The Convention on the Rights of Persons With Disabilities: What Is at Stake for Physiatrists and the Patients We Serve

Bristo, Marca; Blauwet, Cheri; Frontera, Walter R.; Tolchin, Dorothy W.; Stein, Michael Ashley; Hoppe, Kurtis M.; Wu, Sam S.H.; Kirschner, Kristi L.

doi:10.1016/j.pmrj.2014.03.003

Cited by 6 publications

(5 citation statements)

References 6 publications

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“…Bristo et al . () argue that both professional groups and organizations can support staff to work within a rights‐based practice. Many of the reported actions that subverted the rules and norms were hidden, yet undertaken responsibly, were professionally defensible, and unwittingly endorsed the principles implicit in the Convention.…”

Section: Discussionmentioning

confidence: 99%

‘The right thing to do’: Fostering social inclusion for mental health service users through acts of citizenship

Hamer

Rowe

Seymour

2018

Int J Mental Health Nurs

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The theoretical framework of citizenship is increasingly being used in mental health settings to inform practice. This exploratory qualitative study describes in more detail the acts of citizenship embedded in the everyday practices of mental health workers that promote the social inclusion of people in their care. Acts make a claim for justice when one's rights and responsibilities of citizenship are denied. Semistructured interviews were conducted with 12 participants, seven mental health clinicians and five peer support workers, recruited from a mental health facility in Connecticut, USA. Two themes are presented, breaking the rules and the right thing to do, a rights-based practice that fosters inclusion for service users. Results suggest that staff undertake hidden acts of citizenship to promote inclusion and rights of service users by responsibly subverting the rules and norms of the organization. Changes to organizational practices to make visible such inclusionary acts are required. Implications for practice and considerations of organizational change through the development of a citizenship framework to underpin practice are recommended.

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Section: Discussionmentioning

confidence: 99%

‘The right thing to do’: Fostering social inclusion for mental health service users through acts of citizenship

Hamer

Rowe

Seymour

2018

Int J Mental Health Nurs

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“…Lastly, from a consumer’s perspective, the long standing misapprehensions surrounding the goals of rehabilitation and the contested role of health professionals in disability management make the results of this research even more important. Since people with disabilities have been traditionally excluded from decision making in rehabilitation care planning and programming, rights based indicators will prompt rehabilitation professionals and service designers to reconsider oppressing attitudes and approaches in their everyday clinical practice and pay more attention to human rights issues in patients care [ 73 ]. More importantly, the indicators will provide disabled people’s organization with a powerful tool to hold governments accountable for the implementation of key provisions of the CRPD as regards to national rehabilitation policy.…”

Section: Discussionmentioning

confidence: 99%

Developing human rights based indicators to support country monitoring of rehabilitation services and programmes for people with disabilities: a study protocol

Skempes

Bickenbach

2015

BMC Int Health Hum Rights

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BackgroundRehabilitation care is fundamental to health and human dignity and a human right enshrined in the United Nations Convention on the Rights of Persons with Disabilities. The provision of rehabilitation is important for reducing the need for formal support and enabling persons with disabilities to lead an independent life. Increasingly scholars and advocacy groups voice concerns over the significant barriers facing people with disabilities in accessing appropriate and quality rehabilitation. A growing body of research highlights a “respond-need” gap in the provision of rehabilitation and assistive technologies and underscore the lack of indicators for assessing performance of rehabilitation systems and monitoring States compliance with human rights standards in rehabilitation service planning and programming. While research on human rights and health monitoring has increased exponentially over the last decade far too little attention has been paid to rehabilitation services. The proposed research aims to reduce this knowledge gap by developing a human rights based monitoring framework with indicators to support human rights accountability and performance assessment in rehabilitation.Methods/DesignConcept mapping, a stakeholder-driven approach will be used as the core method to identify rights based indicators and develop the rehabilitation services monitoring framework. Concept mapping requires participants from various stakeholders groups to generate a list of the potential indicators through on line brainstorming, sort the indicators for conceptual similarity into clusters and rate them against predefined criteria. Multidimensional scaling and hierarchical cluster data analysis will be performed to develop the monitoring framework while bridging analysis will provide useful insights about patterns of agreement or disagreement among participants views on indicators.DiscussionThis study has the potential to influence future practices on data collection and measurement of compliance with human rights standards in rehabilitation service delivery and organization. The development of a valid and universally applicable set of indicators will have a profound impact on the design and implementation of evidence informed disability policies and programs as it can support countries in strengthening performance measurement through documentation of comparative information on rehabilitation care systems. Most importantly, the resulting indicators can be used by disabled people’s organizations as well as national and international institutions to define a minimal standard for monitoring and reporting progress on the implementation of the Convention on the Rights of Persons with Disabilities in the area of rehabilitation.

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“…Few data exist regarding the prevalence and experiences of people with disabilities as medical trainees and the limited studies available highlight an underrepresentation of individuals with disability in medical training and practice. [1][2][3] As defined by the International Classification of Functioning, Disability, and Health, disability results from the interaction between a person's health condition(s) and other environmental and personal factors that may impact the individual's participation in society. 4 Commonly accepted disability categories include learning disability, psychological disability, intellectual disability, sensory disability (including deaf/hard of hearing and blind/low vision), mobility disability, and chronic health conditions, which may lead to functional impairment.…”

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confidence: 99%

“…Medical residents with a disability may face additional challenges compared with their nondisabled peers, including difficulties with transportation, learning, testing, accessible work environments, and performing certain physical examination maneuvers, or interventional procedures. Few data exist regarding the prevalence and experiences of people with disabilities as medical trainees and the limited studies available highlight an underrepresentation of individuals with disability in medical training and practice 1–3 …”

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confidence: 99%

“…In 1993, the Association of Academic Physiatrists became the first specialty to publish disability-related guidelines applicable to general medical education 18 . As a medical specialty that places an emphasis on inclusivity, access, and disability rights, 1–3 physical medicine and rehabilitation (PM&R) physicians understand the barriers faced by this population and possible adaptations that could facilitate a trainee’s success, positioning them to successfully promote the expanded inclusion of people with disabilities within the medical profession. In 2005, DeLisa and Thomas 14 reinforced this responsibility by proposing 10 recommendations to organized medicine regarding monitoring, supporting, and welcoming physicians with disabilities.…”

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confidence: 99%

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Developing an Inclusive Training Environment: Accommodations in Physical Medicine and Rehabilitation Residency Training for Residents with a Disability

Hall,

Hayano,

Morgan

et al. 2024

Am J Phys Med Rehabil

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This study examines the challenges and accommodations for medical residents with disabilities within physical medicine and rehabilitation (PM&R) training programs. Medical residency presents unique stressors and responsibilities, with the potential for added complexities for residents with disabilities. Few data exist regarding the prevalence and experiences of people with disabilities as medical trainees and the limited studies available highlight an underrepresentation of individuals with disability in medical training and practice. Through cross-sectional surveys administered to PM&R residents, this research assesses disability prevalence, characterizations, barriers to training, and accommodations provided. Out of 140 respondents, 9.3% identified as having disabilities, with varying prevalence among genders and disability types. Results revealed distinct challenges for residents with mobility and non-mobility disabilities, spanning learning environments, standardized testing, procedural skills, and accessibility. Self-provided accommodations exceeded program-provided ones, indicating room for improvement in program support. These findings underscore the need for proactive dialogue between residents and leadership to address barriers, enhance accommodations, and create an inclusive training environment. The study's insights emphasize the importance of advocating for equal opportunities and cultivating supportive conditions to enable individuals with disabilities to thrive in medical residency programs, ultimately contributing to more diverse and inclusive medical communities.

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The Convention on the Rights of Persons With Disabilities: What Is at Stake for Physiatrists and the Patients We Serve

Cited by 6 publications

References 6 publications

‘The right thing to do’: Fostering social inclusion for mental health service users through acts of citizenship

‘The right thing to do’: Fostering social inclusion for mental health service users through acts of citizenship

Developing human rights based indicators to support country monitoring of rehabilitation services and programmes for people with disabilities: a study protocol

Developing an Inclusive Training Environment: Accommodations in Physical Medicine and Rehabilitation Residency Training for Residents with a Disability

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