The capacity of people with a ‘mental disability’ to 
make a health care decision

Wong, Jgws; Clare, Isabel C. H.; Holland, Anthony; Watson, Peter; Gunn, Michael

doi:10.1017/s0033291700001768

Cited by 148 publications

(145 citation statements)

References 30 publications

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“…Three focused on issues to do with communication of information, and found that supporting people to make decisions involves listening to them (Hoole and Morgan, 2011), asking about their preferences and choices in an open and non-challenging way (Antaki, Finlay, Walton & Pate, 2008), and providing clear and simple written information (Wong, Clare, Holland, Watson & Gunn, 2000). The next three studies reported beneficial effects of support training (Koritsas, Iacono, Hamilton & Leighton, 2008;Robertson et al, 2005) and end of life decision support tools for staff (Karp 2009) on patient choice and the quality of support offered.…”

Section: Improving the Implementation Of Supported Decision Makingmentioning

confidence: 99%

“…A practice considered to be less successful was asking for repeated clarifications/checks as this can be interpreted as querying the decision and result in the resident changing their decision. Wong et al (2000) evaluated how simplifying the provision of information affected the ability of people with disability in England to make decisions regarding blood tests. They noted that decision making ability significantly improved as the decision-making tasks were simplified for those with mental health problems, but not for those with intellectual disabilities or dementia.…”

mentioning

confidence: 99%

“…At the most basic level the provision of clear information and the simplification of decision-making tasks can provide support for decision making (Wong et al, 2000). Person-centred planning is also supported although there may be complexities in its implementation (Robertson et al, 2005;Dowling et al, 2007).…”

mentioning

confidence: 99%

See 2 more Smart Citations

Supported decision making: A review of the international literature

Davidson

Kelly

Macdonald

et al. 2015

International Journal of Law and Psychiatry

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Abstract:Supported decision making (SDM) refers to the process of supporting people, whose decision making ability may be impaired, to make decisions and so promote autonomy and prevent the need for substitute decision making. There have been developments in SDM but mainly in the areas of intellectual disabilities and end-of-life care rather than in mental health. The main aim of this review was to provide an overview of the available evidence relevant to SDM and so facilitate discussion of how this aspect of law, policy and practice may be further developed in mental health services. The method used for this review was a Rapid Evidence Assessment which involved: developing appropriate search strategies; searching relevant databases and grey literature; then assessing, including and reviewing relevant studies.Included studies were grouped into four main themes: studies reporting stakeholders' views on SDM; studies identifying barriers to the implementation of SDM; studies highlighting ways to improve implementation; and studies on the impact of SDM. The available evidence on implementation and impact, identified by this review, is limited but there are important rights-based, effectiveness and pragmatic arguments for further developing and researching SDM for people with mental health problems.

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Section: Improving the Implementation Of Supported Decision Makingmentioning

confidence: 99%

mentioning

confidence: 99%

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Supported decision making: A review of the international literature

Davidson

Kelly

Macdonald

et al. 2015

International Journal of Law and Psychiatry

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show abstract

“…Over the past 40 years a number of valuable empirical research studies have been conducted internationally and in the UK, which have attempted to conceptualize the notion of capacity and its assessment (Roth et al, 1977;Weisstub, 1990;Appelbaum and Grisso, 1988;Appelbaum and Grisso, 1995;Wong et al, 1999;Wong et al, 2000).…”

Section: Introductionmentioning

confidence: 99%

Homeward bound or bound for a home? Assessing the capacity of dementia patients to make decisions about hospital discharge: Comparing practice with legal standards

Emmett

Poole

Bond

et al. 2013

International Journal of Law and Psychiatry

103

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Northumbria University has developed Northumbria Research Link (NRL) to enable users to access the University's research output. Copyright © and moral rights for items on NRL are retained by the individual author(s) and/or other copyright owners. Single copies of full items can be reproduced, displayed or performed, and given to third parties in any format or medium for personal research or study, educational, or not-for-profit purposes without prior permission or charge, provided the authors, title and full bibliographic details are given, as well as a hyperlink and/or URL to the original metadata page. The content must not be changed in any way. Full items must not be sold commercially in any format or medium without formal permission of the copyright holder. The full policy is available online: http://nrl.northumbria.ac.uk/policies.html This document may differ from the final, published version of the research and has been made available online in accordance with publisher policies. To read and/or cite from the published version of the research, please visit the publisher's website (a subscription may be required.) Results: Our findings suggest that whilst professionals profess to be familiar with broad legal standards governing the assessment of capacity under the MCA, these standards are not routinely applied in practice in general hospital settings when assessing capacity to decide place of residence on discharge from hospital. We discuss whether the criteria set out in the MCA and the guidance in its Code of Practice are sufficient when assessing residence capacity, given the particular ambiguities and complexities of this capacity. Conclusions:We conclude by suggesting that more specific legal standards are required when assessing capacity in this particular context.

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“…Severe depression can manifest as impairment of information processing and reasoning that can significantly affect decision making [10]. Compromised ability for decisionmaking capacity has also been associated with disorders like dementia and delirium [11], intellectual disability [12,13], psychosis [14,15], and bipolar disorder [16][17][18]. Additionally, reduced decision-making capacity has been associated with patients admitted involuntarily or patients refusing treatment [15].…”

Section: Influence Of Psychiatric History and Current Diagnosismentioning

confidence: 99%

Influence of Psychiatric Symptoms on Decisional Capacity in Treatment Refusal

2017

AMA Journal of Ethics

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How psychiatric symptoms affect patients' decision making in practice can inform how we think-theoretically and conceptually-about what it means for those patients to have decision-making capacity. Assessment of a patient's decisional capacity allows those with adequate capacity to make choices regarding treatment and protects those who lack capacity from potential harm caused by impaired decision making. In analyzing a case in which a patient with stage II breast cancer refuses further treatment, we review the conceptual model of informed consent and approaches to assessing decision-making capacity that are in accordance with the American Medical Association Code of Medical Ethics as well as tools to assess decisional capacity.

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The capacity of people with a ‘mental disability’ to make a health care decision

Cited by 148 publications

References 30 publications

Supported decision making: A review of the international literature

Supported decision making: A review of the international literature

Homeward bound or bound for a home? Assessing the capacity of dementia patients to make decisions about hospital discharge: Comparing practice with legal standards

Influence of Psychiatric Symptoms on Decisional Capacity in Treatment Refusal

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