The concerns of patients under palliative care and a heart failure clinic are not being met

Anderson, Heather; Ward, Christopher; Eardley, Anne; Gomm, Stephanie; Connolly, Michael; Coppinger, T.; Corgie, D.; Williams, J. L.; Makin, Wendy

doi:10.1191/026921601678320269

Cited by 107 publications

(69 citation statements)

References 8 publications

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“…Bredart et al (2001) found that patients valued the provision of medical information and wanted this to be improved. Anderson et al (2001) estimated that between 24% and 31% of social functioning problems reported by patients have not been addressed by professionals.…”

Section: Article In Pressmentioning

confidence: 99%

Preparation for cancer care: Perceptions of newly qualified health care professionals

Copp

Caldwell

Atwal

et al. 2007

European Journal of Oncology Nursing

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SummaryThe present paper is derived from a larger survey which examined the perceptions of recently qualified health care professionals' experience on evidence-based practice, team working and cancer care. This study reports solely on the findings relating to cancer care. The perceptions of recently qualified professionals in relation to their initial educational input on issues such as confidence, anxiety, communication skills and practice in cancer care as well as adequacy of support, professional supervision and use of reflection were gathered using a cross-sectional postal survey design. A total of 50 graduates from each professional category in nursing, occupational therapy, physiotherapy, and social work were sampled yielding a total sample of 200. Eighty-five questionnaires were returned yielding a response rate of 43%. Twenty-eight (33%) respondents stated that they were currently involved in working with people with cancer. These were as follows: 5 nurses, 8 physiotherapists, 9 occupational therapists and 6 social workers. Despite the low response rate, the findings suggest that health care professionals' educational input and experiences of working with people with cancer were overall positive; for example, in the respondents' confidence, communication skills, decrease in anxiety and application of knowledge gained in classroom to professional practice. Moreover, most respondents learnt about caring for cancer patients through practice rather than classroom teaching. A high percentage (i.e. 64%;18) across all groups felt supported when caring for people with cancer and reported receiving professional supervision as well as being able to actively reflect on their practice. The implications for education and practice were discussed particularly as there have been few studies conducted in relation to the specific needs and collaborative learning of these health care professional groups.

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Section: Article In Pressmentioning

confidence: 99%

Preparation for cancer care: Perceptions of newly qualified health care professionals

Copp

Caldwell

Atwal

et al. 2007

European Journal of Oncology Nursing

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“…Most (19) of the studies employed quantitative surveys (using highly structured methods in questionnaire or interview modalities); 4 were qualitative studies (using semi-structured interviewing), in individual or focus group formats). In studies using quantitative designs, the most commonly applied assessment of unmet needs was the Supportive Care Needs Survey (SCNS; used in six studies) -although there were inconsistencies between studies in how this measure was used (adaptations to questionnaire length, items, dimensionality, and language).…”

Section: Study Characteristicsmentioning

confidence: 99%

Unmet care needs in people living with advanced cancer: a systematic review

Moghaddam

Coxon

Nabarro

et al. 2016

Support Care Cancer

144

128

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PURPOSE:\ud The support needs of cancer patients vary according to the phase of their cancer journey. Recent developments in healthcare are such that the advanced cancer phase is increasingly experienced as a chronic illness phase, with consequent changes in patient support needs. Understanding these needs, and identifying areas of unmet need, can enable us to develop services that are more adequate to the task of supporting this population.\ud METHODS:\ud We conducted a systematic search of four electronic databases to identify studies examining the unmet needs of people living with advanced cancer. Relevant data were extracted and synthesised; meta-analyses were conducted to obtain pooled estimates for prevalence of needs.\ud RESULTS:\ud We identified 23 studies (4 qualitative) for inclusion. Unmet needs were identified across a broad range of domains, with greatest prevalence in informational (30-55 %), psychological (18-42 %), physical (17-48 %), and functional (17-37 %) domains. There was considerable heterogeneity amongst studies in terms of methods of assessment, coding and reporting of needs, respondent characteristics, and appraised study quality.\ud CONCLUSIONS:\ud Heterogeneity made it difficult to compare across studies and inflated confidence intervals for pooled estimates of prevalence-we need standardised and comprehensive approaches to assessment and reporting of unmet needs to further our understanding. Nonetheless, the review identified prominent needs across a range of (interacting) experiential domains. Moreover, by focussing on unmet needs for support, we were able to extrapolate potential implications for service development

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“…Therapy aimed at reduction of HF symptoms may also prolong life, or at least be perceived to do so. This may create confusion in the minds of both the patient and health care provider as to the actual goals of therapy -that the goal may be primarily to prolong life rather than primarily to alleviate symptoms (19). This may lead to the unintended expectation that other therapeutic modalities, such as mechanical device therapy or cardiopulmonary resuscitation, may also be required, when in fact they may not be appropriate (20).…”

Section: What Have We Learned Andmentioning

confidence: 97%

End-of-life planning in heart failure: It should be the end of the beginning

Howlett

Morrin

Fortin

et al. 2010

Canadian Journal of Cardiology

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Cardiovascular disease (CVD) is a chronic, progressive, incurable condition characterized by periods of apparent stability interspersed with acute exacerbations. Despite many important advances in its treatment, approximately one-third of deaths in Canada each year result from CVD. While this might lead one to assume that a comprehensive medical approach exists to the management of this inevitable outcome, the reality is much different. The current Canadian medical model emphasizes the management of acute exacerbations of CVD during which end-of-life issues figure frequently and prominently, although in a setting that is inappropriate to address the comprehensive needs of patients and their families. As a result, end-of-life care was made a theme of the recently reported Canadian Heart Health Strategy and Action Plan (www.chhs-scsc.ca). From this, several recommendations are made, central to which is the need to reframe CVD as a condition ideally suited to a chronic disease management approach. In addition, replacement of the term 'palliative care' with the term 'end-of-life planning and care' is proposed to foster earlier and more integrated comprehensive care, which, it is proposed, denotes the provision of advanced care planning, palliative care, hospice care and advanced directives, with a focus on decision making and planning. Finally, end-of-life planning and care should be a routine part of assessment of any patient with CVD, should be reassessed whenever important clinical changes occur and should be provided in a manner consistent with relevant CVD practice guidelines. Specifically, a Canadian strategy to improve end-of-life planning and care should focus on the following:• Integrated end-of-life planning and care across the health care system; • Facilitated communication and seamless care provision across all providers involved in end-of-life planning and care; • Adequate resources in the community for end-of-life planning and care; • Specialized training in sensitive communication and supportive care as part of core training for all members of the interdisciplinary care team; • Measurement of key performance indicators for end-of-life planning and care; and • Research into effective end-of-life planning and care. Heart failure is an advanced form of CVD with very high morbidity, mortality and burden of care, making it an ideal condition for implementation and testing of interventions to improve end-of-life planning and care. Les maladies cardiovasculaires (MCV) sont des maladies chroniques, évolutives et incurables caractérisées par des périodes de stabilité apparente entrecoupées d'exacerbations aiguës. Malgré les nombreux progrès importants du traitement, environ le tiers des décès au Canada découlent d'une MCV. On pourrait penser qu'il existe une approche médicale approfondie pour prendre en charge cette issue inévitable, mais la réalité est bien différente. Le modèle canadien actuel fait ressortir la prise en charge des exacerbations aiguës des MCV pour lesquelles les enjeux de fin de vie ont une ...

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The concerns of patients under palliative care and a heart failure clinic are not being met

Cited by 107 publications

References 8 publications

Preparation for cancer care: Perceptions of newly qualified health care professionals

Preparation for cancer care: Perceptions of newly qualified health care professionals

Unmet care needs in people living with advanced cancer: a systematic review

End-of-life planning in heart failure: It should be the end of the beginning

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