The Community and Patient Partnered Research Network (CPPRN): Application of Patient-Centered Outcomes Research to Promote Behavioral Health Equity

Abstract

The CPPRN represents a promising approach for research data networks, balancing the potential benefit of information technology and data analytic approaches while addressing potential risks and priorities of relevant stakeholders.

Realizing the Potential of Social Determinants Data: A Scoping Review of Approaches for Screening, Linkage, Extraction, Analysis and Interventions

“…Few studies (n = 9) included interviews of patients and clinicians, engagement with communities, focus groups, town hall meetings and the like [46][47][48][49][50][51][52][53][54]. Other studies (n = 7) collected SDoH information using paper-based entry, iPads/tablets, patient or clinician-facing web portals and other web-based toolkits and forms [55][56][57][58][59][60][61].…”

“…Few studies (n = 9) included interviews of patients and clinicians, engagement with communities, focus groups, town hall meetings and the like[46][47][48][49][50][51][52][53][54]. Other studies (n = 7) collected SDoH information using paper-based entry, iPads/tablets, patient or clinician-facing web portals and other web-based toolkits and forms[55][56][57][58][59][60][61].Several studies made use of publicly available, external data resources to infer structural SDoH information for a given population. The most common external SDoH data sources linked to EHRs were US census and community survey data (at both patient/individual and area/neighborhood levels), administrative data/claims records, and disease registries.…”

Engaging LGBTQ Communities in Community-Partnered Participatory Research: Lessons from the Resilience Against Depression Disparities Study

“…23,24 The RADD study team at both sites have collaborated on mental health disparities research for nearly 15 years in contexts such as post-Katrina NOLA and South LA. [25][26][27][28][29][30][31] The RADD study tested the comparative effectiveness of two LGBTQ-tailored depression interventions on depression outcomes and mental health-related quality of life. 16,24,28,[31][32][33][34] The study protocol and design have been described in detail elsewhere.…”

“…[25][26][27][28][29][30][31] The RADD study tested the comparative effectiveness of two LGBTQ-tailored depression interventions on depression outcomes and mental health-related quality of life. 16,24,28,[31][32][33][34] The study protocol and design have been described in detail elsewhere. 24 Participants were approached and screened from agencies known to serve LGBTQ adults, such as health clinics, social-services agencies, and faith-based organizations.…”

Case Study of Resilient Baton Rouge: Applying Depression Collaborative Care and Community Planning to Disaster Recovery

“…A similar coalition approach was evaluated in a community-level randomized demonstration in Los Angeles of community resilience compared to standard disaster preparedness [ 28 , 29 , 30 ]. The collaboration across New Orleans and Los Angeles continued through the Patient Centered Outcomes Research Institute (PCORnet) and Community and Patient Powered Research Network (CPPRN), which supports new demonstrations, integrated datasets and a patient research registry [ 31 , 32 ].…”