The cost of conducting face-to-face household interviews in a rural, Native American population: The North Carolina Native American Cervical Cancer Prevention Project

Blinson, Karen; Dignan, Mark; Michielutte, Robert; Wells, H. Bradley

doi:10.1002/(sici)1097-0142(19961001)78:7<1587::aid-cncr38>3.0.co;2-u

Cited by 6 publications

(11 citation statements)

References 3 publications

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“…Blinson et al (1996) identified potential difficulties with collecting information from American Indian women that might be applied to interviewing any individuals:…”

Section: Resultsmentioning

confidence: 99%

The identified needs of ethnic minority groups with cancer within the community: a review of the literature

Lodge

2001

European Journal of Cancer Care

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The literature suggests that healthcare provision for ethnic minority groups is poorer than for the majority population. The intention of this paper is to review the literature available on healthcare provision for ethnic minority groups to see if this is the case for those with cancer. The introduction in the UK of monitoring of ethnic origins in the general population and healthcare service is recent and means that there are few data available. At present, cancer mortality is lower among ethnic minority groups than the majority population in the UK, which may partly be explained by a younger than average age within the ethnic minority groups and the fact that some members of ethnic groups retire to their country of origin. However, the mortality rates are expected to increase as the population ages. Breast and lung cancers are the most common cancers among ethnic minority groups in the UK. Traditional intervention strategies have been aimed at the majority white population and have not taken into account the needs identified by the ethnic communities themselves. Intervention strategies include advice on stopping smoking and chewing tobacco, increasing use of screening services by ethnic minority groups, targeted health promotion messages and education on cancer specifically for these groups. More data are required on cancer among ethnic minority groups in the UK. There are many similarities in the use of cancer services between ethnic minority groups and individuals with lower socioeconomic status in the UK.

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“…Blinson et al (1996) identified potential difficulties with collecting information from American Indian women that might be applied to interviewing any individuals:…”

Section: Resultsmentioning

confidence: 99%

The identified needs of ethnic minority groups with cancer within the community: a review of the literature

Lodge

2001

European Journal of Cancer Care

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“…Including open-ended questions is advised to allow for a story-telling approach to interviewing, which aligns with the communication style of Native communities (Fisher & Ball, 2005; Macedo et al, 2004; Strickland, 1999). Some authors specify a face-to-face semi-structured interview as the mode of choice for AI/AN populations (Blinson, Dignan, Michielutte, & Wells, 1996; Macedo et al, 2004; Pearson, Cheadle, Wagner, Tonsberg, & Psaty, 1994). Each tribe has its own distinct communication style, language and culture; however, the literature review identified cross-tribal commonalities which, when combined with reviews by those familiar with the customs of the tribes involved in this project, generated the foundation for the design of the survey.…”

Section: Methodsmentioning

confidence: 99%

“…Interviews were primarily conducted in person (85%), the preferred method for surveying in AI/AN communities (Blinson et al, 1996). Interviewers gave respondents the choice to complete the interview over the phone or in person.…”

Section: Methodsmentioning

confidence: 99%

American Indian and Alaska Native Cancer Patients’ Perceptions of a Culturally Specific Patient Navigator Program

et al. 2016

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Lack of access to care, funding limitations, cultural, and social barriers are challenges specific to tribal communities that have led to adverse cancer outcomes among American Indians/Alaska Natives (AI/AN). While the cancer navigator model has been shown to be effective in other underserved communities, it has not been widely implemented in Indian Country. We conducted in-depth interviews with 40 AI/AN patients at tribal clinics in Idaho and Oregon. We developed the survey instrument in partnership with community members to ensure a culturally appropriate semi-structured questionnaire. Questions explored barriers to accessing care, perceptions of the navigator program, satisfaction, and recommendations. AI/AN cancer patients reported physical, emotional, financial, and transportation barriers to care, but most did not feel there were any cultural barriers to receiving care. Navigator services most commonly used included decision making, referrals, transportation, scheduling appointments, and communication. Satisfaction with the program was high. Our study provides a template to develop a culturally appropriate survey instrument for use with an AI/AN population, which could be adapted for use with other indigenous patient populations. Although our sample was small, our qualitative analysis facilitated a deeper understanding of the barriers faced by this population and how a navigator program may best address them. The results reveal the strengths and weakness of this program, and provide baseline patient satisfaction numbers which will allow future patient navigator programs to better create evaluation benchmarks.

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“…Such nonparticipation is not only the result of lack of information; it is also due to cultural and gender-related factors. [13][14][15] Beyond the clinical, technical, financial, and organizational proficiency required of Papanicolaou test screening programs, essential elements are an awareness and understanding of cultural concepts of cancer and its prevention and sensitivity to cultural barriers.…”

Section: Discussionmentioning

confidence: 99%

“…In view of the potential partnership between public health and faith communities to reach underserved women, 15 we conducted a Maintaining Mammography Adherence Through Telephone Counseling in a Church-Based Trial…”

Section: Methodsmentioning

confidence: 99%

Monitoring disease burden and preventive behavior with data linkage: cervical cancer among aboriginal people in Manitoba, Canada

Young

Kliewer²,

Blanchard³

et al. 2000

Am J Public Health

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The cost of conducting face-to-face household interviews in a rural, Native American population: The North Carolina Native American Cervical Cancer Prevention Project

Abstract: BACKGROUND. This article focuses on planning, developing, implementing, and

Cited by 6 publications

References 3 publications

The identified needs of ethnic minority groups with cancer within the community: a review of the literature

The identified needs of ethnic minority groups with cancer within the community: a review of the literature

American Indian and Alaska Native Cancer Patients’ Perceptions of a Culturally Specific Patient Navigator Program

Monitoring disease burden and preventive behavior with data linkage: cervical cancer among aboriginal people in Manitoba, Canada

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