The COPD-SIB: a newly developed disease-specific item bank to measure health-related quality of life in patients with chronic obstructive pulmonary disease

Paap, Muirne C. S.; Lenferink, Lonneke; Herzog, Nadine; Kroeze, Karel A.; Palen, Job van der

doi:10.1186/s12955-016-0500-0

Cited by 10 publications

(10 citation statements)

References 48 publications

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“…IRT is an increasingly applied methodology that lends itself to parametric tests, providing an evidence base for reusing questions that can be used to distinguish traits of interest [16, 18, 30]. This study supports the use of IRT methodology in optimising questions within healthcare surveys to predict patient outcomes.…”

Section: Discussionsupporting

confidence: 69%

Patient reported distress can aid clinical decision making in idiopathic pulmonary fibrosis: analysis of the PROFILE cohort

Stewart

McKeever

Braybrooke

et al. 2018

Preprint

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Idiopathic pulmonary fibrosis is a progressive and fatal interstitial lung disease. We aimed to determine if patient response to a palliative assessment survey could predict disease progression or death.We undertook a cross-sectional study in a UK clinical cohort of incident cases. Rasch-based methodology provided a disease distress value from an abridged 11 item model of the original 45 item survey. Distress values were compared with measures of lung function. Disease progression or mortality alone was predicted at twelve months from survey completion, with risk of death assessed at three, six and twelve months.Disease distress values were negatively correlated with lung function (r=-0.275 percent predicted DLCO). Expected survey scores computed from distress values could distinguish disease progression, 8.8 (p=0.004), and people who died, 10.2 (p=0.002), from those who did not progress, 6.9. Actual survey scores predicted disease progression and mortality with an area under the curve of 0.60 and 0.64, respectively. Each point increment in actual score increased risk of twelve-month mortality by 10%, almost 43% of people scoring above 18 did not survive beyond 105 days.We define a short questionnaire that can score disease distress and predict prognosis, assisting clinical decision making in progressive fibrosis.

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Section: Discussionsupporting

confidence: 69%

Patient reported distress can aid clinical decision making in idiopathic pulmonary fibrosis: analysis of the PROFILE cohort

Stewart

McKeever

Braybrooke

et al. 2018

Preprint

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“…an evidence base for reusing questions that can be used to distinguish traits of interest [16,18,30]. This study supports the use of IRT methodology in optimising questions within healthcare surveys to predict patient outcomes.…”

Section: Strengths and Limitations Of Item Response Theory Applicationsupporting

confidence: 67%

Patient-reported distress can aid clinical decision-making in idiopathic pulmonary fibrosis: analysis of the PROFILE cohort

et al. 2019

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“…This method allows more flexibility because the selection of questions depends on a patient's response to previous items [ 45 ]. A CAT for assessing HRQoL in COPD patients has been developed by P aap et al [ 46 ].…”

Section: Discussionmentioning

confidence: 99%

The effectiveness of a nurse-led illness perception intervention in COPD patients: a cluster randomised trial in primary care

et al. 2017

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The new COPD-GRIP (Chronic Obstructive Pulmonary Disease – Guidance, Research on Illness Perception) intervention translates evidence regarding illness perceptions and health-related quality of life (HRQoL) into a nurse intervention to guide COPD patients and to improve health outcomes. It describes how to assess and discuss illness perceptions in a structured way. This study aimed to assess the effectiveness of the intervention in primary care.A cluster randomised controlled trial was conducted within 30 general practices and five home-care centres, including 204 COPD patients. 103 patients were randomly assigned to the intervention group and 101 patients to the usual-care group. To assess differences, repeated multilevel linear mixed modelling analyses were used. Primary outcome was change in health status on the Clinical COPD Questionnaire (CCQ) at 9 months. Secondary outcomes were HRQoL, daily activities, health education impact and changes in illness perceptions.There was no significant difference between the groups in the CCQ at 9 months. We found a significant increase in health-directed behaviour at 6 weeks (p=0.024) and in personal control (p=0.005) at 9 months in favour of the intervention group.The COPD-GRIP intervention, practised by nurses, did not improve health status in COPD patients in primary care. However, the intervention has benefits in improving the ability to control the disease and health-related behaviours in the short term. Therefore, taking illness perceptions into account when stimulating healthy behaviours in COPD patients should be considered. Further study on influencing the health status and HRQoL is needed.

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The COPD-SIB: a newly developed disease-specific item bank to measure health-related quality of life in patients with chronic obstructive pulmonary disease

Cited by 10 publications

References 48 publications

Patient reported distress can aid clinical decision making in idiopathic pulmonary fibrosis: analysis of the PROFILE cohort

Patient reported distress can aid clinical decision making in idiopathic pulmonary fibrosis: analysis of the PROFILE cohort

Patient-reported distress can aid clinical decision-making in idiopathic pulmonary fibrosis: analysis of the PROFILE cohort

The effectiveness of a nurse-led illness perception intervention in COPD patients: a cluster randomised trial in primary care

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