The characteristics of morbidity of breast cancer in the Kabarda-Balkar Republic

Бадоева, З А; Eshtrekova, A. M.; Alikova, Z R; Козырева, Ф У

doi:10.32687/0869-866x-2020-28-1-39-43

Cited by 1 publication

(2 citation statements)

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“…Some participants sought additional technical support and education in these areas, and many wanted to know how to adapt successful programs from other countries to their setting. Breast cancer early detection and care resource-stratified guidelines are available, 29 – 34 as are descriptions of barriers to early cancer detection in some EECA countries 7 – 13 and cancer advocacy resources, 35 but much of this literature was not accessible to many study participants as it published in English and in journals that require a paid subscription. In the setting of limited information, advocates valued opportunities to share experiences among like-minded organizations in the region and partner with international cancer organizations that provided relevant technical training and support.…”

Section: Discussionmentioning

confidence: 99%

“…Needs assessments to inform evidence-based strategies for improving general cancer care are scarce 5 , 6 and do not exist for breast cancer. Higher breast cancer mortality in EECA countries is attributed to late-stage diagnosis as a result of patient-related and health care system–related factors 7 – 12 and insufficient access to treatment. 13 Quality of life for patients can be improved through greater access to psychosocial support 13 and palliative care.…”

Section: Introductionmentioning

confidence: 99%

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Advancing Breast Cancer Advocacy in Eastern Europe and Central Asia: Findings From Women’s Empowerment Cancer Advocacy Network (WE CAN) Summits

Antone

Kizub

Gralow

et al. 2021

JCO Global Oncology

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PURPOSE Breast cancer civil society organizations have emerged in Eastern Europe and Central Asia to raise awareness about cancer as a survivable disease and provide patient support. We explored the experiences and priorities of these organizations with the goal of making recommendations to advance cancer advocacy and improve cancer care. METHODS We conducted in-depth interviews and focus group discussions with representatives of civil society organizations attending the 7th Women’s Empowerment Cancer Advocacy Network Summit in Romania in 2015. Interviews were audiorecorded, transcribed, coded, and analyzed for key themes. Findings were discussed at the 8th Women’s Empowerment Cancer Advocacy Network Summit in Ukraine in 2017 to ensure accuracy. RESULTS We conducted nine in-depth interviews and three focus group discussions with a total of 36 participants. Survivor- and oncologist-led organizations played an important role in filling existing gaps in public health care systems through awareness raising, patient support, and advocacy to improve early detection and access to treatment. Barriers to these efforts included persistent stigma, mistrust of patients toward the public health care system, limited access to evidence-based guidelines, difficulty adapting existing best practices to their setting, and insufficient involvement of policymakers. Key facilitators of advocacy efforts included effective local and international partnerships with physicians, like-minded organizations, and policymakers to facilitate access to educational resources, improve breast cancer early detection and care, and catalyze meaningful policy change. CONCLUSION Our findings highlight the value of providing opportunities for advocates to connect and share experiences. To advance cancer advocacy and improve cancer care, the following needs were identified: dissemination of resource-adapted information for improving outcomes; needs assessments; improved program-monitoring practices; and fostering and promotion of collaboration between advocates, medical professionals, and local governments.

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