspective of self-determination theory: an integrative review.Background: A long-term illness is stressful both for the person with the diagnosis and for his or her informal caregivers. Many people willingly assume the caregiving role, so it is important to understand why they stay in this role and how their motivation affects their health. Self-determination theory (SDT) is a theory of human motivation that has been successfully applied in human research domains. To our knowledge, there is no literature review on the application of SDT in a caregiver context. A systematic review of the literature could improve the understanding of motivation in caregiver work and contribute to the utility of SDT. Aim: To describe and explore empirical studies of caregivers' motivation from the perspective of self-determination theory. Methods: An integrative literature review according to Whittemore and Knafl was conducted with systematic repetitive searches in the MEDLINE, Scopus, PsychInfo, PsycNET, Chinal, Cochrane Library and EMBASE databases. The searches were performed from May through December 2018. The PRISMA diagram was used for study selection, and papers were assessed for quality based on the Mixed Methods Appraisal Tool. Data analysis consisted of a four-stage narrative analysis method. Result: Of 159 articles, 10 were eligible for inclusion. All studies considered satisfaction of the three basic psychological needs for competence, autonomy and relatedness as essential in predicting the quality of caregivers' motivation and thereby their well-being. In this review, autonomous motivation was the most important determinant of caregivers' well-being. Conclusions: Findings showed that SDT can be applied to identify, categorise, explain, predict, promote and support motivation among caregivers. This lends interesting support for SDT and promotes further study and application of the theory as a psychological approach to caregivers' health and health promotion.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Understanding informal caregivers' motivation from the perspective of self‐determination theory: an integrative review

Dombestein

Norheim

Husebø

2019

Scandinavian Caring Sciences

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“…Due to an ageing population in Singapore, the number of older people needing caregiving assistance in at least one activities of daily living (ADLs) is estimated to increase from 31,738 in 2010 to 82,968 in 2030 (Thompson et al, 2014). As care delivery to older people shifts from institutions to the community, families are expected to take on the caregiving role to fulfil societal expectations like filial piety (Ng, Griva, Lim, Tan, & Mahendran, 2016;Yeoh & Huang, 2010). Traditionally, caregiving responsibilities were the responsibilities of females of the family.…”

Section: Introductionmentioning

confidence: 99%

Caregiving experiences, coping strategies and needs of foreign domestic workers caring for older people

Heng

Fan

Chan

2018

Journal of Clinical Nursing

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“…Singaporean society was built upon Confucianism principles, with an emphasis on filial piety [6,7]. Hence, the family is the first line of support for patients with family members expected to take on the role of informal caregiving [8].…”

Section: Introductionmentioning

confidence: 99%

Caregiving and Its Resulting Effects—The Care Study to Evaluate the Effects of Caregiving on Caregivers of Patients with Advanced Cancer in Singapore

Chua

Wong³

et al. 2016

Cancers

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Informal caregivers (IC) are key to enabling home deaths, where preferred, at the end-of-life. Significant morbidity from advanced cancer can make caregiving burdensome. However, knowledge about the nature of the caregiving burden for caregivers in Singapore is limited. Hence, the key objective in this study was to examine the impact of the caregiving burden on quality of life (QOL), mental health and work capacity among local ICs. Eligible English-speaking ICs of hospitalized advanced cancer patients were recruited through non-random sampling. The Zarit Burden Interview (ZBI), Caregiver Quality of Life Index—Cancer (CQOLC), Center for Epidemiologic Studies Depression Scale—Revised (CESD-R), and Work Productivity and Activity Impairment Questionnaire (WPAI) were interviewer-administered to eligible ICs. Altogether, 16 ICs were surveyed. The mean age of ICs was 43.8 years. Most were children of patients (43.8%), and eight ICs had high burden (ZBI > 17). Those with ZBI > 17 had lower QOL, higher depression scores as well as greater work and activity impairment. In conclusion, high caregiver burden has adverse effects on QOL, mental health and work productivity. Non-physical elements of caregiving (particularly financial and decision-making) and increased number of care roles undertaken by a single IC contribute to high burden. Future interventions for caregiving burden in Singapore should also address the financial and decision-making aspects of caregiving. Outsourcing selected aspects of the caregiving role to community services may reduce the number of caregiving aspects undertaken by a single IC and caregiver burden.

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The burden of filial piety: A qualitative study on caregiving motivations amongst family caregivers of patients with cancer in Singapore

Cited by 90 publications

References 40 publications

Understanding informal caregivers' motivation from the perspective of self‐determination theory: an integrative review

Understanding informal caregivers' motivation from the perspective of self‐determination theory: an integrative review

Caregiving experiences, coping strategies and needs of foreign domestic workers caring for older people

Caregiving and Its Resulting Effects—The Care Study to Evaluate the Effects of Caregiving on Caregivers of Patients with Advanced Cancer in Singapore

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